Dear Gaye
I have been thinking of you wondering how you are, i'm sorry you have been poorly and have come to this decision but I do understand your reasons why. As others have said I hope you are being well looked after and are comfortable.
I'd also like to thankyou for all the advice and support you have given all of us on here. You are a very…[Read more]

Dear Sarah,

I'm so sorry to read your sad news about Gordon. Sending lots of love and sincere condolonces to you and your family as I too shed a tear for you.
Take care and look after yourelf.

Love n hugs Lorraine xxx

Hi Keith,

Pleased to hear you're over the first hurdle and home, I hope the next stage is good to you and you're in and out quickly 😉
Take care of yourself and wishing you all the best.
love n hugs Lorraine xxx

Eve,

I agree with everything that you have said. Everyone on here has helped me so much over the last 3years and probably without really knowing it because I don't post that much. I always pop in to see what's going on with everyone and class you all as my friends 🙂

I agree with you too David, makes me realise how 'lucky' I am at…[Read more]

Hi Carol, Fantastic that your pp is zero!! Well done! I had Revlimid for 18 months after my SCT but I wasn't on the trial, I live in France. I was very tired and suffered side effects on the Revlimid but they did get easier and more manageable over time 🙂

Eve i'm so sorry your hubby is suffering so much and I really hope your trials nurse…[Read more]

Morning all,
I am 2yrs 1 month post transplant and have achy legs! It's mainly my left leg from the groin down to my knee, but my right leg does ache but not quite so much. It's very painful at times and I hobble about like an 83 yr old instead of 43…apologies to all 83yr olds out there 😉 With regards to energy levels, mine are alot better…[Read more]

Aww Gill so sorry to hear this, I hope they get it under control very quickly. I have everything crossed for a quick recovery for Stephen and hope
he's home tomorrow. Take care of yourself too Gill and keep us posted.

love n hugs Lorraine xxxx

Hi yes I saw it, what a brave young man he was. I was in floods of tears too, it was so moving. I missed the first part, what cancer was he actually diagnosed with? His girlfriend/wife was such an amazing young lady too, and all his family were so strong. It was a powerful documentary, Alex was an absolute inspiration bless him.
Lorraine xxx

Hi Debs, Jet & everyone

Sorry i've only just come back on and read your posts. The mouthwash I was given is called CAPHOSOL consisting of blue & transparent pippets and you have to mix one of each together. Remember i'm in France so i'm not sure if hospitals in the UK use them. Here's a link to it so you can see what it looks like, or you may…[Read more]

Hi Jet, I had my SCT just over 2yrs ago and being honest I didn't think it was as bad as I was expecting it to be. I live in France and my treatment was first class, I was given lots of preventative meds and I think this helped me alot. The day I went in I was put on a drip immediately to keep me hydrated and started on the mouthwash, it was a…[Read more]

Hi everyone,

I'm not sure if you remember or not but my Professeur took me off Revlimid 2 months ago to give my body a rest after being on it for 18 months. It finally put me in remission after a year but I suffered side effects quite badly hence the break. My pp started rising again in January albeit slowly but was very disappointing and I was…[Read more]

Hi Dai,

What a privilege to read your work. Thanks for sharing!

Love n hugs Lorraine xx

Hi Dai

Fantastic news!! So pleased to hear Velcade's working wonders for you 🙂

Love n hugs Lorraine xx

Hi John and Bridget,

Thankyou both so much for your replies I really appreciate it. You have both made me feel better and I know i'll get through this wobbly time soon.

Thanks again,

love n hugs Lorraine xxx

Dear Susan,

I'm so sorry to hear of Kevins passing. He was a very inspirational man and very bravely fought this horrid disease. Condolonces to you and your family at this sad time.

love n hugs Lorraine xxx

Dear Tina, I'm so sorry for your loss. Thinking of you and your family at this sad time.
Take care of yourself,
love & hugs Lorraine xxx

Hi Sue,
Thanks for your reply it's made me feel a bit better…I hope your husband's doing well.
love n hugs Lorraine xx

Hi Bridget, I hope you're feeling a bit better tonight and have been taking it easy. I'm sorry you're in so much pain and really hope it's due to overdoing the dreaded housework. I hope you get to speak to someone soon to put your mind at rest. Take care, sending lots of love and big hugs to you, Lorraine xxx

Aww Sharon I totally understand how your feeling, bless you. Wishing you good luck with your stay in hospital and your BMB and treatments. Keep your chin up hun, we're all here for you.
Take care, love & hugs Lorraine xxx