Ps part post missing lol.

Good luck with yours
Love Tom onwards and upwards. Xxx

Lord knows why it leaves some out ?? Think I might be using the wrong ink lol ha ha xxxx

Hi Carol

Well post SCT I done a few months taking anti virals and anti sick, and Zometa ant ye Zometa was for just two years, apart from that I was drug free

Aww you have my positive attitude am sending a little bit to you today,
Hope ur doing ok ?? We are off to Chester tomorrow for a few days seeing as we can’t get in a plane decided to go in a posh hotel instead ha ha.

Velcade today but think am gonna save those little Dex tabs till tomorrow do I can party all night in Chester he he

Love to you…[Read more]

Hi Polly

I read Pat,s and Arnie,s opinions as well,interesting reading??.?

I like the way you substitute fat for curvy lady,and as I am fat,I won,t be singing,!!! Lol

Seriously Mandy,start fighting,I hate the word fight!!! But your attitude,your will to live will carry you a long way
I would urge any doctor not to have a set agenda!!!,they are…[Read more]

Make sure you keep in touch!!! One day you just might see me there,never say never is my motto!! Life is on hold!!!!but Myeloma makes you realise,dreams have to be lived. Love Eve

Hi David

No surprises there then!!!

Saga was originally a family organisation,a couple of years ago the man who owned it sold it to the AA.They have since sold it on to an American company,it is now far removed from the original company.

I live 15 miles away from Folkstone which is the main head quarters ,I use to have all my insurances with…[Read more]

Hi Carol

No hair!!! Scar on chest!!!,you make me laugh some times,but in a good way,were,s your ozzy spirit.
Tell them to get this thing out,you want to look good on a Ozzy beach!!!!.Eve

Hi Mandy

Why not ask him what he would do if he was in your position,????? But still get another opinion?????,they all have different school of thoughts.

I can only tell you,Slim was basically told,no treatment,would support him so go home and die,he is now being treated by another hospital after a second opinion,and yes we realise he still…[Read more]

Hi Carol

Slim had the opposite of you,when they put it in it took over 4 hours,lot of pain,and because of this when it was removed it was day surgery,it just slipped out,after being in for a very long time!!!

If it’s painful get it removed!!!!,did they realise they left it behind????
It should be a day job surgery.

Don’t,forget to say hello to…[Read more]

Hi Vicki and Collin

Good to see you are still going strong,plus started having holidays!!!if it was me,you would not see me for dust,although I realise things are different for everyone. I suppose it was because are life was one long holiday before Myeloma,or should I say it was just a way of life????

Make the most of what you have got!!!and I…[Read more]

Hi Vicky and Colin

Your wayy too kind I just do what I feel is best, not just for me and mine but all of us Mm folks, as I have to admire to being a iccle bit selfish

Hi David
Sorry your SCT hasn’t been the success you/ we wanted but I have heard that it can get there in time ?!, good luck with the Maintansnce regime and hope your soon into remission.

Hi Keith

Well hope the throat gets no worse ??, gosh you are brave staying at home I was pleased I was in hospital during all mine and am pleased I will be…[Read more]

Hi Mandy

The news is not good,but from previous post you new this was going to be that way,Mandy you had no remission so you are high risk and it’s not great for people in this situation, you have good things on your side,you are young enough to have a back to back SCT,you have a family to keep you going,this is all good.

As for lying in a…[Read more]

Hi Jo

Lovely to hear from you.

I miss the holidays as well,but it is out of the question here as well,I did think about trying to book a break in bournmouth at the hotel for cancer patients it’s something to do with the Mac Milan site,but it’s not the sought of holiday Slim wants,in his mind he thinks we can still go in are Motor Home,but with…[Read more]

Hi Helen

Ye the Dex has it’s bad bits also lol, ye but I can’t knid of later in the day as I am at work and what will my gaffer think lol.

Yes it would be good to have SCT over and done with and recoupe in the warmth of the summer, mine was winter in 2009 and it weren’t good cos I really do feel the cold now.
Do the race is now on and we are off

Hi Andrea

Well good luck with it I was on CTD in 2009 and had to pack in work half way through my third 28 day cycles as I was wayy too tired by then had about a year off work that let me have my SCT in December 2009, got four years remission out if that. Just take one day at a time it’s a doable but it has it’s moments stay strong and you will…[Read more]

Hi Keith
Yes the Dex keeps me awake but it will only be for last nite and the Velcade (if it’s same as last five lots) and will need aka ram to wake me up.

The mouthwash like David said should be supplied by the hospital and don’t forget use it near as much as you use the loo and some. That extra extra use helped me no end.
Good luck with it…[Read more]

Hi Jean

Good for you,keep in that frame of mind,never give up,it will take you both a long way,.Eve

Hi Keith

Quick one!!

Get some chlorpromazine tablets from your GP,they stop the hiccups, Eve

Bloomin half post again but am sure you all get my drift lol xxxx