debontheweb replied to the topic Just got a diagnosis in the forum Newcomers 12 years ago
Thank you everyone for your kind replies. Yesterday I was back for my app at UCL I ended up having a bone biopsy, chest X-ray (due to rib pain) getting info about treatment options and a load of tablets,
The tablets I need to start today are Dexamethazone 20 x 2mg/day for 4 days, Ranitadine and Allopurinol. I am worried they will make me feel…[Read more]
debontheweb started the topic Just got a diagnosis. in the forum Newcomers 12 years ago
Hello there
Sadly on Monday I received a diagnosis of Myeloma. Tomorrow I go back to the hospital to discuss treatment options and the next day it will be my 50th birthday. Somehow I don't feel like celebrating. I am trying to make sense of it all but the treatment sounds so scary and I feel so tired and mentally drained. I am in a good place…[Read more]
marija started the topic newly diagnosed. in the forum Under 50s 12 years, 1 month ago
Hi everyone,
I have only recently been diagnosed with myeloma after 6 months of various tests and visits to Gp's, Physio and Consultants. I am only just turned 50 and did not realise that this disease affects so many young people. As with most people I am trying to come to terms with this diagnosis and how it will affect my lifestyle. I am…[Read more]
marija started the topic newly diagnosed. in the forum Newcomers 12 years, 1 month ago
Hi everyone,
I have only recently been diagnosed with myeloma after 6 months of various tests and visits to Gp's, Physio and Consultants. I am only just turned 50 and did not realise that this disease affects so many young people. As with most people I am trying to come to terms with this diagnosis and how it will affect my lifestyle. I am…[Read more]
debontheweb replied to the topic Related Conditions. in the forum Related conditions 12 years, 4 months ago
Hello
I am 49 yrs old and I have smouldering myeloma. I feel like admitting that is like going to alcohol anonymous! I am under Prof Yong at UCL so I'm in good hands. At the last count my plasma levels reached 39. I have just had an MRI scan and go back to see Dr Yong again on the 30th. I am symptom free but my mental wellbeing is suffering.…[Read more]
