I wanted to provide you with an update and to thank you again for your support and advice during what has been a very anxious few weeks.
I have now completed all of the investigations requested by my haematology team, including extensive blood tests, specialist myeloma blood tests, a bone marrow biopsy, a PET-CT scan and an MRI scan.
I am very pleased to say that all of the results have come back showing no evidence of myeloma or any other findings of concern. This has come as a huge relief to both myself and my family.
Although my consultants are very reassured by the results, they have recommended that I have a further follow-up scan later this year as a precaution before they formally discharge me from their care. They explained that this is simply to ensure there have been no changes and to provide complete reassurance.
I wanted to thank you once again for the information, reassurance and support you provided when I first contacted you. It was greatly appreciated during a particularly stressful and uncertain time.
With kind regards,
Malcolm Logan
Hello, no i didn’t have the scan for suspected Myeloma. I have placed below a full report form your information:
MEDICAL INVESTIGATION DIARY
BACKGROUND MEDICAL CONDITIONS
• Charcot-Marie-Tooth Disease (CMT)
• Lumbar spinal stenosis
• Left foot drop
• Type 2 Diabetes (currently in remission)
• ADHD (Adult Inattentive Type)
• Chronic tinnitus (approximately 25 years)
• Previous bariatric sleeve surgery
• Umbilical hernia
• History of swallowing difficulties due to cervical bony growths
• Anxiety associated with current investigations
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10 JUNE 2026 – NNUH ADMISSION
Admitted to Norfolk and Norwich University Hospital (NNUH) for planned lumbar decompression surgery.
Whilst awaiting surgery:
• Sustained an inpatient fall.
• CT scan of the head was performed.
• CT identified a single skull-base lytic lesion.
• Planned spinal surgery was cancelled pending investigation.
• Initial blood tests were performed.
The discharge documentation later referred to:
“Aggressive lytic lesion involving the skull base”
and raised suspicion of possible Multiple Myeloma.
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11–12 JUNE 2026 – BLOOD TESTS
Routine blood tests performed included:
• Full Blood Count (FBC)
• Kidney Function
• Liver Function
• Calcium / Bone Profile
• General Biochemistry
RESULT:
• No significant abnormalities reported.
• No anaemia reported.
• No kidney impairment reported.
• No raised calcium reported.
These findings were considered reassuring.
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12 JUNE 2026 – SPECIALIST MYELOMA BLOOD TESTS
Specialist haematology investigations were undertaken.
These included tests looking for evidence of:
• Multiple Myeloma
• Plasma Cell Disorders
• Abnormal Proteins
RESULT:
• Specialist blood tests did not identify evidence confirming myeloma.
• No significant concerns were reported from these investigations.
• Haematology later advised that approximately 80% of myeloma cases show abnormalities in blood testing, but around 20% may not.
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12 JUNE 2026 – FULL BODY / STAGING CT SCAN
A staging CT scan was performed to determine whether disease was present elsewhere in the body.
RESULT:
• No additional lesions identified.
• No further areas of concern reported.
• No obvious evidence of widespread bone disease.
• Skull-base lesion remained the only identified lesion.
This remains one of the most reassuring findings obtained so far.
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13 JUNE 2026 – DISCHARGE FROM NNUH
• Discharged from NNUH.
• Referred urgently to James Paget University Hospital (JPUH) Haematology.
• Lumbar decompression surgery postponed indefinitely pending investigation.
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MID-JUNE 2026
MDT REVIEW DELAYED
JPUH advised that the case could not be fully discussed at MDT because some specialist blood test results were still outstanding.
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18 JUNE 2026
FURTHER HAEMATOLOGY BLOOD TESTS
Additional blood tests requested by JPUH including:
• Full Blood Count
• Bone Profile
• Kidney Function
• Liver Function
• LDH
• ESR
• Beta-2 Microglobulin
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19 JUNE 2026 – FIRST JPUH HAEMATOLOGY APPOINTMENT
Consultant reviewed:
• CT findings
• Blood results
• Medical history
KEY POINTS DISCUSSED
• Lesion remains serious.
• Lesion appears aggressive on imaging.
• Multiple Myeloma remains a significant concern.
• Blood tests have not confirmed myeloma.
• Bone marrow biopsy requested.
• PET scan requested.
