[lynnemallaceParticipant]

Hi Carol

I have a few bandana’s and hats but I always revert back to my wig when I go out as I feel I do not suit bandana’s. I have been off work since January 2013 as I work in a hospital as a nursing auxiliary in the labour ward which is a really physical and heavy role. I am on no pay now which is hard 🙁 but I have to think of my own health first. Keep your chin up and as my dad says they’ll only look/stare at you once……….

All the best for 2014 and hope you get word of your transplant soon.

Lynne x

[lynnemallaceParticipant]

When I had chemo before harvest my hair started to fall out around 2 weeks after. Like you guys I was fed up waking up with my pillow covered in hair although I had got it cut really short when I was diagnosed in July 2013 as I thought it would fall out earlier. So really I had it 6 months extra lol. I have got used to no hair but the weirdest part was the first day in the shower after it had been shaved lol no hair to wash lol. My daughter and fiancé came with me to get it shaved and my daughter asked if she could keep some in an envelope…. She is 12 🙂 . I am going in for my transplant on 13th January 2014 and feeling very nervous but I know it is for the best. Chin up girls……… Onwards and upwards xx

[lynnemallaceParticipant]

Thanks for your kinds words eve and hope Slim feels better soon. I have been really luck with side effects etc. I do currently have high blood pressure which I am on medication for but it is keep stable with being on all my other meds. Look forward to hearing how Slim's keeping. Take Care. Lynne x

[lynnemallaceParticipant]

I am on cycle 4 of myeloma x1 trial. I have put on soo much weight and feel i look like a hamster with my fat face :-(. Small price if I can live longer xx i am lynne x

[lynnemallaceParticipant]

Hi i'm on cycle 4 of myeloma x1 trial. Starting to feel really down right now . On cyclosophimide dexmethasome and lenlolideamide…… excuse spelling. My body is sooo tired but cannot sleep …..been so positive up til now :-). Neeed to give ma self a shake its ms daughters 12 birthday today and school holifday xxhttp://[u][/u][i][/i][b][/b]

[lynnemallaceParticipant]

Jolly, I have chopped and changed consultants but my main one has been Dr Jenny Buxton. Last time I went to Western I saw a registrar Dr Darias (not sure of spelling lol ) .I also attend St John's, Livingston for my zometa infusion once a month. My partner also said when I'm better the first thing we're doing is getting married. . Hope your well. Love Lynne xx

[lynnemallaceParticipant]

Hi Jolly. Good to hear from you. I am now on Cycle 3 of the myeloma X1 trial and doing well. Paraprotein has dropped from 28 to 7 which is good news and I see your paraprotein was higher but dropped to a good level :-). Good news about transplant and I hope all goes well in October. Keep me posted as to how you get on after all we are similar ages and soooooo young for this disease. Where do you live about? I am attending the Western General Hospital in Edinburgh, Scotland. Take Care and kind regards Lynne x

[lynnemallaceParticipant]

Thanks Becka 🙂

[lynnemallaceParticipant]

Hi Becka that is great you are in remission. Can you give me some information on SCT. I am so worried about it. Can I also ask how old you are ? I am 44 x

[lynnemallaceParticipant]

Thanks Jill x

[lynnemallaceParticipant]

Thanks folks. Thanks for the information x

[lynnemallaceParticipant]

Hi Eva. I was diagnosed with MM on 5th July 2013. I am 44 years old and had been off work with back pain since January 2013, treating the pain as a trapped nerve so when I was diagnosed it was a bit of a shock to say the least. I am on the Myeloma X1 trial and I am on my second cycle of treatment RCD. I am currently doing ok with no major side effects apart from tiredness and a red face and ofcourse weight gain. I still have my own hair and looking at the positive outcome. I will receive a Stem cell transplant at the end. My pain has reduced greatly although I received my first infusion of Zometa on Thursday and today Sunday I seem to be in a little more pain which I think is side effect of Zometa. I enjoy being on this site as you get a lot of useful answers. Take Care. Lynne x

[lynnemallaceParticipant]

Hi I got my first Zometa infusion on Thursday and it went through in 15 minutes. Today I have been in quite a bit of pain in my area where the MM is but as I guess that is normal. I have had sniffy nose and cough too but my temperature is ok. I will receive the Zometa for two years so I now know what side effects to look out for .

[lynnemallaceParticipant]

Hi Eve I am on CDR treatment and will be starting the 3rd lot in around 3 weeks. Hope your good 🙂 xx

[lynnemallaceParticipant]

Thanks everyone for your help and support. Its nice to have people to talk too 🙂 x

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