[laceyParticipant]

Hello cygnet, and thank you for responding!

I hadn’t thought about the insurance angle… very interesting and, in fact, smart. When we return to the Haem I will ask about that, just to make sure we are all on the same page.

I’m sorry you are going through this rabbit-warren of a disease. Have you started treatments? Are you still smoldering?

I really appreciate your kindness!

L

[laceyParticipant]

UPDATE about results… just received a copy of letter from haem to gp about the first visit. In it he gives this description:

IgG kappa monoclonal paraprotein 20g with abnormal serum free light chain ration, kappa 90, lambda 6, ratio 14.5 ;  protein: creatinine ratio 80.

Can anyone tell me the meaning of these? I believe he is in the MGUS category based on the results, but… ?

Thanks, in advance!

[laceyParticipant]

Thanks, Yvonne.

Yes, the uncertainty is scary. Then again, MGUS would be by far the best outcome, so, naturally, hoping to be uncertain for the duration. Flipping over into the smm category must have been (must be) quite frightening.  Hope you have good support as you go through this new form of uncertainty, Yvonne.

Strength!

lacey

[laceyParticipant]

Yvonne, i’m new here (as of, oh, say, 30 seconds ago) but still wanted to respond to your post.

My husband is in the diagnosis process. We are currently waiting for results of mri, skeletal scan, and a host of blood tests (his initial bloodwork showed 14 of the thing that when it hits 100 is bad… sorry i don’t remember the test or units… so much to take in at the first haematology appointment!). The haematologist was very equivocal — kinda dodging — when i asked him about smoldering.

So we are readying ourselves for any one of the three stages and reading as much as we can. One thing that i’ve read over and over is how even a MGUS diagnosis can cause extreme worry and anxiety. Seems like this is completely normal. I venture to guess that you are NOT being a “wuss”. In fact, you sound collected and willing to take things as they come.

Just wanted to say that. And to wish you luck with your future screenings.

All best,

lacey

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