Hi Jennah

Am sure it will go well, send my regards to your Dad and wish him luck, let us know how you BOTH got on as am sure its not easy sat waiting.

Tom "Onwards and upwards" xx

Hi Onlyme

Sorry to read about your Mom its a bugger this MM and you know am gonna say it but I cant add or help on this one just wanted to wish your Mum a good journey on the road to remission.

Tom "Onwards and Upwards" xx

Hi Gill

It must be a very hard time for you at this moment I do hope they find something that will help Stephen,I do know some myeloma,s are more aggressive than others,i do not know if you remember Sharon who use to post,she had a more aggressive type.

I found it difficult to get Min on facebook,so i went through Tom or Dai they e mailed my…[Read more]

Hi Jane

Welcome to the site I am doing catch up,I loose track of what is going on,that,s why I am late welcoming you.

You sound if you have been through the mill a bit,i take it that you did not have a SCT because of age,and treatment that you have already had.

It takes awhile for energy levels to return after CDT,my husband had it then…[Read more]

Hi Onlyme

So sorry to hear your news,cannot help with your questions as Slim is behind you on this journey,lets hope the Rev works it does seem to buy that extra time,which in its own way helps you to adapt.

Sorry I cannot be much help,but if kind thoughts help,there is plenty coming your way.Eve

Hi Ian

You must be feeling a bit down,all that treatment and mm taking hold once again.i hope the velcade does the trick again and would be interested in the result as Velcade worked well for my hubby first time round,and its good to know what is round the corner.

Some times I wish I could swear on this site,and i am too old for the under…[Read more]

Hi Ian

Well you have done well out in 48 hrs 😎

Gosh how weak our bloomin bones are? I have been today to see my Doc bloods are good but I tild him about a pain in right upper arm/shoulder so he sent me for X ray so have to wait till next thusrday for results. am sure he will say its just old age 😀

Keep fit

Tom"Onwards and…[Read more]

Hi Sue

Welcome to the site
Glad to see you managed to get some help with your questions,you should find on here if people cannot answer your questions they will point you in the right direction.

Let us know how things go with hubby remember there are people who are here to help you.Eve

Hi Sherif
I have come on your post just to say hello,and say I hope you find what you need,and wish your mother well Eve

Hi David

Its all coming out now,its not that you could not sleep,its because you did not want to sleep:-) . Must admit I have done a few champagne breakfast after all nighters the only problem was I could never remember who came to breakfast,so never kept in touch.(mess 41 commando unit) bar would not dream of chucking you out.

Had 4 hrs…[Read more]

Hi Dia and Tom

Well Tom I know I said I am just the carer,but I forgot to mention everything else,but as it would take,all day I will just except your praise:-P lol

Yesterday I took Slim to Kings starting off at 10am,getting there for 1pm and then spending hours waiting for bloods,doctor,then prescriptions ,getting away at 5pm,and getting…[Read more]

Hi Ian

Wow I heard what you have had and its amazing, I hope you are doing well, are you still in hospital?, how did you fracture your neck?. gosh I dare not sneez now.

Hope your soon better and please dont sneeze

Tom "Onwards and Upwards" x

No No No lol I dont want to prick my self Lol I (at the moment) dont need to BUT could I stick a needle into my Tum ??? am sure I could If I had to but if the option of a Nurse doing it for me first came up :-S am off with that option Lol 😎 Good Luck to all those that do it themselves 😀

Tom "Onwards and Upwards"

Hi Helen and John

May I ask you if the SCT was a success ? as since mine in December 2009 I only had Zometa infussion's? Is John having any of the bone strengthening drugs? as that could cause Jaw Problems?. but dont stop taking any treatment that is helping stop the MM.
all of us are different in our treatment and side effects.
Hope all…[Read more]

And I hope you had a good sleep Dai its a begger I know, been done it that sort of thing, but I used sleepy pills not every nite just now and then to help me catch a bit of shut eye 😀

And Eve You my dear are not Just the Carer you ARE THE carer 😀 without people like you and all the others that have partners and Family looking after us our…[Read more]

Dia

My eyes have so much grit it them,through lack of sleep,and I am just the carer :-SEve

Hi Keith

Lets Hope you will be taking them for years and years Good Luck with it all Keith and heres to minimum side effects 😎

Tom "Onwards and Upwards"

Hi Mavis
Thanks for your wishers.

No such luck on the bloods,came out of hospital on Saturday,went yesterday to check bloods,phoned he needs platelets so back in to day,then check bloods again Wednesday,Then 86 miles to Kings Thursday.
Tried ringing Kings yesterday as Canterbury could not answer a question about injections,still waiting a…[Read more]

Hi Jen
You could be talking about my husband,except he had tumour on back,plus lesions on skull and shoulders after first CTD his bone marrow went up to 80%,so started Velcade which took it down to 6%,it was still going down,then he had his SCT and has come home,but is having a few blips on the way.

Slim has a chemo brain,I drive most of the…[Read more]

Hi Helen

I know,its just he has been here before and it took a lot out of him then,I was told then,he may never get back to the man he was,and they were right then,but give Slim his due he is a fighter,so fingers crossed.
I think it,s just me feeling sorry for myself,have given myself a kick up the bum:-P and Tom cheered me up 🙂

Going to…[Read more]