jmsmyth replied to the topic So Alone 2 in the forum End of Life and Grief 11 years, 9 months ago
Dear Sue
My heart goes out to you and your family at this terrible time. I hope those close to you will give you the strength that you need. The love that you have for Michael has been shown in your posts and I also say yes you would do it again in a heart beat. My prayers are with you all and Sue I hope that you continue to have the strength…[Read more]
mhnevill replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi Jean
So glad that Frank has got his date. I send him my very best wishes. If he has an ipad I am sure he will find it very useful for passing the time.
I know, from reading the accounts from others, that Frank has a tough time ahead, but I pray it will lead to a very long remission.
Keep strong. Love.
Mavis x
tom replied to the topic So Alone 2 in the forum End of Life and Grief 11 years, 9 months ago
Dear Sue
How I feel for you all at this difficult time, I send you all a Cyber hug and i hope that helps, its no good me saying you must rest as you need to keep your strenth up as am sure you cant sleep.
Will you do it again I say yes as though we have not met I know you are a very strong lady, stay strong throu out this difficult…[Read more]
BADGER replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hello Jean and Frank
the long wait over at last will keep in touch thinking about you all the time GOOD LUCK:-)
lOVE jo x
eve replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi Jean
All good news,it,s amazing the way time fly,s,will you have far to travel??.
I would take things in as needed if the room is small,found Slim would drink more out of his own mug.
Sorry have not Ben playing scrabble with you,using I pad as computer. Needs new battery,also have a frozen shoulder plus back problems so waiting on MRI…[Read more]
meganjane replied to the topic First time for everything… in the forum Treatment 11 years, 9 months ago
Hi Dai,
Phil has often thought about leaving due to the excessive waiting time, especially as they seem to have chosen the most uncomfortable chairs possible for the reception area – bearing in mind most of the patients waiting there have bone damage you would think the chairs would be selected with more care! 🙂 We often find that waiting for…[Read more]
eve replied to the topic So Alone 2 in the forum End of Life and Grief 11 years, 9 months ago
Hi Sue
My heart goes out to you,it must be hard on all the family Michael must be a very strong man,when this is all over you will look back and be glad Michael was at home,it must be the hardest thing you have ever done,try to rest .
I will be thinking about you and hoping,that Michael is at peace and you find your way through this…[Read more]
meganjane replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Dear Jean and Frank,
HURRAH 🙂 🙂 🙂
I am so glad you finally have the go ahead. If you have any questions please do ask. I know you followed Phil's SCT Journey while I posted but I know every hospital is different so everything I wrote may not apply. The key thing I can think of right now is to have Frank chew ice chips before,…[Read more]
jmsmyth started the topic Got call at las. in the forum Treatment 11 years, 9 months ago
Hi all
Frank got the long awaited call and goes in on Friday for Hickman. Hopes for transplant next week. Will troll site for info and any tips and info from you will be gratefully received. Have been told that you can bring in own duvet and pillow if new. Anyone done this 🙂
Love Jean x
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 11 years, 9 months ago
Morning Peter
Yep Early Days and you are doing good, Moth will soon get better as will your will to eat, My young Bride (Elaine gave me mine food on a small plate so as not to overface me so to speak (it worked am now back to being fat ha ha)
All the Best Peter now am off to work 😎
mhnevill replied to the topic Article and stuff!! in the forum General 11 years, 9 months ago
Hi Chell
The publicity must be good. Will look out for your post re when magazine is being published. Congratulations.
All best wishes to you both.
Mavis
mhnevill replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 9 months ago
Hi Sandie
Hope my answers can help you! I was diagnosed in 2010, as I said, following a painful colapse and the discovery of a tumour. I was started on bisophonates straight away – it was called Bonefos. I didn't get any sickness from it although I found the timing of taking it a bind! About 18 mths ago they put me on a dour weekly infusion…[Read more]
mhnevill replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki
I also send my comiserations that Sam has relapsed and much sooner than you would have hoped. What a good job there are now other treatments on offer. Do hope Velcade works well for him.
So sorry you are having your own health issues when you are needing to be strong. Like Tom says, I hope you are getting support.
All best…[Read more]
tom replied to the topic Melphalan in the forum Treatment 11 years, 9 months ago
Hi Gina
Well I dont think you are getting what you and os your Mum Deserve?, its shocking to hear you only have such a short time with the Consultant, Now i am one of those that say "If the Dr Smiles am Happy" but I do know as and when I need to know anything nothing is too much bother from him or his team, am sure i am not the only one that has…[Read more]
tom replied to the topic Article and stuff!! in the forum General 11 years, 9 months ago
Hi Chell
Well done just been and had a look at your "New" Facebook Page, now am going over to add you on my Twitter 🙂
Love Tom Onwards and upwards xxx
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Babs
Thanks and Yes I hope it gives strenth to others that have and are going through the same.
Stay well
Love tom Onwards and Upwards xx
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 9 months ago
Hi Sandie
Ha ha I know what you mean no exercise and too many Chocs 😀 I am a Devil for Nuts/crisps and sausage rolls lol, and i dont do Pilates, But I have Charlie our Yorkie to walk three four times a day 😎
Hope your both doing well.
Love Tom Onwards and Upwards xx
tom replied to the topic More Positive News. in the forum Treatment 11 years, 9 months ago
Hi Babs
Great News Girl, nest visit to Kings 2014 that is great news 😀
Keep up the Great work am as pleased as punch for you Both.
I have a Bus/Train pass but its only for me 🙁 the young bride (Elaine) has to pay lol.
Enjoy your Holls and stay well
Love Tom Onwards and upwrds xx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki and Sam
So sorry to hear about your breakdown, I do hope your getting some help with it? and that also means trying to get help for both of you its a hard slog going through it all and being a Carer (hate that word??) its harder than being the patient I have been both (now the MM'er)
Its rough that Sam has relapsed but I hear…[Read more]
meganjane replied to the topic More Positive News. in the forum Treatment 11 years, 9 months ago
Hi Babs,
Wonderful news about your results and your holiday plans.:-) It is very inspiring to read about everyone's international travel. Phil is now 2 months post his stem cell transplant and he has been home from the hospital since January 9th. We aren't quite up to International travel yet but today we booked a week away at the end of…[Read more]