Dear Sue

My thoughts and prayers continue to be with you.

I am relieved to know that Michael is at last free from pain and at peace, but I appreciate just how empty and low you will be feeling. Your grief will be harder to bear, as you have been carrying such a heavy burden these past couple of years, as you have valiantly fought this…[Read more]

Hi Trish,

The waiting for results is hard. I am glad you were both able to speak to a MacMillan nurse and hopefully next week you and Peter can have your other questions answered and find out more about the next step.

Megan

Hello Maureen,

I was sorry to read that Ian had a temperature but I am glad that they found out what the infection was and he was able to return to rehab. I hope that with the rehab Ian will soon be able to go home.

Megan

Hi Tom,

Great blog, thank you for posting the link, I look forward to following your progress on treatment and your watercolour data rendering tests.

Phil and I always knew how lucky we all are to have the NHS and we knew the drugs were expensive but it is interesting to actually see the cost. As Phil was on PAD as well we can see that his…[Read more]

Hi Dai

Well looks like your doing Ok
Am sure you will be Spot on for your next lot of treatment on Monday. But My fingers will be crossed just the same.

Tom Onwards and Fingers crossed Upwards 😀

Hi David

Sorry to read you got confirmation that the damn MM is on the move 🙁 Hope your MRI goes well.

Vasbyte and of Course Onwards and Upward

Tom x

Hi Keith
That I did (sorry consultant) yes i thought you were left and not getting the info. (am a silly billy) 😀

Hope your PP's are soon sorted

Tom Onwards and upwards x

Hi Maureen and Ian

Aww I bet you miss him, lets hope its just for a short stay and Physio soon get Ian as near up and running as they can.
Take Care and Give Ian My Regards and tell him we are rooting for him and of course you.

Love Tom Onwards and upwards xxxx

Hello Maureen

I hope all goes well and he is home with you soon
Love Jo

Hi David

Velcade is good although you have to go to hospital a lot more,Slim had less side effects,we did the hospital bit twice in one day two times a week,blood in the morning infusion afternoon,tablets once a month,you look forward to the week you do not take anything.
Lets hope MRI scan is clear,it's the damage it causes,I think is more…[Read more]

Hi Sue

I hope you are feeling at peace with yourself and when you go to bed have a good nights sleep,you did your best for Michael,no one can ask more.

My best wishes to you and your girls,I am sure Michael was very proud of you all.Love Eve

My Dear Sue

I am so sorry for your loss as your loss is now our loss.

Please Take Strenth on the Good Times and push this Myeloma to the back of your mind.

Although its very sad when Michael passed away he is in no pain now and I hope you all feel better with Michael passing away at home.

I wish I lived near you Sue as am sure you need…[Read more]

Dear Sue

I am so sorry for your loss. Your beloved Michael is now at peace and free from pain. My thoughts and prayers are with you, your daughter and family

Love Jean x

Dear Vicky and Colin

That is wonderful news

Ange x

Hi Keith,

I hope the platelet transfusion today helped to kick start the platelet production, it must be so frustrating for you. After Phil's stem cell transplant his platelets took quite a while to recover and he needed quite a few transfusions, we do not know what his levels currently are as no one has got back to us with his most recent…[Read more]

Dear Vicki and Colin,

What wonderful news 😀 😀 😀

Megan and Phil

Thanks Vicki for the info. We are seeing stem cell co ordinator and consultant tomorrow and the Hickman is put in on Friday. I know all hospitals are different but do they allow wife to stay as long as they want? I am just hoping the PP have dropped to 0 from 2. I seem to be obsessed with them. They said they would bring him in Monday or Tuesday…[Read more]

Hi Jean and frank

Good Luck with it all
It will be worth it in the end the results far way out the bad bits, let Frank determine how his body feels each day and go with the flow.

Love and hugs to you both xxx
Onwards and upwards xxx

Hello Marina,

I am so sorry you and your husband had such a bad time in A&E and the MAU. My husband Phil was diagnosed with MM in May 2012. Phil started treatment at the end of May and he had six cycles of dex-dox-Velcade. His second or third cycle was delayed as the medical team were very concerned about the damage the MM had done to both…[Read more]

went in wrong place so here it is again Lol

Tom

RE: Got call at las

20-02-2013 at 9:16 PM

Jean sent you a PM xxx