Hi Maureen and Ian

That's good news as you say I bet it was the Cake that did it. well done and good luck stay strong.

Love to you Both

Tom Onwards and Upwards xx

Hi Dai and Jean

We are suppose to be getting all these new people to tell us about themselves plus post a picture!!!!!

Dai Slim has had CDT plus Velcade next should be Revidimide,!!!!!! We though we might get 2 years !!!,,the only way we new it had returned was I asked for BMB as it does not show in blood or urine!!!!!!!?. We do not know if…[Read more]

Hi Maureen

Take everything they offer you it will help in the long run,I look back at the first time and thin how an earth did I do it,things also had to be changed at home,a shower instead of a bath,wooden floors in stead of carpet,the list went on and on,and some how I managed it.

This time I will not have all those problems but I am…[Read more]

Hi Eve

I'm so sorry that Slim has had a short remission and has relapsed. My best wishes to Slim and hope they find a treatment that will help

Best wishes to you both
Love Jean x

Hi Leedslass

Sorry but I do not know you name,I see this is the first time on this site,how you ave managed without it,I do not know.
You need some form of help,but only you can decide,as good as family and friends are,they have no idea,what or how they can help unless you tell them.

This illness brings depression with it,not just for the…[Read more]

Hi Jacquie
Well done in getting it sorted, I wont tell you not to worry as you still will, I will just tell you, Take one day at a time and let it run its course its a doable.

Now go and put some weight on first.

Tom Onwards and upwards

Hi Babs

1 year it soon passes,enjoy your holidays ,after last year make this year count. I envy you going to Australia ,we always said we will go there and hire a motor home and do the figure of eight.

Best Wishers Eve

Hi Jacquie

Congratulations ,just go with the flow,as every one says it is doable,harvesting stem cells is a bit of a haul,let's hopeitjust takes a day,things just fall into place from then on,all hospitals are different how they deal with SCT.

The only advice I can give you is,do not go out and buy new night clothes,plus take in you own cup…[Read more]

Hi Babs

Happy birthday to your stem cells! How good you can look so positively on life. May those stem cells have many many more years.

Love Mavis x

Hi Dai

It was very interesting to hear the beginning of your MM journey, having known you so long "in the ether", as it were! You still don't seem to be completely lucky in the level of care you receive, even having made a move of location. I had an dreadful hip consultant, who could be "brother" to yours! I think they thought they were…[Read more]

Hi Everyone and Dai

My name is Eve I use to be Slims partner for 31years,no intention of marrying felt we did not need it,how wrong could we be.
We married in ITU on the 26 of April 2011.

In Febuary 2011 my husband was diagnosed with Myeloma.

Slim and I are both retired,and have had a wonderful life are last 15 years have been spent…[Read more]

Hi Jane

Well am pleased your Bloods was Ok 😀
And I hope its soon when you start your CTD, Hope your Daughter and Son in Law have a safe move and weather keeps dry.

Yes Elaine and i have the grandkids often we have six :-0 not often we get all six together its a scatter here and their but we do have days when we know we will have them…[Read more]

Hi Maureen and Ian

Am not shocked nor surprised by the way you both feel, as its been said many a many a time its hard bloomin work and i think its harder to be the "Carer" than the patient.

I hope you all have a great Birthday,we all know its not going to be a great big lets get this party started day, so a little bit less is more (as the…[Read more]

Hi Sarah and Henry

I can tell you I had them as a child, and got spots again when I was in my late 30s and told Dr my wife thinks its chicken pox ??? He said You should listen to your wife more as she is correct. But be grateful it's not shingles ? So the answer is yes.
Hope he stays well from it.

Love Tom onwards and upwards xxx

Hi Nikki

My husband had cells harvested on 11 December and had had the transplant on 5 March. It depends on the hospital, I think. We are in Belfast and Belfast City Hospital only has 6 sterile units to service the whole on Northern Ireland and we were told that leukaemia and lymphoma patients get priority. Frank is on day 16. He has had…[Read more]

Hi Ali

You would be better you rang the myeloma help line t speak to Ellen or another nurse.!!!,

Every one on here can tell you there story but it will not help you .Go back to y our GP and keep pushing until you find out why your white cells are low,the problem with Myeloma is a GP. Might only come across 1 case in a life time and people…[Read more]

Hi Maureen

Well what can one say,it's one thing after another ,this is we're the family have to help out,even if it is just for an hour to give you a break.

In Ian,s defence he most properly does not realise how everything. Is taking its toll on you,but it does not mean you have to sit back and take it. You do have to find you own way of…[Read more]

Hi Tom

Same here when first introduced to Zometa some 18 months ago had a bad night with the said symptons very unpleasant floored mentioned it to my consultant so second time and thereafter given one piriton
tablet and 2 paracetamol some 20 minutes before a 30 minute infusion and that cured it never looked back hope this helps.

Polly

Just to say that I had my zometa last time over 30 minutes and it made the side effects much better than when I had it over 15 minutes. (Previously I'd had no problems with it).

I've been on zometa for about 3 years now (although I came off it for my transplant in 2011 – blimey it doesn't feel that long ago!), 18 months since transplant. I…[Read more]

Mari
As I explained to Nettie I am about to undergo my second transplant and your experiences and knowledge have encouraged me greatly to go ahead with a bit more confidence.
Many thanks and good luck to you both.
Carol xxx