tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
Its not a problem, your dad will slowly feel better but dont expect it to be soon it will take a bit of Time even when he is out of Hospital.
Am with you all on this one.
Love Tom Onwards and upwards xx
tom replied to the topic RCD Cycle 6 cancelled, SCT prep starts on monday in the forum Treatment 11 years, 8 months ago
Hi Sarah Jane
Stem Cell Harvest am sure you wont find that too much of a problem if like me you should find it pain free.
The GSF injections well I had to go into the Day Unit and get a nurse to do mine ha ha Now way was I sticking Myself so i wish you good luck with it. (BTW it dint hurt its just me) during the Injections i had about two…[Read more]
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 11 years, 8 months ago
Hi Peter
I think I know that now 😀 but you nip under radar as often as you wish 😉 but dropping by the normal way is better as its "Good To Chat"
Looked for you On Face Book, do you have a photo on profile? or is that you that just joined ??
And i will try to be good 😛
Tom Onwards and Upwards
meganjane replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise,
I am glad to hear Garry(Dad)has turned the corner, it is a great feeling, isn't it?:-) I wouldn't worry too much about the blood transfusion delaying his return home. For Phil the important blood count for discharge from the hospital was the neutrophils, while he was in hospital he had a couple of platelet transfusions but once he…[Read more]
SarahJane started the topic RCD Cycle 6 cancelled, SCT prep starts on monday. in the forum Treatment 11 years, 8 months ago
After a PP of 2 for the last 3 cycles it's been decided to move onto SCT. Having spent 5 months on all those meds its strange having 1 week off (just anti viral meds) before the next stage begins.
On a good note I didn't find RCD too bad, I've managed to work every day, except for 2 days after each 4 day block of DEX when I took to the sofa…[Read more]
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
I know your dads doing great 😀 it looks lie he might beat me and get out in less than the 16 days I done, and every one thought that was Good.
Dont worry to much about your dad getting more blood I had one two days before i was let out 😀 and the Dr said that I could have been let out the day before.
Love to you all and tell…[Read more]
tom replied to the topic Treatments and Procedures – Patient Experiences in the forum Treatment 11 years, 8 months ago
Yep am up for that Dai, its one thing I regret (and i dont do regrets easily 😛 ) that I dint do a blog or have a diary or even jot things down on rough bits of paper 🙁 and we all know how the brain goes after Chemo Ha ha.
Tom Onwards and Upwards
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 11 years, 8 months ago
Hi Peter
Looked at my Face Book?? dint know you had one and you dint ask to be my friend 🙁 Look Thin gosh am gonna have to tell My Young Bride (Elaine) that one lolol:-D am about 15st 😛
Your Doing well with it all Peter, But Wine and Chocalate :-0 am a savory man with my drink.
As for hair (and you peeped at my FB) mine has grown back…[Read more]
jmsmyth replied to the topic Treatments and Procedures – Patient Experiences in the forum Treatment 11 years, 8 months ago
Dai
I think that is a brilliant idea. When Frank started SCT I trolled through the site for others experiences which helped a lot. It took me sometime to gather the info but at least I was prepared to see Frank so poorly
Thanks Dai for the post on your experience of SCT it was very detailed and I forwarded it to our 4 sons as they don't let…[Read more]
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi Min
I suppose the difference is you have been there I have not,I do not know how I will feel,that is yet to come,mt daughters think I will go off in the motor home,but you cannot say until it happens,at times I do wish I had my life back instead of being in this bubble,but I do know people who are no longer in the bubble but life has not…[Read more]
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Tom, Helen and Louise
Thanks for posts. I have asked Frank to ask about bloods but as usual the doctor will tell him annoying he wants to know. To,or row befor I go Iin I will see if I can speak to a doctor. Tom my life would not be worth living if I let him sleep through a United match – mind you the way they played 2nd half, I wish I was…[Read more]
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Well first no way would you wake me for bloomin Football Lol
Second I can tell you Frank is doing Bloomin well 😎 I at that stage was asleep most of the time and only woke up to say Good Bye to Elaine and whoever turned up that day/nite, and as the Dr said "he is ahead of the pack" is soo true so thats Good but it still…[Read more]
tom replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Hi Keith
Am Pleased to read you have got rid of your infection and back home with Normal Temp. 😎
You have had it rough My Friend and I pray this is the Corner you turn and chase me to that "Remission"8-)
Still all crossed at ours for you Keith.
Tom Onwards and Upwards x
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Well I can only speak as as Slims Wife,I dread it all coming back,and I do have my blue moments.
Slim is just the opposite he does not worry at all,but he does not sleep a lot ,when I ask him is he is worried it will come back the answer is no.
His attertude is ( I never expected to live until I was 28 so everything. Else is a…[Read more]
jmsmyth replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi All
Frank feeling sick and terrible runs. Have given him tablets for cramps and sickness. Drips down. He had a power failure when doctor was talking to him 😛 . He slept for four hours and said that he has never experienced such a deep sleep. Doctor did not say anything about bloods but told him that "he was ahead of the pack" but not to…[Read more]
eve replied to the topic 1st relaspe in the forum Newcomers 11 years, 8 months ago
Hi Paul
Hang in there it is going to be worth it,the fact your still working is a lot,tiredness is one of the symptoms my husband had,but not the moon face he did have a rare side effect painful scrotum .very rare!!!
At least having your treatment subcutaneous saves time.
Jo nice to hear from you take it you are ding fine.??? Love Eve
eve replied to the topic Dad and his secret in the forum Newcomers 11 years, 8 months ago
Hi. Bev
How are things going .i am just boosting this up,as people might have missed ir.Eve
jmsmyth replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and Pete
Great to hear that things are menging a little. As Vikki says eating will return (I have been Re reading all SCT posts) and that seems to be the norm. Frank hasnt eaten for three days they threatened to bring him some vitamin drink and he told them he would eat a digestive biscuit today. He just feels sick and the dreaded…[Read more]
tom replied to the topic My Dad in the forum General 11 years, 8 months ago
Hi Laura and Dad
Sorry you had to join but its best place to be if MM is involved Good People and Good advice to be had here 😀
Just a fast one I am now 57 and i had my SCT in December 2009 and am doing great and drug free 😀
Its an uphill fight some days when you go through the treatment but it is a Doable, a few blogs have been done…[Read more]
tom replied to the topic Our Journey in the forum Newcomers 11 years, 8 months ago
Wow Wow And Bloomin WOW
What a venture you and yours have and are going through and I raise my hat to you all (I do wear one he he)
Your Story is inspirational 😎 and your strenth will carry you through the MM Journy Good Luck and Love the Post
Love Tom Onwards and Upwards xx