tom replied to the topic Good response to Velcade in the forum Treatment 11 years, 8 months ago
Well Done Ozzy thats the way to roll and long may it continue.8-)
Enjoy your Break am sure you all deserve it 😎
Tom Onwards and Upwards x
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise and you very young and fit Dad 😎
I had CTD and that worked for me in 2009 leading up to SCT in December 2009 and I sit here In remission and Drug Free 😀 and that proves all the bad stuff is worth it 😉
Unlike our Friend Dai I only had three Bags 😛 and was also fitted with the multi in the groin, am sure that way is better…[Read more]
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Your welcome Ann and how is Pete today ? am sure his mouth is still not good but it will given time. am sure he wont feel like eating yet by now? that also will come back am pleased to say.
Love to you Both
Tom Onwards and Upwards xx
tom replied to the topic Trying to tell us something? in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Its a bugger when they tell you fibs I prefer the truth up front and straight, I might not like it but if its the truth there is nothing i can do about it.
I can tell you Jean not to worry but you will so al say worry but dont wast time worrying too much Frank will be OK 😀 .
Dai
It must be an MM thing as as and when…[Read more]
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
A warm welcome from Iccle ole me, this place is a comfy warm and soothing place, pull up a chair and put some comfy slippers on as you are now on the long road to remission and i hope its a smooth one.
I am 57 and had my CTD in 2009 leading up to a SCT in December 2009 and am now in remission and drug free 😀
Ask away but dont…[Read more]
tom replied to the topic Bad news in the forum Off topic 11 years, 8 months ago
Lmao David its great to see Life just rolls on with a great Big Laugh well done and you two keep it up.
Ps Well Spotted Tina I also wondered what Lol (might have been Dex lol)
Tom Onwards and Upwards x
tom replied to the topic Bone Marrow Biopsy in the forum General 11 years, 8 months ago
Hi Trish
Well tell Peter Good Luck from me please and I hope it runs a smooth course and is gentle on him.
Stay well Peter
Tom Onwards and Upwards x
jmsmyth replied to the topic Trying to tell us something? in the forum Treatment 11 years, 8 months ago
Hi Dai
Someone smeo where along the lines is telling porkies :-P. we found out today that the consultant – the top dog is on all weekend. I think it is the case of passing the buck. Frank is quite relaxed about it – I think the fact that he will be ok to watch his beloved United tomorrow may have something to do with it!!! :-S The only thing…[Read more]
jmsmyth replied to the topic Good response to Velcade in the forum Treatment 11 years, 8 months ago
Really great news Ozzy and long may they continue to drop
Take care
Jean x
meganjane replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise,
Everyone has such a different journey it is hard to say what your Dad might experience but if it helps this is a link to what side effects my husband Phil had when he had his stem cells…[Read more]
jmsmyth replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Dear Keith
So sorry about the awful infections. I hope the BMB points them in the right direction. My thoughts and good wishes are with you
Love Jean x
meganjane replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann,
It isn't great when they tell you it will get worse before it gets better, is it? I remember Phil and I wondering each day if Phil had reached the bottom yet but you will find one day you will go in and Pete will have turned the corner and then it will be onwards and upwards – to borrow a catchphrase 🙂
Megan
meganjane replied to the topic Trying to tell us something? in the forum Treatment 11 years, 8 months ago
Dear Jean,
I am so sorry to read about another delay, it is so frustrating. I hope they get everything organised well in advance for Monday and that it all goes smoothly next week.
Megan
jmsmyth replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
Welcome e to this wonderful site. I know you don't want to be here – no one does 🙂 but you are in the right place for advice, support and friendship. Come on ask anything – someone will be able to give you their experience and its a great place to rant and rave. What an awful thing about your daughters mother in law having MM. I never…[Read more]
meganjane replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Dear Keith,
I am so sorry to hear about the sepsis. I hope the BMB may help to find out the source of the problem with your platelets. Phil and I are both thinking of you.
Megan and Phil
meganjane replied to the topic Bed Sore in the forum Related conditions 11 years, 8 months ago
Hi Maureen,
That is great news that Ian is allowed out of bed, even if it is only for an hour, it is a step in the right direction. The civil wedding in July will also help as a goal to work towards.
It does seem that there is a lack of good care sometimes in the NHS, Phil has mostly been very lucky but there have been a few instances…[Read more]
eve replied to the topic Bed Sore in the forum Related conditions 11 years, 8 months ago
Hi Maureen
I use to just draw the curtains and get on with it,I cannot tell you how many times I went in ai 8am and he had been ringing for a commode,I use to go out to the sluice room disinfect the commode help him,then took it out cleaned and disinfected it again,then a nurse would pop her head round and ask what he wanted half a hour…[Read more]
eve replied to the topic Another new 'member' in the forum Under 50s 11 years, 8 months ago
Hi Jane
Nice to hear from you,take it your under fifty to introduce your self on there,people might miss it,you might like to go to newcomers,people are more likely to see it.
Helps if you tell a bit about yourself as some actually meet in hospitals and might be of use to you if you are worried about anything. Eve
eve replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Hi Keith
You sound a bit down,let's not think about what the doctor said,lets just think I am going to jump the hurdle, if its any help to you when Slim was being taken to ITU a young doctor,said we're taking you to ITU I cannot promise you will not die,he had not even asked,luckly he cannot remember .
They do not know everything Keith,what…[Read more]
jmsmyth replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann
Sorry that Pete is having such a bad time. I hope thins start to get easier – the quicker the better. Best wishes to you both. Frank is soooooo bored . Just left him and he's not a happy bunny
Take care
Love Jean xx