You and your Dad seem to be doing great Guns Daniel, am not sure if I could have done it the way your are doing it at such a young age, well done young Man, and give your dad my regards.

Stay well and strong

Tom "Onwards and Upwards" x

Hey Carryanne

Pull up a chair and get those Cosesy Slippers on as its great in here 😀
Am sorry you had to come on in but you will (like I did) find it a great help with your treatment and Moods as you travel the road to remission.

Some dont get any side effects to speak of and just sail through it 😀 , take one day at a time and rest…[Read more]

Congratulations To the Crowther Family 😀 May I ask you to pass on Our Best Dai to you and yours.

Now aint this a great thread 😀 Any more pending births Due 😎

All you New Gramps amd Grams enjoy 😀

Tom Granddad of Six 😎

Hi Joe

It's very good of you to come on and let us know what you are doing. I remember you dads journey and its hard to believe that nearly a year has gone by.

From me thank you so much for what you are doing. Myeloma has to be put on the map and what you are doing will contribute greatly to that. I'm sure your dad will be with you all of…[Read more]

Hello dan,

What a time you are a all having, I do hope they get your dads back & legs sorted soon, I bet he's looking forward to seeing your sisters you too for that matter, anyway dan let me introduce myself my names liz and care for hubby kev he was diagnosed with MM aug: 2010 also with fractured sternum and ribs after treatment CDT went on…[Read more]

Hi Daniel,

I am so sorry to hear that your Dad is in hospital and having problems with his spine and legs. I don't know the answer to your question about radiotherapy and velcade but I assume the doctors would stop the velcade for a short time while your Dad had the radiotherapy if necessary. My husband Phil had one of his cycles of velcade…[Read more]

Hello Mavis
thanks for your thoughts I hope you are keeping well and still in remission
Love Jo x

Hello Carryanne

so sorry you have had to join I was diagnose jan 2009 and had CDT this gave me 3yrs 6mths remission I did not have a stem cell as my kidneys were badly damaged CDT was ok for me a few numb toes but no pain the only down side was from the DEX a bit hyper and not much sleep while taking it I was 61 and 1/2 when i diagnosed it was…[Read more]

Congratulations Dai and Janet

I'm sure you are both over the moon – I know the feeling. Best wishes to you both and the new parents 😀

Our wee man isn't feeding so they are force feeding (!!!) him at moment so will be in Hospital till its sorted

Take care
Love Jeanx

Hi John

I started on tablet bisphosphonates over two years ago and then went onto infusions of zometa. I have had no side effects from them. The only problem is, if you need invasive dental treatment, which I did, you have to have zometa knocked off for two month before and two months afterwards. This is to prevent getting the disease in…[Read more]

Dear Dai

Glad to hear a more hopeful report from you. Do hope things continue well so you can plan a break later in the year.

Dear Jo.

Sorry to hear you have had a spell in hospital. Do take care and keep knocking the beast back.

Love to you both.

Mavis x

Dear Wendy and Ozzy

So sorry to hear that you have both relapsed. I can imagine how gut wrenching it must be. I do hope that the next lot of chemo works for both of you. And, Wendy, I do hope you get to India.

Just spent the money we would have used to go on a holiday last year, if we could have gone, on a new computer for my husband.…[Read more]

Hi Babs
Thats a fair distance to travel when you feel a we bit weary 🙁

Yes this site is a Godsend for us all MM'ers and Those great people that look after us when we aint too good 😀
Hope your doing well on your treatment

Love Tom "Onwards and Upwards" xx

Hi Jo Jo

Thanks. He is so lovely but his nails are so long that he has scratched the face off himself ? they have put mitts on him,, they hope to get home tomorrow but as Angela is diabetic they may keep her in a bit longer. She won't like that as she wants home so badly

Hope you are well and truly over you chest I fiction

Keep…[Read more]

Congratulations to you too Pat
we only have one grandson but he is the love of our lifes just as i am sure your little granddaughter will be for you:-) hope you are getting on well with the VCD
LovE jO X

Hello Jean and Frank

what wonderful news a little boy something to celebrate at last
Much Love jo jo 🙂 >:-) 😉

hello John
i have regular infusions of pamidronate once a month no real side effects a bit achey at first but after that no bother
I hope she does well this medicine may help keep MM at bay for a bit
Regards Jo

This sounds like good news Dia

keep it up this might be the one to give you a bit of drug free remission
Had three days in hospital this week Geoff took me into A&E 5 o'colck in the morning with a temp of 39 3 days on IV anti B's bad chest infection started with a cold and got worse a lot better now I usually get a winter cold but was probably…[Read more]

hi Stevo
CDT was ok for me had a bit of PN in my feet two outer toes on each foot went very numb but not painful so i could live with that and at night it gave me a good four hours sleep even on the DEX time, doesn't suit everyone but it did me
Keep well;-)
Love Jo x

Hi John

My hubby had Zometa for 2 years back in 2006. He then started it again in June and on both occasions he has had no side effects at all. Hope all goes well for your wife

Love Jean