Hi Nettie
I too am having to make the decision to go ahead with a second transplant – I was in remission for about 18months followin the first. Having read your very helpful personal experience I feel so much more confident in going ahead with my second procedure. I struggled greatly during and recovering from my first transplant which is…[Read more]

Oh dear, sickness on top of everything else, how terrible:-(

Phil had his first cycle cut short as they were worried about the lesion on his right leg causing the leg to fracture. He missed his last two Velcade injections of cycle one as he was admitted to hospital to have the right leg pinned (Phil prefers the term nailed as he thinks it…[Read more]

Hi Trish,

I am so sorry to hear that it is chicken pox plus a virus, no wonder Peter has felt so poorly. I hope the antibiotics and anti virals help Peter to start feeling better soon and then the 2nd cycle can get started. I know from our own experience that a delay in the cycle starting is not a problem as it is more important to be well…[Read more]

Hi Ian

Thats Good and i hope that you dont have problems with your legs as am sure you have enough to contend with.
They say the Subcut is best way? am pleased you are confirming that.

I have fingers crossed for you Ian, keep well and hope your legs stay solid.

Tom Onwards and Upwards

Hi Jane
Your welcome.
Dont forget during SCT you wont be alloewd out till your fit (ish) so I would suggest patches before you go in to wean yourself off them 😀 that said you will be near a coma anyways as Elaine told me i slept most of the time Lol.

Easter? well no plans but am sure we will be babysitting some time over that week end 😀 ,…[Read more]

Hi Billy
Sorry you had to join us but welcome anyway.
Its hard to keep your savings when you get ill let alone when you get proper ill 😐

I and my Young Bride (elaine) has seen our savings not only dwinndle but go the lot :-S as Elaine got breast cancer in 2008 and i with MM 2009 🙁
BUT I am pleased to say I dont have Bone damage and…[Read more]

Hi Jean and Frank

Well am sorry to say I cant help re the Leak from Franks Kidneys :-S but am sure the Dr's are on it with the Anti B's .

Its a long haul andf am sure it was longer for my Young bride (Elaine) than I ??. you know you will have to stick with it Jean but it has been said before "Make sure you Rest also" as the work realy…[Read more]

Not me Eve. I have a son in Kent who is a sergeant in the Met.
Jean x

Hi

Just something might be of interest to DAi and Jean,if I am correct you both have children on the isle of shep who both wrk in the prison service,Am I correct?????
Small world.Eve

Hi Pat,

Glad I could help. We read about it halfway through Phil's Velcade treatment but Phil does not drink green tea so it did not apply for him but we did wonder what else we had not been told by the hospital?? With the meds you bring home you can read the leaflets in the box but anything administered by the hospital you have to rely on…[Read more]

Frank phoned and says he is feeling a little better. Doctor told him this morning that he is doing well. He said that they were keeping him on antibiotic as his kidneys are leaking something. Frank can't remember what it was. Anyone know? Get over one thing and another raises its blo**y head. Damn this illness

Thak you all for your…[Read more]

Peter,

That is wonderful news, long may it continue.

Megan and Phil

Hi Jean,

I am so sorry to hear Frank has got a rash on top of everything else. Every time Phil was given platelets the nurse did warn him that a possible side effect of the transfusion might be a rash, luckily Phil avoided this particular side effect but I do think it is normal. It is a long journey while Frank is in the hospital but one day…[Read more]

Hi Pat,

I am sure I read somewhere that you should not drink green tea while on Velcade, I think this may be because it counter acts the effects of the drug but I am not 100% sure. You may want to check with the hospital or call the Myeloma info line to be sure or some one else on the forum may know. I was glad to read the good news about…[Read more]

I got it first time jean Lol xxx
😀

:-S Tom a hedge backwards 😛

😉

Hi Jean and Frank

Well I had a fair bit of Platlets and blood given whilst in Hospital and to be fair when I dropped I didn't feel well untill the day before i came home (was in 16 days) I had the rash but the think I worried more about was the sickness and still running to the loo, but it all came togeter slowly, I know its Hard to sit and…[Read more]

Hi Jane

You will be fine (ish) and yes i uised to smoke,, stopped just three weeks prior to my SCT in 2009, I was just using Patches to help me while i was in Castle Hill having SCT and thought when i am out I would start again 😀 , but it all fell apart as after SCT I couldn't be bothered or want to Roll me Fag so i didn't nor did i have the…[Read more]

Well as if we dint know it would work on you 😀 but that said a very well done Peter and long may it continue 😎
Great to hear Good news

Tom Onwards and upwards