Jean sent you a PM 🙂 xxx

Hi Marina

Sorry you are in this situation ,but it will help you with future dealings if you end up in A&E again.

I can tell you during the fourth cycle of CDT my husband was admitted to ITU and was in hospital for 23 days they stopped the chemo ,said that came secondary to Pnuemonia ,all together he was 6weeks no treatment ,then went back…[Read more]

Hi Keith
If one thing My Friend you are a fighter keep it going Keith and as for the Dr at your hospital not being contactable ?? well I must be very fortunate as I can get hold of my Dr at hospital and if he is busy he phoned me back.
Stay strong Keith and hope you have a better time with it as I know you deserve it.

Fingers crossed Tom…[Read more]

Hi Lorry

Well let me tell you I was told I had "Chemo Brain" after my SCT ?? asked the Q's when i had your problem :-/ and was told Chemo Brain :-0 now I had my SCT in December 2009 am now drug free and in remission or platued whatever??: Age 57 (born 1955) I was told it will recover ?? am still waiting Lol 😛 :-S
Hope your soon…[Read more]

Hi Lorry

You do not say how old you are!!!

Slim has a chemo head,it has taken him along time to get back doing crosswords,which he use to be very good at,I did speak to a trial nurse,who said in a polite way he may never get back to the person he was,one year on I would agree.

No one would pick up on it as it is just the odd thing for…[Read more]

Hi Marina
Sorry you had to join after your Husband diagnosis with MM you have come to the correct place.

I am sorry you two have had a bit of a rough time with it of late and sorry I cant help you this time but am sure some one will pop along and give you the Good advice you need.

Tom Onwards and upwards x

Hey Rock and Roll Hey Rock and Roll 😀

Hey Vicki and Colin

A Well Done a very Well Done, you dont need me to tell you how good it feels now do you 😀

Now I will have a Drink of beer for you both tonight, Great news well done you two.

From one Onwards and upwards to another Onwards and Upwards xxxx
Am well chuffed 🙂 x

Hi Keith

Just picked up on your posting,if it is any help I know the can get platelets which are more comparable with you,plus injections that help,but I do no know what they are!!!!

You can always tell when the news is not good the nurses keep looking at there shoes just in case there not shiny enough,and doctors avoid the eye…[Read more]

Vicky and Colin

This is we're you say to your self yes it was worth it,you just have to wait until his hair comes back curly.Eve

Hi Nicki

So sorry to hear the news,I suppose everyone waits for it all to come back,I have tried to define my f
Feelings from the very start,there is th Myeloma to get it under control,then the feeling of being in a waiting period kicks in,health wise my general health took a battering as Slims got better,we both feel the myeloma will catch…[Read more]

Dear Vicki and Colin what FANTASTIC news. Well done you two. 🙂 It is so great to hear news like this as Frank and Ann's husband Pete are going through it – Pete on Friday and Frank next week. You have really given me a boost. I can just imagine the excitement in your house 😀 long long long long ,ay it continue

My very best wishes and…[Read more]

Dear Vcki and Colin

Celebrations all the way wonderful news long may it last;-)
Love Jo

Hi Ann
Thanks for your post. Co ordinator said they will probably bring him in Monday or Tuesday. Is it general anaesthetic or local? I thought Frank said it was general although co ordinator said he could go home about 2.00pm Ann how long Re they on the chemo drip is it days? I hope to see the co ordinator tomorrow – so will have lots of…[Read more]

Much love, my thoughts are with you at this very difficult time. xx

Hi guys,

Thanks so much for your kind words. So sorry Ozzy, Wendy and Trish to hear about the relapses, it's gutting isn't it, at the time no one told us how long Sam might have before he relapsed but I just thought he might have had longer, given his age (he is 38 now).

Trish I am glad that your mental health is ok now and that you had the…[Read more]

Dear Sue,

It's strange, I came on Site to send a message to you, as I was thinking of you and Michael this afternoon, as I was enjoying the sun and a bonus day out. I felt sad that you and Michael wouldn't be enjoying it. I didn't realise quite how grim things were, although I knew they would be pretty bad. I do feel for the really tough…[Read more]

Hi Sandie,

Glad others have put you right about the infusion being every four weeks, not four times a week!! I find it much better than the time contstraints with the tablets.

When I have a Consultant's appointment they always arrange the two things together. Mind you, if yor Mum is reliant on ambulances for transport, as I am, she may…[Read more]

Hey Eve

Sorry to hear your under the wearer. Hope you get it sorted soon. Eve on your iPad you can go to the apple store and download "words with friends" there is no charge and at the moment I have about 6 games on the go – America- Australia and my son and grand daughters in Kent

Hope Slim is doing well and hope you feel better…[Read more]

Hi Dai

When they were discussing the serious weaknesses of the NHS recently, I thought we had some stories we could tell them where little things would have meant such a lot! I also thought of some of the experiences you have had. How do we get things to improve? If the motor industry can get its cars under construction through a Plant with…[Read more]

Thank you all for your good wishes frank has not said much but I'm really feeling scared now that it is on us. Our son and his family where supposed to move into their new house next week but they have put it off to keep me company at night. Tried to tell them I will be fine but they are adamant.

Thanks again and I will keep you up to date and…[Read more]