[lorraineyParticipant]

Hi John and Bridget,

Thankyou both so much for your replies I really appreciate it. You have both made me feel better and I know i'll get through this wobbly time soon.

Thanks again,

love n hugs Lorraine xxx

[lorraineyParticipant]

Dear Susan,

I'm so sorry to hear of Kevins passing. He was a very inspirational man and very bravely fought this horrid disease. Condolonces to you and your family at this sad time.

love n hugs Lorraine xxx

[lorraineyParticipant]

Dear Tina, I'm so sorry for your loss. Thinking of you and your family at this sad time.
Take care of yourself,
love & hugs Lorraine xxx

[lorraineyParticipant]

Hi Sue,
Thanks for your reply it's made me feel a bit better…I hope your husband's doing well.
love n hugs Lorraine xx

[lorraineyParticipant]

Hi Bridget, I hope you're feeling a bit better tonight and have been taking it easy. I'm sorry you're in so much pain and really hope it's due to overdoing the dreaded housework. I hope you get to speak to someone soon to put your mind at rest. Take care, sending lots of love and big hugs to you, Lorraine xxx

[lorraineyParticipant]

Aww Sharon I totally understand how your feeling, bless you. Wishing you good luck with your stay in hospital and your BMB and treatments. Keep your chin up hun, we're all here for you.
Take care, love & hugs Lorraine xxx

[lorraineyParticipant]

Hi Gill,
I also don't know what to say but just want you to know i'm thinking of you both. I don't post on here very often but I read all posts and follow everyones journeys. Stephen and I had our SCT's the same day, but unfortunately mine didn't work too well and have been on Revlimid since October 2009 and am now in remission. I was so pleased that Stephen reached remission after his SCT, i'm just sad it hasn't lasted longer 🙁 I really do hope Revlimid works for Stephen. Love and hugs to you both Lorraine xxxxx

[lorraineyParticipant]

Hi Kay,

My pp was 28 when I had my SCT and all my hair fell out too! I was dreading losing it and I got a wig, scarves etc but I shocked myself because I only wore my wig twice and never wore my scarves!

Good luck with your SCT

love Lorraine xxx

[lorraineyParticipant]

Hi Bluebird,
I'm so sorry for you and your families loss. Thinking of you all at this sad time.
Love & hugs Lorraine xx

[lorraineyParticipant]

Hi Nigel,
Welcome to a brilliant site, you've come to the right place for help and support. I also live in France, where abouts are you? I live in dept 53 and am under Professeur Lamy at Rennes who is brilliant. I was diagnosed February 2008 with smouldering myeloma but it progressed pretty quickly and I started treatment Velcade/Dex February 2009, had STC June 2009 but didn't get as good a response as we wanted so went on Revlimid of which i'm still on and am in remission 🙂 Good luck with your treatment, Lorraine X

[lorraineyParticipant]

Hi Roz, it's so good to see you. I hope you're looking after yourself amongst everything else that you've had to deal with. Take it easy and take one day at a time, there's no rush.
Love n hugs Lorraine xxx

[lorraineyParticipant]

Hi Min & everyone, what a great idea!! I don't post very often but I do read the posts frequently.
I'm Lorraine, 42 and live in France with my wonderful hubby Daren and two children Leanne 19 and Josh 17 and our boder collie Izzy 2. Sadly we lost our older border Jess in January 🙁 I was diagnosed in February 2008 with smouldering MM but it became active quicker than i'd hoped for. I started with Velcade/Dex in February 2009 but didn't get as good a response as we expected so my Prof stopped it after 5 cycles. I then had my SCT in June/July 2009 but again didn't get the results we wanted..my body seemed resiliant for some reason! I then started Revlimid in November 2009 and am still on it, it's brought my PP down and i'm now in Complete Remission 🙂 Hopefully it will keep me there for a long time!!
Love n hugs Lorraine X

[lorraineyParticipant]

Hi all,
I'd like to tell you of my experience of getting disability benefit. I live in France so know it's different than in the UK but I applied last February 2010 and they check applications rigorously here..(not saying they don't in the UK) Your application goes to a panel and they decide if your application is worthy or not. They have an independant doctor who checks the applications, and my GP told me that if he doesn't agree that your illness is of a certain criteria then you won't be granted the benefit. The form I had to fill in was 26 pages, and also a form which my GP had to fill in was 8 pages. It took until September for them to notify me that my application was accepted, I had to sign a form agreeing this! It has taken until last week 7th January 2011 for them to pay me the benefit money…almost a year from when I applied. I have been awarded the maximum amount of which they don't give easily. Myeloma is obviously an illness that is ranked high on the list. They have backdated it thankfully but it's madness that it's taken so long. It has taken this long for my blue badge too! French beaurocracy at it's best!!!
Sorry to waffle on!!
love n hugs Lorraine xxx

[lorraineyParticipant]

Hi Dai & Min,
I got the same email too, and like you Min I thought it was probably from a site that I joined ages ago. I have ignored it but will now do a virus check too.
Sorry Michelle that you and your son are going through a rough time, I hope it gets sorted very soon.
Take care all, love n hugs Lorraine X

[lorraineyParticipant]

Hi Keith,
Sorry to read this, I wish you all the best with round two.
love n hugs Lorraine xxx

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