Hi Keith,

I too am keeping fingers crossed hope CDT works well for you.

Take care love liz & kev xx

Hi Tom, vicki &colin,

I was just thinking the same Gas & Air! I didn't go in with kev for his BMB but he only had local, it must be a Northern thing? 🙂 LOL! Hope Colin's ok now after his tumble? I'm like a mother hen when kevs out and about and the last few weeks he's not done much but it is a worry with the bone damage and how fragile…[Read more]

Hi Vicki and Colin

Well snow or no snow am sure you prefer the Countryside to town 😀
As for the BMB "Gas and Air" wow I just get a Local Injection then they dig in Lol, and all I want to have is a few large Vodka so that when the Local wears off am in a drunken state lol, am sure it will be Ok but I do feel for you both as the wait is near…[Read more]

Hi Steve
I am doing great thanks, hope you are same.

Now a new name lol am told I can't cuss lol, and yes the spammers need casterating and am up for that job.

Stay well Steve and if a name crops into my head al post it lol

Tom Onwards and Upwards

Hi Vanessa

Sorry you have Had to join us.

I can only tell you the chemo keeps on working after the cycle is finished.

My husband finished chemo a year ago around Christmas and he had gone down to 6 he did not have his SCT until May I between all this he had another blood test taken and it was 2. I was worried at the time they were taking…[Read more]

Hi Rob,

I can't help with the infusion pump as Phil never had anything like that but we completely understand the Borg side of things. 😀 When Phil was in for his stem cell transplant we kept telling his stem cells to "assimilate" and we pictured them as nano probes running around inside his body!

Megan

Hi Lisa
Your welcome, and yes it is good to be here and get some one who is going or gone through the same, getting info before you need it gives us that heads up.

You both keep well.

Love Tom Onwards and Upwards xx

Hi Grayham

Yes it is very scary,I think we all felt like that even careers,specially when they tell you there is no cure.we have all been there got over the shock asked the same questions ,my husband was like you,never took a pill or had a headache,well he has made up for it in the last 2years,our home has seemed like a chemist at times.

It…[Read more]

Hi Graham

A warm welcome to the Site, sit down make yourself comfy and ask away.

Me ? am 57 had CDT then stem cell transplant in 2009 now drug free and doing great.

Keep well Graham

Tom Onwards and Upwards
Al av a look at your photos too 🙂

Hi Lisa And Mick

Sorry you got an Infection Mick, its part of the side effects am afraid, I take it you taking in plenty of fluids?

Hope your soon better and Back Home

Tom Onwards and upwards x

Hi Sarah,

I am so glad to hear Henry has got rid of the nasty chest infections. I know it is early days but so far Phil has managed to stay infection free but I am a bit trigger happy with the thermometer still, I suppose it will take time to stop worrying constantly!:-)

Phil originally tried a 10mg dose of amitriptyline daily for the…[Read more]

Hi Grayham

Welcome from me to. You will get great support here. My husband was diagnosed with smouldering myeloma in 2006 and only started treatment in June. Hew was on 6 months of CDT. They had to reduce the Dex as he didn't tolerate it very well. He had stem cell harvest in beginning December and they got 7 .6 million first time. He is…[Read more]

Lisa,

So sorry to hear that Mick has an infection, hopefully he will be back home with you on Tuesday. I know when my husband Phil was admitted to hospital in the summer with pneumonia I was very worried but the hospital soon got his temperature under control. I hope Mick feels better soon.

Megan

Hi Grayham,

Welcome to the forum, you will find lots of very helpful people here and although things may be slightly different in Australia you will find from reading the posts here that even within the UK treatment varies from hospital to hospital.

My husband Phil was diagnosed with MM in May 2012 at the age of 43. Phil participated in a…[Read more]

Hi Tom and Helen

I have always thought that soft tissue myeloma is very very rare ,there have been a few people on here with it usually discovered because of another reason,not looking for Myeloma.
Tom are you saying you have no Myeloma showing in bloods or urine?????
So are you looking for answers????
A Pet scan will show any Myeloma in…[Read more]

Hi Vikki and Colin
A
Thank you for your thoughts for us. We saw registrar yesterday (we both think consultant is avoiding us). Bloods were ok PPs still at 2 but still no bed. Wouldn't have been able to admit him any way as he has a terrible cold. He keeps saying "IF I have SCT". As I said to John he has had too much time to think about it. I…[Read more]

Thank you helen for doing a better job of explaining it than me,although I understand why Tom is thinking along these lines,I just felt it would give the wrong impression to any one who read it.

I would like to say,Slim has a lot of damage,tumour plus lesions on shoulders and skull plus all spine damaged but no compression ,plus Pnuemonia…[Read more]

Hi John
Your welcome, Well SCT and back to work so soon and living on your own WoW now to be honest that must be blooomin hard work, Gosh I dont know how I/we managed without the young bride and our Family and Friends to look after me.

To be fair John I dont think of it much I am Lucky enough to just have my CDT then SCT and now drug free, am…[Read more]

Hey Keith

I feel for you M8, it must be hard, it wont be long before you think all the hospital visits are Normal, Stick with it Keith am sure they will soon have you sorted out, then you can have that long awaited Break.

Good Luck Keith am crossing everything for you

Tom "Onwards and upwards"

Hi Keith

You must be so disappointed ,but they are prepared to still top you up with bloods and platelets,so that must count for something,When do you see the top man again???
They are trying to give you the best chance of this working,if they are prepared to do it,you have to go with the flow.
Anyway who wants to go on holiday with all this…[Read more]