Hi everyone. My dads about to start velcade treatment for plasmacytoma that was unresponsive to Stem cell transplant. He's also had the CDT therapy. I guess we are all just a bit nervous that it will work as dads tumour is growing again at such a rapid rate it's affecting his quality of life. The tumour is in his sinus and soft palette. Just…[Read more]

Hi there…just read your post. My dad has just been admitted to Birmingham to have a stem cell transplant too. We are all anxious for a positive outcome. He too has been on CDT for several months but it failed to get rid of the cells, only stopping the growth for a short while. He has a plasmacytoma in his sinus which has not responded to…[Read more]

So..today's the day. My dad has just been admitted to hospital to start his transplant tomorrow. We all hope and pray it is a success, I'm so looking forward to him being free of cancer. I feel quite anxious as to how the treatment will affect him, but to be honest the last 2 weeks have been awful for him..the tumor has grown on his face to such…[Read more]

Thankyou for being honest – it's much appreciated 😉 hugs to you and wishing u getting stronger every day xx

Thankyou for talking about it..and sorry if its reminding you of difficult times…your'e one tough mama to go through all of that and still remain so positive, helping others along the way.
Yes I can associate the angry bear thing with my dad lol, he can be sooo infuriating at times! He will not talk about or discuss his cancer – but prefers to…[Read more]

Thank you ..glad to hear you are in remission there is light at the end of the tunnel! My dad finishes chemo/thalidomide next wed, then we wait until the 13th Feb when he will have marrow cells taken. Then the 24th he goes in for the high dose chemo. How did you cope, Helen, with the treatment? I've read the leaflet on here about the process, and…[Read more]

Hi Helen
Thanks for your reply..dads having his own cells taken out and stored while he has the intensive chemo in Birmingham hospital. He has to stay in for 4 weeks which will be hard for us all. It's taking me in particular a long time to accept what's happening to him, and seeing how he is changing..becoming am old man very quickly when he…[Read more]

Hi everyone,
My dad in being treated for plasmacytoma in his sinus, which has spread to his lymph nodes. He has tried radiotherapy, chemotherapy, thalidomide and surgery but it's still there..we are now preparing for him to have a bone marrow transplant and I'm so scared of what it will mean for him. He's been so brave this past year, bearing the…[Read more]

Thankyou all so much for your replies – I'm so pleased to have found this site, I have found some information out about dads condition on here.
Will keep you posted how its all going, and love to you all who I know must also be going thru difficult times. xx