Thank you for your replies. I forgot to mention I have been prescribe Loperamide to help control my bowel problem. This helps but can’t stop the problem. Ellen I have already been seen by the gastro clinic & had a colonoscopy. The only problems the found were diverticulitus & IBS. I was told both these conditions were slight. But I will ask about…[Read more]

I have started my maintenance, on the Myeloma X1 trial, this week. So it's to early to say what will happen. I am only taking Revlimid. When I took this as part of my initial treatment I ended up with DVT in my right leg. After my SCT I was weaned of Clexane & put on Warferin, so far everything is ok. Since my SCT in august I have continued to…[Read more]

Hi everyone. I'm just over 3mths post SCT & don't have anymore itching. When I did I was told by a friend, whose daughter had similar symtems, to try Pure Aloe Vera gel. This did the trick, calming the itching until it stopped altogether. Got mine from Holland & Barrett, on offer, it's normally between £6 – £7. Hope this helps.

Hi Alison. Not been randomised yet, back at hospital in 3wks for Zometa. Will make a decision then. I'm good after SCT, that's why I'm concerned about side effects making me feel worse. But I suppose any problems I can always drop out of trial. I'm also on Warfarin because of a clot I developed whist on RCD.

Hi Eve. About your trips abroad.…[Read more]

Thanks Eve, trust me to do it wrong.:'-( My wife & I are just a bit worried, because of the side effects, that I may feel worse than I do at present. But I understand if I stay on the trial I will have access to the latest drugs & be monitored closely. Eric

Hi Adam. I was diagnosed in Jan 2012. Went on the RCD trial like yourself. After 5 cycles was refered for SCT. Had this end of Aug. All went well and I'm in remission & now feeling very good. Now the dilemma is do I stay on the trial. My wife & I are worried that I may have side effects that make me feel worse as I am feeling so good at the…[Read more]