Hi John

I had four weely infusions of Zometa for just over two years, at the start I got Flue symptoms nothing too bad, its just that I was pleased when they finnished as my veins were getting harder to use :-S
But that also worked for me.
Good Luck

Tom Onwards and Upwards

Hi Megan And Phil

When I had my SCT and went back for tests at Castle Hill in Hull I was booked in and put in a side room then a Nurse used to come in and take my Bloods/Temp then take me through to another waiting room and put me in another side room and then the Dr came for me took me into his room and told me all bout my results, On the…[Read more]

Hi Pat and Tom

Thanks for your good wishes. Just back from hospital and they had to prise him out of my arms. They have called him Benjamin Francis (Francis after Frank). Too adorable

Pat Beatrix is a wee poppet – she is so tiny, dear love her. I'm sure you can't wait to meet her. This 'face time' is brilliant. I use it all the time to see…[Read more]

[u]Day ????[/u] – I stopped counting when Phil got home 😀

Thank you all for your kind and helpful comments. I can confirm that Phil has been taking it easy and not rushing and trying to do too much too quickly. I have had poor Phil quarantined in the house since he arrived home but luckily he has not felt up to venturing out. This allowed…[Read more]

Dear Sal

Yes I recall your posting about Jim, and am so sorry he lost his Short fight with this dreaded Disease.

I send my condolences to you and your Dad's (Jim) Familay and Friends.
Keep in touch if yopu wish

Love Tom xxx

Hi Jean

Wow he is a Little Cracker, one Handsome little Lad, I bet you are all well chuffed, now go out and enjoy the shopping we dont want to see him in a frock now do we.

Love to all 😀

ps can you just give him a wee slap as the devil has more hair than I lol 😎

Pat Baby Beatrix is a cutie, so so Tiny aww Now am gonna have to…[Read more]

Jaqui

I hope all goes well on Friday and I am sending you Cyber Hugs to help you get through this difficult time.

Love and Hugs Tom xxxx

Hi Dai

Hey am pleased your results are getting better My Friend 😀 and its a shame about having to wait for more results as i know its a worry having the wait.

So as you say Carry On 😎

Love to both you and Janet

Tom Onwards and Upwards x

Hi Sue

I am glad to hear you are, at last, getting some support with Michael's care and like Tom, hope you get to visit the Hospice soon. However, now you have got more suppport at home, and you are having a stair lift put in, you may feel happier with Michael remaining at home.

Sorry you still haven't got the answers you need to put your…[Read more]

Dear Sal

I am so sorry to hear of your loss. It is so sad that your Dad lost his battle so soon after starting treatment. I do hope you can take some comfort from the fact that the battle is now over and he is "at peace". I am sure you and your family have lots of happy memories, of times together, to help you at this very difficult and sad…[Read more]

Dear Sal

So sorry that your dad has lost his battle with this horrible illness. I know it's difficult and maybe hard to hear but it is a blessing that as you say it was "short and sweet". To know that your dear dad is not suffering must be of some comfort to you. My thoughts and prayers are with you and your family

Love jean x

Hello Maureen

I am so glad to read that Ian is progressing and glad that he may walk again. Everything crossed for him. When Frank was on CTD they had to reduce the Dex as he had bad side effects. Great to hear that Ian is handling it well. My very best wishes to you both

Love Jean x

Hi Sue and Michael

Am sory the snow didn't allow you to get to the Hospice and I hope you get soon now the weather has got better.
Am pleased you found help with the District Nurse and Mac Nurse,I hope the stair lift Lifts Michael's spirits as am sure it would be great to get into another room.

Its a Bloomin Shame you are left at the…[Read more]

Well done Stevo

lets hope you have a break after eight or one over the 8! i have had a temporary break from velcade been in hospital with a chest infection temp of 39 and all that, after a few days on IV anti b,s nearly back to normal as for MM Murky Mud Blood disorder from the depths of hell come to mind:-
Keep well love Jo x

hi Phil

sorry you have had a bug 2 years well done keep it up we need good news
Love Jo 🙂

Hi Phil,

Sorry to hear about the winter bug:-( but delighted to hear you are celebrating your 2nd anniversary. 🙂

Megan

Hi Vanessa

Once you have had SCT you are again randomised for maintenance or not. My husband got no treatment,at first I felt he had lost out,but it does give you more time away from the hospitals.

He now goes for Zometa every 2 months boods and urint taken for trials plus we try to get appointment with consultant the same week,so that…[Read more]

Hi Steve

Good luck on cycle 8 and I hope the side effects are low.
As for trying to remember what it's like without the side effects well trust me it won't be long till you can't remember side effects.
Stay Well

Tom Onwards and Upwards

Hi Phil
Sorry you have The Bug, I hope it's soon cleared, and may I say Happy 2nd Anniversary, and hope you have a healthy run through to your 3rd.

Tom Onwards and Upwards