• MRI later requested.
TRAVEL
Consultant advised:
“Not fit to travel at present”
because diagnosis remains unconfirmed.
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20–22 JUNE 2026
THAILAND ENQUIRIES
Contact made with Bangkok Hospital Pattaya regarding possible future monitoring or treatment during planned Thailand stay.
Hospital advised:
• They do not currently provide PET scanning.
• Complex investigations may require larger Bangkok hospitals.
• They did not rule out future monitoring depending on diagnosis.
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23 JUNE 2026
MRI REQUESTED
JPUH advised:
• MRI scan requested.
• Estimated duration approximately 30 minutes.
PET SCAN BOOKED
Appointment received for:
Date: Thursday 2 July 2026
Time: 09:00
Location: Norfolk & Norwich PET-CT Centre
Scan Type:
FDG PET-CT
Skull Vertex to Mid-Thigh
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24 JUNE 2026
BONE MARROW BIOPSY
Location:
James Paget University Hospital
Time:
09:00
Procedure completed successfully.
Seen by procedural doctor rather than lead consultant.
No additional diagnostic opinion provided.
RESULTS TIMESCALE
Advised:
• Some preliminary findings may become available earlier.
• Full bone marrow report expected within 2–3 weeks.
MRI
Enquired about MRI appointment.
JPUH advised:
• No MRI appointment date currently available.
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CURRENT INVESTIGATION STATUS
COMPLETED
✓ CT Head
✓ Routine Blood Tests
✓ Specialist Myeloma Blood Tests
✓ Full Body / Staging CT Scan
✓ Additional Haematology Blood Tests
✓ Haematology Review
✓ Bone Marrow Biopsy
AWAITING
⏳ MRI Appointment
⏳ PET Scan – 2 July 2026
⏳ Bone Marrow Report
⏳ MDT Review
⏳ Final Diagnosis
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CURRENT FINDINGS CAUSING CONCERN
• Single skull-base lesion identified.
• Lesion described as aggressive and lytic.
• Haematology considers lesion significant enough to warrant further urgent investigation.
• Bone marrow biopsy performed.
• PET scan requested.
• MRI requested.
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CURRENT FINDINGS THAT ARE REASSURING
✓ Routine blood tests did not show evidence typically associated with active myeloma.
✓ Specialist myeloma blood tests did not show evidence confirming myeloma.
✓ No anaemia reported.
✓ No kidney impairment reported.
✓ No raised calcium reported.
✓ Full body CT identified no additional lesions.
✓ No obvious widespread disease identified on CT.
✓ Bone marrow results remain pending.
✓ No confirmed diagnosis has yet been made.
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CURRENT LEADING POSSIBILITIES
1. Multiple Myeloma
– Still being actively investigated.
2. Solitary Plasmacytoma
– Single isolated plasma-cell tumour.
– Remains an important possibility.
3. Alternative Bone Lesion
– Benign lesion.
– Other tumour type.
– Less common bone disorder.
Further investigations are intended to clarify the diagnosis.
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OUTSTANDING QUESTIONS
• What exactly is the skull-base lesion?
• Does the bone marrow contain abnormal plasma cells?
• Does the PET scan show disease elsewhere?
• What is the MRI expected to reveal?
• Is treatment required?
• Can travel to Thailand proceed safely?
• Will treatment affect CMT neuropathy?
• What is the final diagnosis?
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NEXT KEY DATES
2 JULY 2026
PET-CT Scan
09:00
Norfolk & Norwich PET-CT Centre
EARLY TO MID JULY 2026
Expected Bone Marrow Results
DATE AWAITED
MRI Scan
FOLLOWING RESULTS
MDT Review and Consultant Discussion
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OVERALL POSITION AS OF 24 JUNE 2026
A single skull-base lesion with aggressive lytic features has been identified.
Despite extensive investigations:
• Routine blood tests have not confirmed myeloma.
• Specialist myeloma blood tests have not confirmed myeloma.
• Full body CT has not identified any additional lesions.
• Bone marrow biopsy results are pending.
• PET scan is pending.
• MRI is pending.
No confirmed diagnosis has yet been made.
The investigation is now entering its final major phase, with the PET scan, MRI and bone marrow analysis expected to provide the information needed for a definitive diagnosis and treatment plan.
