[kwallermyersParticipant]

Sorry that should be Celgene. Autocorrect!

[kwallermyersParticipant]

Just for info, I obtained Natco Lenalodomide from Bonhoa pharmacy, with no prescription. About £120 including shipping. Arrived in 4 days.
There is a Netherlands buying group for drugs that my consultant told me about, (can’t remember the name), they couldn’t supply Lenalodomide when last I looked but could supply Daratumumab and it seemed vastly more reasonable than Celgene’s prices.
In a previous post I said Celgene’s made $12 billion from Lenalodomide, I was wrong, it is only $4 billion! How do they make ends meet? 😁

[kwallermyersParticipant]

Natco, in India, apparently produce Lenalodomide for developing countries under licence from Celgene and have an agreement to export it to the US in 2021 I believe.

[kwallermyersParticipant]

Hi
I had 4 cycles of VRD for which we had a copayment arrangement for the Lenalidomide. They charged us VAT so 21 capsules for one cycle cost £5172.57! Fortunately I had critical illness insurance. Celgene make about $12 billion a year from Lenalidomide. I then had autologous stem cell transplant about two months later. I am looking into maintenance with Lenalidomide as both US and European studies have shown significant extension of remission times, in fact the US study showed a doubling of remission period. I have ordered Lenalidomide made by Natco in India. It is fairly simple to order online. 30 capsules of 10mg costs 121 euros including shipping. Natco have a licence from Celgene to produce Lenalidomide for the developing world and Celgene have recently agreed that Natco can export their Lenalidomide to the US from 2022 onwards, one year before the US patent expires. The European patent, I believe, expires in 2019 but pharmaceutical companies have a few tricks up their sleeves to extend patents so we shall see. My consultant has a number of patients who get Lenalidomide from India and he said it seems to be quite genuine. If anyone is interested look up Bonhoa Pharmacy.

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