Hi Maureen,

You and Ian have both had a very tough time, I do hope the work they will do on his upper body and legs will help for when he is allowed out of bed. It is another set back but you both need to try and stay strong (easier said than done, I know) and work towards getting Ian home.

My thoughts are with you both.

Megan

Hi Sue

Well I was up at 5am this morning and I took 2 tablets,had to get up with frozen shoulder and bad leg,a cup of tea and a piece of toast,so I could take pain killers and I am only the carer. Lol, I have gone down hill,as Slim is getting better,I think the whole 2 years hit me in one go,so may be sleeping tablets are not the…[Read more]

Hi Tom

I do not know what you situation is Tom,Dai is right in what he says about the physical side of claiming,but they can not discriminate between physical and the mental ability of the person although they have tried for years,because they do not like paying for a person,eg with early dementia or mental issues.

Tom as you say your…[Read more]

Hi Maureen

It makes me angry when I. Hear people having bed sores,the NHS have ripple beds and if he was given the nursing he should of had,a man of his age should not be in this position,I could under stand it if he was frail,as it is very hard to avoid bed sores.

I can only tell you all the time my husband was in hospital,I bed bathed him…[Read more]

Tom,

A 6am start doesn't sound very much like light duties to me!! 😀 It is very frustrating having to worry about money on top of dealing with Myeloma, isn't it?

Megan

Hi Sandie

I hope the MRI has good results for you 😉 as for Mum being Sickie
To be fair I only had the sickness when I had my SCT and it was for a couple of months
I was using Sick Tabs, keep going in that sweetie drawer am sure it is good for us lol.

Take care and love to you both

Tom Onwards and Upwards xx

Hi folks
Thanks for input , yes Tom you have to be near dead before you get anything. I am of an age (57) that I can draw my frozen pension and if I pack in work can claim the one I pay for now, but my frozen one gives me next to nothing BUT if
I pass away before I reach Retirement age it pays my estate £29 K 😀 so am gonna leave it and see…[Read more]

Hi Tom,

Phil and I had similar problems when he was initially diagnosed and we tried to apply for benefits. Phil had taken voluntary redundancy from work and we were set to move to Devon. Two weeks after Phil finished work he got the diagnosis of MM so we cancelled our move and stayed in London. We found that Phil did not qualify for most…[Read more]

Hi Dai,

That is wonderful news :-).I hope cycle 3 goes well and that when you finally get your free lite results that they have gone down.

Megan

Hi Dia

a winner as always just keep on top of the game
Big Hug;-)
love Jo

Well Done that Dai
But am sure you know that we all knew you could and would do it (am sure that makes sence?)

And as This Scunny Lad says Onwards and Upwards

Tom x

Welcome back to the game Dai. 🙂 With your determination it can be a game you can win. Hope you get a good result from the FreeLite

Love jean x

Hi Trish and Peter

Gosh I honestly hate the wait hate it even when I know am going to be Ok cos I fel greatbut the wait (for me) is always the worst.

Fingers crossed

Love Tom Onwards and Upwards xx

Hi Nicki

Dont forget when you read things online or in papers all MM patiants are differant so I would (and do) just concentrate on the good bits 😎
Stay well and strong.

Love Tom Onwards and Upwards xx

Hi Ann and Pete

All sounds good to me you two are doing well 😀 the need or wanting food will be lost for a time am afraid but it will come back (you should see my belly lol) , Its lonely in Isolation but all Pete will want to do is sleep (if he is like me)

Keep well its on a roll now

Love Tom Onwards and Upwards xxx

Ann and Vicki

Thank you for your good wishes. We thought we would get the call this afternoon but nothing. Frank has his bag packed – so it's just a waiting game. Ann we were told by the transplant co ordinator that we were not to bring any food into hospital. She said digestive biscuits and lots of chocolate 🙂 She also said no bottled…[Read more]

Thanks Eve and Liz & Kev for your kind replies.

Eve I am glad that Slim has had a good response to Velcade, I hope that Sam does too.

Liz & Kev, great news about Kev's count!

I worry as I read somewhere that the first period of remission after the SCT is usually the longest, I hope that this proves not to be the case.

I hope that…[Read more]

So sorry, thinking of you and your girls xxx

Hi Liz

It is so good to keep getting good news. Trust Kevin's light chain readings continue to fall fast!

Keep at the fight.

Very best wishes.

Mavis