tom replied to the topic Treatment update. in the forum Treatment 11 years, 9 months ago
Thats More great news for us all 😀
Enjoy and long may it continue
Love Tom Onwards and Upwards xxx
jmsmyth replied to the topic Treatment update. in the forum Treatment 11 years, 9 months ago
Great news Liz that's some drop. Kev glad you are feeling good. Long may it continue. Take it easy and enjoy
Love Jean xx
Dizzyliz started the topic Treatment update.. in the forum Treatment 11 years, 9 months ago
Hi all,
Kev went for his four week checkup after getting over his pnueamonia and having a extra week off treatment his light chains are going in the right direction from 450 to 42!! Yes you read right and we are so pleased kevs even feeling tons better so let's hope this continues the less we see the hospital the better for now anyway!
Keep…[Read more]
Dizzyliz replied to the topic Michael in the forum End of Life and Grief 11 years, 9 months ago
Dear sue,
Just to send my condolences to you and your family,
You are in our thoughts love liz & kev xx
Dizzyliz replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki,
Sorry to hear Sam as relapsed and also having your own health issues, I care for my hubby kev who was diagnosed August 2010 had SCT April 2011 but sadly relapsed the following may 2012 and went straight onto velcade/ dex it worked well and he had the full eight cycles with the last three reduced because of PN in his feet & hands and…[Read more]
Dizzyliz replied to the topic MRI scan in the forum Treatment 11 years, 9 months ago
Hello David,
Sorry to read that MM is on the up its good there on the ball and hope the MRI goes well
Thinking of you keep well! Love liz & kev xx
Dizzyliz replied to the topic Bone Marrow Biopsy in the forum General 11 years, 9 months ago
Hi trish,
Fingers & everything else crossed for wed: the wait is like being in slow motion, hope all goes well and the news is good!
Thinking of you love liz & kev xx
Dizzyliz replied to the topic Ian in rehab in the forum General 11 years, 9 months ago
Hi Maureen,
Been reading your posts I'm a carer for hubby kev and the longest I've been away from him was when he had his sct ( three weeks) and the visiting does catch up with you. You must miss him terribly and I hope that Ian will be back home pretty soon
I will be keeping fingers crossed keep well.
Love liz & kev xx
Dizzyliz replied to the topic First time for everything… in the forum Treatment 11 years, 9 months ago
Hello Dai
Popped in to see how everyone's doing, sorry to hear of the long wait in DC it's happened to us and when your feeling tired and unable to sit on those horrible chairs, kevs nearly walked a couple of times I even blamed the chairs for my sciatica.
Anyway Dai glad you got to talk to someone in the end and good luck with your next…[Read more]
Dizzyliz replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi jean
Will be thinking of you and frank hope all goes well, I will keeping looking in for updates take care.
Love liz & kev xx
jmsmyth replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Hi Ann and Pete
Just wanted to wish good luck 😀 I hope Pete you come through it with the minimum of side effects. The nurse came out last night and said Franks neck a bit red she phoned hospital but we have to keep an eye on it and take temp. Now sitting by the phone again waiting for the call. Ann I know that awful dread feeling I have it…[Read more]
Dizzyliz replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Hi Ann & pete,
Good luck with the treatment time will fly by or though it won't seem like it at the time, hope all goes well!
Love liz & kev xx
Dizzyliz replied to the topic Three little words…… in the forum General 11 years, 9 months ago
Hi vicki & Colin,
Brilliant news, were so pleased for you both! Long may it last.
Love liz & kev xx
jmsmyth replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi Vicki
Everything went great yesterday. They told him that he could go home at 3.30. They took obs every 1/2 hour and every time things were great so he went home at 1.00. I asked lots of questions. Visiting is from 1-9 absolutely no visiting in the morning. I asked about bringing ice in and she she said no. They took the ice machine out.…[Read more]
jmsmyth replied to the topic MRI scan in the forum Treatment 11 years, 9 months ago
Hi David
Sorry to hear that MM is on move. Fingers crossed that MRI so sent show up anything to worry about. Best wishes.
Eve I had noticed Helen hadn't posted. I sent her an email last week and she is usually quick in replying nut heard nothing. Hope things are ok with her
Jean. xx
Ps Helen has been in Barcelona
eve replied to the topic MRI scan in the forum Treatment 11 years, 9 months ago
Hi David
Hospital 500 yards,you lucky devil,no problems for you.blood test morning,phone you. Up,and pop over for injection .
Slim had 6 cycles which surprised me as,he had just completed 6 cycles of CDT,only to find after BMB the Myeloma had increased in bone. Marrow but was showing on Kapper Light Chains as in remission,that is why BMB for…[Read more]
tom replied to the topic 2nd cycle of PAD started this week in the forum Treatment 11 years, 9 months ago
As others have said Tom Great Blog, you can now class me as one of your Stalkers ha ha.
Well done and Keep well
Tom Onwards and upwards
mhnevill replied to the topic 2nd cycle of PAD started this week in the forum Treatment 11 years, 9 months ago
Hi Tom
All the best for your second cycle. Will enjoy looking at blog.
Very best wishes.
Mavis
mhnevill replied to the topic Three little words…… in the forum General 11 years, 9 months ago
Hi Both of you!
Do revel in such marvellous news!! May it last for ever. Well, we can always hope and pray!
Love Mavis x
mhnevill replied to the topic Ian in rehab in the forum General 11 years, 9 months ago
Hi Maureen
I am a real believer in Physio. If you have a good therapist they can work miracles provided Ian is willing to put in the work and i am sure he will.
I have returned to mobility six times so I know it is possible!
Lots of love Mavis x