Aww bless, w know its going to happen but it's still hard, mouthwash I can tell you you can't use too much.
Pete will lose weight for some time due to not being able to eat, plenty of ice cream and ice pops did well for me during this time.

Love Tom Onwards and Upwards xxxx

Hi Dai

It's great when one can get the vein first time, we had one Mature Nurse who used to crack it every time but she told me it was because she used to work on a baby ward and some time she had to get one in on the head of the poor child.

And as for the cats whisker am sure we would all be happy with that if it went in first time ha ha,…[Read more]

Hi Vicki,Trish and of course Peter

Sorry it's a relapse situation but am sure the veil adze will kick it into touch.

Stay well and keep us posted

Love Tom Onwards and Upwards xxxx

Hi Helen

I thought something might be up,as no postings,I find I miss things if I do not look in daily

I am sorry,are you not tempted to start treatment while its low !!! The reason I ask this is the was an article about people who had CDT then Velcade having better remission time might not mean anything though.
It,s a strange place to be…[Read more]

Hi Jean and Frank

Well that's a blooming bugger, I have said many a time our NHS is the best (as long as its between Mon/Fri)
I bet you are both well pead off.
Stick with it and him upstairs ain't saying anything as he dunt know yet 😉 xxx

Love Tom Onwards and Upwards xxxx

Hi Mavis
Well am for that bit over 67 and am sure the big man will allow it haha.
Yes it is a bugger to be ill enough to claim it and to be fair I wouldn't want to be that ill.

Eve
Am sorry but if those daisies won't push themselves up they stay where they are lol (av never been a gardener) but am ok for a Onesie Party hehe .

Helen am…[Read more]

Hi Vicki,

Phil is doing very well thank you. His initial treatment was on the PADIMAC trial which was six cycles of dex, Doxorubicin (chemo) and Velcade. The six cycles brought his paraprotein down from 32 at diagnosis to 5 by the end of cycle six. Phil had his auto stem cell transplant in December/January and his paraprotein is now down to…[Read more]

Hi Vicki, Trish and Peter,

When my husband Phil had Velcade last year the cycle was 21 days with two weeks on and one week off. The Velcade was given subcutaneously on days 1, 4, 8 and 11. If Peter is due to have 8 cycles this would add up to the six months. I hope this helps.

I'm glad you had a nice curry and wine but you may find that…[Read more]

Hi Everyone

Mavis you are allowed to be cantankerous when you are over 65 I cannot wait,I am practising now,what,s this about Helen which Helen is out of remission.????

When I said about chances of Tom not reaching 67 I was talking about betting odds,would you not call it a sure bet,but saying that 2 years ago when Slims Myeloma was in…[Read more]

Ann, Peter, Tom, Elaine, helen, Eve and Slim. Thank you so much for you advice and support. I am very grateful for all your friendship. I left him last night about 10.40 – he was worried about me walking to car park at night 😛 He seemed in good form but you are right Eve he will not let you see how he's feeling.

Did not sleep with worry…[Read more]

Hi Tom

What's all this talk of not living till 67! I am counting on you still being around then to keep us all smiling!
We all need to travel hopefully don't we.

Re DLA, I got it for very severe arthritis, before I even knew what MM was (happy days!") also, am now over 65 . It was a struggle to get it then, but has been a life-line to…[Read more]

Hi Jean And Frank,

I will not tell you not to worry,because you will,but if you are unsure of anything ask the nurses or if you think about something once you come home,ask on here,there are enough people on here,who have all gone down that path.

Remember Jean,after about six days,old clothes you can throw away,tell him not to get…[Read more]

Hi Tom

We have it in for shelted accommodation as we decided the same thing,Slim surprised me,as it was his surges ten ,we found the council did not want to know own you own property you do not get many points,so the more you have worked and looked after yourself the less you get, a friend suggested Sanctury Housing,they do not mind if you…[Read more]

Hi Jean and Frank

Well Done its here 😀 yep uts scary :-S its not a walk in the park BUT it is a Doable, Trust me i have done it yes i was scared but it had to be done 😛

Just get Frank to use the moth wash more often than it says on the bottle (I used two botlles in three days) and it worked for me little mouth problems after that not…[Read more]

Hi Babs
Yes it looks a minefield to try and get something. Trouble is I am fortunate enough to be fit (ish) but to be fair I am tired and get a wee bit weary at times? but hey ho Onwards and upwards.

As for using a trolly when shopping I love to take the grandkids as i can push the trolly and love to take them for a walk with the dog cos i can…[Read more]

Hi Maureen

You must find it hard with working,have a word with husband,and tell him to make sure they turn him over,and ask can the physo massage his pressure points,or when you go in give him a massage,it,s good for circulation plus relaxing and in general will make him feel better.

When Slim was in hospital an I pad with Skype on it…[Read more]

Hi Dai

Pleased the connected you up first time as its a devil if and when they collapse as used to happen to me when i was having Zometa evey four weeks was pleased when it was finished 😀

The Link http://www.youtube.com/watch?v=MdxsqeGS-Ms is and was worth a look it made me Laugh well done you two.

Tom Onwards and upwards 😎

Hi Folks Thanks for your Inputs 😀

David
Yes I can and do most of those But I dont do the Garden as much as My Body tells me its too much, cook clean and do a fair bit of dog walking as am sure thats what keeps me Mobil and less bone pain 😀

Dai
Yes the DLA is as I have found out More for Mobility, and from what I gather you need to be…[Read more]