[lorraineyParticipant]

Dear David,

I'm so sorry to hear your news, I hope the treatment kicks it into touch and is kind to you.

Take care, love n hugs Lorraine xxx

[lorraineyParticipant]

Hope all went well today Tom, have been thinking of u 🙂

Can't wait to hear all about it!

Love n hugs Lorraine xxx

[lorraineyParticipant]

Good luck Tom, i've got everything crossed ur interview goes well 😀

Don't forget ur friends if u do win 😉 hehe

xxxxxx

[lorraineyParticipant]

Hi Tom & Elaine,

Have only just seen your post but wanted to say that's fantastic news for you both! So chuffed for u and long may it continue 😀

Few voddys have been in order I reckon 😉

Love n hugs to u both Lorraine xxxx

[lorraineyParticipant]

Dear Siobhan,

I too read about your mums passing on facebook and am in utter shock, many tears have been shed. Your mum was a lovely lady and a great inspiration to all of us on here.
My sincere condolonces go out to you and all your family at this extremely sad time.

Love & hugs Lorraine xxx

[lorraineyParticipant]

Dear Eve & Slim,

I'm so sorry to hear your sad news, my thoughts are with you and your family at this terribly sad time.

Love & hugs Lorraine xxxx

[lorraineyParticipant]

Welcome to my gang Tom, it's great being drug free 😀 I've been
off everything for 9 months now and apart from feeling tired all
the time i'm doing well.

Well done and long may it continue for you 😀

Take care

Love n hugs Lorraine xxx

[lorraineyParticipant]

Hi Kay,

So sorry your SCT didn't work as well as expected. I understand totally your disappointment because mine didn't either. My PP was 25 after my SCT and I was gutted to say the least. I went on Revlimid 25mg maintenance treatment and after a year I finally reached remission 🙂 I stayed on it for a further 6 months but my Prof took me off it to give my body a rest just for a couple of months…but i'm pleased to say I'm still off it 8 months later and still in remission! 😀
So Kay don't be too despondant, there is HOPE 😉 I wish you well with your scan today, and hoping for good results.
I also get PN mainly in my hands and sometimes in my feet. I've had it since being on Velcade as primary treatment 3yrs ago. I still get aches and pains but not as bad as I used to.

I hope your meeting goes well with your consultant on Monday, please keep us posted.

Take care, love n hugs

Lorraine xxxx

[lorraineyParticipant]

Hi Debs,

I was on Revlimid 25mg for 18 months and I was achey continually. It got better as time went on but I didn't realise how bad I was until I stopped taking it in May this year. My Prof stopped it to give my body a break due to the aches and pains, just for a couple of months but my bloods have improved since being off it and my PP is still untraceable so i've stayed off it 😀

I hope you feel better tomorrow but I would mention it to your hospital team to be on the safe side. You have fab kids, they're a credit to you 🙂

Take care, love n hugs Lorraine xxx

[lorraineyParticipant]

Hi Jo,

Fantastic news, really pleased for you and I have every faith that you will reach your 3 years remission 😀

love and hugs

Lorraine xxxxx

[lorraineyParticipant]

Hi Jo

I'm so sorry to read that the beast is back. I wish you well with your
treatment and hope it kicks it into touch very soon. Take care
of yourself and keep us posted how you're doing.

Love n hugs Lorraine xxxx

[lorraineyParticipant]

Hi David,

A very warm welcome from me too. Pleased to hear you're doing well and long may it continue 🙂

Take care

Lorraine xxx

[lorraineyParticipant]

Hi Gina,

So sorry to hear your sad news about your mum, ditto all the above.

Take care

love n hugs Lorraine xxx

[lorraineyParticipant]

Hi Debs and everyone,

Yes I too went into early menopause after my SCT. My periods stopped immediately and hot sweats started…yuk! Hate them! My gp gave me some meds which have helped immensely, sorry I can't remember the name, it's french!
I have also come to terms with it, definitely not wanting anymore children with mine being 20 and 18 (have been sterilised for 16 yrs) but I felt too young and something else to contend with.

I spoke to my Prof about 3 months post SCT and he said to wait for a year to 18 months because it could be temporary, but if I was still the same after this then chances would be it's permanent.

As Tracey said you have more of a chance of it just being temporary due to being a 'spring chicken' hehe!

Take care

love n hugs Lorraine xxx

[lorraineyParticipant]

Dear Julie

I'm so sorry to hear your sad news about your mum. It's good to know she passed away as she wanted with her family by her side in the comfort of her own home.
My heartfelt condolonces go out to you, your dad and all your family.

May your mum Rest in Peace.

Love and hugs Lorraine xxx

[Author]

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