bonapaceliz

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Viewing 9 posts - 1 through 9 (of 9 total)
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  • #104502

    li33i
    Participant

    Hi everyone. My dads about to start velcade treatment for plasmacytoma that was unresponsive to Stem cell transplant. He's also had the CDT therapy. I guess we are all just a bit nervous that it will work as dads tumour is growing again at such a rapid rate it's affecting his quality of life. The tumour is in his sinus and soft palette. Just wondering what sort of side effects he might experience and might it be similar to the thalidomide?
    Thanks x

    #98848

    li33i
    Participant

    Hi there…just read your post. My dad has just been admitted to Birmingham to have a stem cell transplant too. We are all anxious for a positive outcome. He too has been on CDT for several months but it failed to get rid of the cells, only stopping the growth for a short while. He has a plasmacytoma in his sinus which has not responded to radiotherapy or CDT, so this is the next option. His own bone marrow cells are being used, but other than that I don't know much about what will happen. What sort of cancer does your husband have? I know how you feel, my dad also worked for most of his illness so far and is so concerned about when he can go back! I wish you and your husband well with his treatment..here's hoping there's a long remission for them both 😉 xx

    #105575

    li33i
    Participant

    So..today's the day. My dad has just been admitted to hospital to start his transplant tomorrow. We all hope and pray it is a success, I'm so looking forward to him being free of cancer. I feel quite anxious as to how the treatment will affect him, but to be honest the last 2 weeks have been awful for him..the tumor has grown on his face to such an extent he can't close his mouth or eat proper foods. It's hard seeing him in such discomfort and not being able to help in some way. I think I need to stay busy in these days…

    #105574

    li33i
    Participant

    Thankyou for being honest – it's much appreciated 😉 hugs to you and wishing u getting stronger every day xx

    #105572

    li33i
    Participant

    Thankyou for talking about it..and sorry if its reminding you of difficult times…your'e one tough mama to go through all of that and still remain so positive, helping others along the way.
    Yes I can associate the angry bear thing with my dad lol, he can be sooo infuriating at times! He will not talk about or discuss his cancer – but prefers to be distracted..so we all have to be careful what we say..he's not the type to come on here and chat about it, nor would he be interested in finding out more about the illess, about what may have caused it or what the new up and coming treatments are – he prefers just to listen and trust his doctor. We are hoping he will be able to use skype in the hospital too, so he can take his computer, carry on working and keep himself occupied. Its a fair distance to the hospital where he's staying, but we still want to be able to visit him – although I am slightly worried about taking my 2 year old…are children allowed in the isolation ward? Like you say, we don't know how his body will react to these treatments, everyone is different – but so far I have to say, I proud to call him my dad..he's taken the burden of chemo, radiotherapy, various surgeries several times over, with such dignity and strength he really is an inspiration…and so are you by the way 😉
    xx

    #105570

    li33i
    Participant

    Thank you ..glad to hear you are in remission there is light at the end of the tunnel! My dad finishes chemo/thalidomide next wed, then we wait until the 13th Feb when he will have marrow cells taken. Then the 24th he goes in for the high dose chemo. How did you cope, Helen, with the treatment? I've read the leaflet on here about the process, and it sounds complicated..but effective! At least now I have some idea what it entails. What did you find helped or hindered your experience? Sorry for all the questions..wishing you well xx

    #105568

    li33i
    Participant

    Hi Helen
    Thanks for your reply..dads having his own cells taken out and stored while he has the intensive chemo in Birmingham hospital. He has to stay in for 4 weeks which will be hard for us all. It's taking me in particular a long time to accept what's happening to him, and seeing how he is changing..becoming am old man very quickly when he used to play football every week. I hope so much he will be able to get back his energy to play one day, it makes him so happy! 😉 in the meantime he's taken to shouting at the telly when man united plays lol. I have a 2 year old son who adores him and it's amazing how little people know instinctively how to cheer someone up 😉 I will look on the site for more info on the transplant, thank you. Have you had a plasmacytoma too? Liz x

    #105566

    li33i
    Participant

    Hi everyone,
    My dad in being treated for plasmacytoma in his sinus, which has spread to his lymph nodes. He has tried radiotherapy, chemotherapy, thalidomide and surgery but it's still there..we are now preparing for him to have a bone marrow transplant and I'm so scared of what it will mean for him. He's been so brave this past year, bearing the burden of so many treatments and surgeries only to have this to face in Feb.
    Does anyone else know about bone marrow trasnplants? Dads doctor has mentioned it's a very rare case.
    Guess I was just looking on here to find support and advice
    Thanks xx

    #84952

    li33i
    Participant

    Thankyou all so much for your replies – I'm so pleased to have found this site, I have found some information out about dads condition on here.
    Will keep you posted how its all going, and love to you all who I know must also be going thru difficult times. xx

Viewing 9 posts - 1 through 9 (of 9 total)