mariakennedy

  • marija replied to the topic newly diagnosed in the forum Newcomers 11 years, 1 month ago

    Sorry everyone if it looks like Ive replied several times but felt I had to reply to you all individually. As you can see Im very new to this site! Has made me smile today though

  • marija replied to the topic Sam has relapsed. in the forum General 11 years, 1 month ago

    Hi wendy
    I'm am scouting around on this site with interest. I recently had CTD and stem cell harvesting and am debating whether to go ahead with transplant yet or not. I was interested as to what you said about FLC. on diagnosis my lambda flc were only 64, now after CTD they are 237 with PP less than 2. I wondered whether CTD caused the increase…[Read more]

  • marija replied to the topic newly diagnosed in the forum Newcomers 11 years, 1 month ago

    Hi to you two

    Thank you for your reply and support. I apologise for not responding sooner but life has been a whirlwind since diagnosis. As an update I have had CTD and stem cells harvested and now deciding on whether to proceed with transplant yet or not. I do read this site on a regular basis and hope to give more input myself. It is…[Read more]

  • marija replied to the topic newly diagnosed in the forum Newcomers 11 years, 1 month ago

    Thank you very much for your reply and I would like to firstly apologise for my very slow response. Unfortunately since diagnosis everything has been a complete whirlwind. As an update I have managed CTD and stem cell harvesting and on course for a transplant but havent decided whether to have this yet or not. I hope you are well and hope to be…[Read more]

  • marija replied to the topic newly diagnosed in the forum Newcomers 11 years, 1 month ago

    Hi Jo

    thankyou for your reply and I apologise for my very slow response. As an update I have had CTD and stem cells harvested and am now inline for a transplant in which I am still considering whether now is the best time. Its certainly a journey I never would have envisaged for myself but I have managed so far and have realised that this will…[Read more]

  • marija replied to the topic newly diagnosed in the forum Newcomers 11 years, 1 month ago

    Hi there Andy

    Im sorry for such a delayed rsponse. Since being diagnosed life has been a whirlwind. Just an update for you, I have had CTD and stem cells harvested and currently in line for a transplant in which I am trying to decide whether the time is right at the moment. I shall keep in touch and read this site regularly. I hope you are…[Read more]

  • marija replied to the topic newly diagnosed in the forum Newcomers 11 years, 1 month ago

    Hi Tom
    sorry for such a late response. Life has been a complete whirlwind since diagnosis. Just to give you an update I have had CTD treatment and stem cell harvest and am due to have a transplant but havent decided as yet when I should have this. Thank you so much for your reply and support and I promise I will try to keep in touch.

    Maria

  • marija replied to the topic newly diagnosed in the forum Newcomers 11 years, 1 month ago

    Hi Ange

    sorry my reply is so late. Since diagnosis everything seems to have been a bit of a whirlwind. To date I have managed my CTD treatment, have had stem cells harvested and am trying to make a decision about transplant! I wondered how you are getting on? We seem to have a bit in common with having a 13 yr old, working in hospitals etc..…[Read more]

  • marija started the topic newly diagnosed. in the forum Under 50s 11 years, 5 months ago

    Hi everyone,
    I have only recently been diagnosed with myeloma after 6 months of various tests and visits to Gp's, Physio and Consultants. I am only just turned 50 and did not realise that this disease affects so many young people. As with most people I am trying to come to terms with this diagnosis and how it will affect my lifestyle. I am…[Read more]

  • marija started the topic newly diagnosed. in the forum Newcomers 11 years, 5 months ago

    Hi everyone,
    I have only recently been diagnosed with myeloma after 6 months of various tests and visits to Gp's, Physio and Consultants. I am only just turned 50 and did not realise that this disease affects so many young people. As with most people I am trying to come to terms with this diagnosis and how it will affect my lifestyle. I am…[Read more]