Hi |Tom
The school of thoughts with consultants is you should not,look at staging as the one and only aspect of myeloma ,as far as I know,staging tells you not only about bloods and urine,but the extent it has damaged the bones.
Everyone is aware the early cancer is caught the better the chance of curing it,but Myeloma is not curable.

Once…[Read more]

Hi Tom,

Good luck with the PAD treatment, I hope the side effects continue to be minimal. My husband Phil had no real side effects except for neuropathy in the feet, be sure to tell your consultant if the neuropathy gets any worse so they can look at adjusting the dose. Phil is recovering well from his SCT but the neuropathy is still an…[Read more]

Hi Liz and Kev

Pleased the infection is sorted and that the R/T is helping the ribs, I have my fingers crossed for a good three weeks.

Vicky did you two get to the BMB through the snow? I hope it was pan free as the are a bugger to be fair.

Love all round

Tom Onwards and Upwards xxx

Hi John

A warm welcome to the site.

And WoW back at work so soon?? am surprised the Dr let you go back???
But hey Ho we all do it in differant ways, Just stay well and stay strong

Tom Onwards and upwards

Hi Tom

Well Good Luck with this lot M8 and am sure you can and will crack it.
lets hope side effects are kind to you.
Tom Onwards and upwards

Hi all

Well I am sorry you two have relapsed 🙁
I do hope the next move gives you both remision and little side effects.
Stay strong and well.

Love to you Both
Tom Onwards and Upwards x

23-01-2013 at 11:35 AM

Iam not sure if I am posting this message in the right place, but just wanted to finalise Glenn's postings. I know that he has not been on here for some time to post messages but has certainly kept up to date with information and blogs. Sadly Glenns fight ended on Monday 21/1 at 5.15 p.m. We had been told that he had an…[Read more]

Hi Jenny

Yes its a lonely road this MM lark,do you have a support group near you?? as am sure that will get you out and about and chat to other MM'ers ? failing that start up your own 😀

I used to go and pick mine (meds) up at the hospital and its correct you dont have time to Chat to folk, was a lot better when I went for my 4 weekly…[Read more]

Yep I was same Ozzy, and am told it wasn't Sexy lol.

Regards Tom

Dear Jacqui

I very rarely post on the site, but I am so sorry to hear that you have lost your beloved Glenn. I can only imagine how devastated you must be.

Lorna

Dear Sue

What a bad time you have had. Like others I can't understand why you haven't had the help you needed before now. Releived that some help is now coming. If Michael doesn't go into the Hospice the Social Services should get a Care Plan in place for you even if you have to pay for some of it. That's why you should be getting DLA.…[Read more]

Hi Ozzy

Yes, I too had a bit of a husky voice while on CDT. Glad to say it is now back to normal. My eyes were also a bit cloudy sometimes. Also gone now.

Best wishes.

Mavis

Hi susan

I have got a bit confused with this post. My experience is that my mobility problems are because of bone problems and not because of drugs. I have had soreness with my toes and bottom of my legs. I have found it difficult to find comfortable shoes – in fact I haven't!

All best wishes.

Mavis x

Hi Lesley,

Just wanted to say welcome from me. I went down the traditional route of CDT which worked well for me, but I am full of admiration for those of you who go on Trials. I do send you my best wishes and hope your experience is one of the really good ones!

Love Mavis

Hi Wendy and Ozzy

Sorry to hear you have both relasped there is not much one can say you must both be devastated,I can tell you Velcade is a good drug and seems to be having a good effect on the Myeloma,Slim got on better with the Velcade than CDT,he had 6 cycles straight after CDT,because they found the myeloma had gone up to 80% in bone…[Read more]

Hi Ozzy

Yes franks voice was very hoarse when he was on CDT and always worse while on Dex. Hope it eases up soon
Best wishes
Jean x

Hi John

Boy that was great about the SCT and back at work ???? well done you. Frank smouldered for 6 years and then started CDT in June. He doesn't come on the forum and there as his attitude is that his consultant will tell him anything he needs to know. He's not like me I need to know everything that I can about this awful illness. We are…[Read more]

Hi vicki & Colin,

Kevs infection as finally gone, had a couple of blasts of radiotherapy last week on his ribs so far so good! And restarted on his rev/dex yesterday cycle 3 so fingers crossed for a trouble free three weeks.

Hope Colin's keeping well and yourself too!

Take care liz & kev xx

Hi John and welcome to the club that I'm sure you don't want to be in. You are in the right place for advice and support from a great bunch of knowledgeable people. What part of the country are you in? Have you had SCT or waiting? My hubby is waiting for a date for SCT.

Best wishes to you
Love Jean

Dear Jaqui

I am so very sorry to read of Glenn's passing. Nothing that I can say will ease your pain. My deepest sympathy to you and The family. I hope the love and support of family and friends helps you through this terrible time

Love Jean x