Hi Chris,

I will certainly post about the kyphoplasty once things move along. Phil has finally managed to get his consultant at Bart's to write a referral to a neurosurgeon for him so depending on how long the waiting list is Phil should hopefully hear something in the next few months. Phil has been asking about kyphoplasty since June/July…[Read more]

Hi Andy

Well I had them twice 🙁 once as a child then next when i was late 30's went to Dr and he was looking at my body rash and I looked over my shoulder and said My wife says its Chicken Pox?? and he replied you should take more notice of your wife because she is correct :-0 so six weeks of work 🙁

Tom Onwards and Upwards 😎

dia
I agree about IV anti'bs I certainly had an upset stomach when in Hospital a couple of weeks ago when on a high dose I thought I got a DOSE OF c diff oh no! but it was the meds so I think you are probably right, on my chemo at the moment i am on half doses of everything except Velcade and its working this is because of the renal failure so…[Read more]

Hey Nice Post, I like most just take the drugs that am given ask Q's never felt the need ? But Dai you are correct too many drugs taken for a "Just In Case" :-/

It might be better to wait for the "Just In Case" symptoms to turn up???
I will ask if and when iback on the Tabs

Tom Onwards and Upwards

Hi Helen

Well I hope the "No treatment Change" last for a bit, Have a good trip To Barcalona.

Love tom Onwards and Upwards xxx

Hi Ali I have PM'd you. Thanks
Love jean xx

Vikki that information is very helpful. I didn't know that about the cleansing. Thanks. Hope Colin goes from strength to strength

Love jean x

Hi Carryanne

My hubby finished SCT in December. There was one month when both his feet and legs swoll up. When he phoned the unit they told him to go up. The doctor gIve him agood examination and sent him home. Eve told us to raise his feet and that seemed to do the trick. Hope things improve

Love Jeax

Thanks for that Megan and good news for Phil. It's always on my mind and just wish we could get it started. We go on Thursday week to hospital and this time I am going to ask to see consultant – even if we have tow wait, I have such a sting feeling that she is deliberately avoiding us – hope I'm wrong but will see. I also emailed Ellen so waiting…[Read more]

Hello Carryanne
I am sure you will be ok on CDT i think it is probably the DEX that makes your feet puff up have a word with your DOC when you go it makes my ankles swell a bit I also have pramidrinate once a month which seems to be ok no real side effects
good luck with it all:-)
Love Jo x

Hi Jean and Frank,

I just thought I would add a bit more encouragement for Frank. Phil and I met with the Prof today at clinic and he is very pleased with Phil's progress. Phil has now reached the VGPR stage which stands for very good partial response, this means there has been a 90% drop in the pp levels since diagnosis, Phil's pp level is…[Read more]

Hi carryanne

Your welcome and yes we do have Grandkids 🙂 6 four boys and two girls and we are hands on with them all.

How did i cope?? well I have to admite I have never done much differant with the Kids apart from when I was proper ill and i couldn't do anything at all and it was all left to my Young Bride (Elaine)

You will find it…[Read more]

Thank you all for your replies. Ali your message cut off and didn't get what your mums levels were. I would be interested in kmowing what they were. Hope you mum is doing well
Love Jean x

Hello Trish

I am on my first relapse only had CDT before now on Velcade seems to be doing ok not many side effects it has a great reputation as a drug so i hope Peter does really well on it
Love Jo x

Hi Keith

Well you have been here before M8 and you kicked its Butt am sure you will do it again 😀

I hope you get home todat as that will mean everything has settled its good to hear CDT is still working for you.

Fingers Crossed you are home today

Tom Onwards and Upwards x

Hi Sandie

Your Welcome, as for Exercise, non impact/load bearing is what you should do cycling,swimming and getting a good dog and having a long walk 😀

Getting Old aint good but am sure its better than the alternative :-0
Am pleased your Mum is one that doesn't let anything get her down as that will stand her in good stead for the…[Read more]

your welcome Emma am sure the Mac Nurse will be a great help.
As yet I haven't seen one but thats all Good isn't it 😎

Keep well and love to both you and your Mum xx

Tom Onwards and Upwards xx

Hi Dai am pleased you were buzzing (you know you will regret it lol)
And Snapping at Janet NEVER? that was the Dex that snapped not you as both you and Janet know all too well.
Have a great sleep and no snoring please 😎

Tom Onwards and upwards x

Not a Problem Dai, our Grandkids have all got something or another that gets "Face Time" so when we want to contact any of them we use there Ipoddy/paddie thing.

Tom Onwards and upwards.8-)

Hi Sandie

Well Good Luck to you and your Mum for the upcomming treatment and i hope your Mum sails through it with little or no side effects.

Yes i was told also to get straight up to Cancer ward if I was unwell, so your Mum is being Looked after 😀

As for you and your Pain Sandie well that might just be arthritis ( i say that as if its…[Read more]