Hi Paul

Pleased your doing better M8

The thing that helped me when I was weak when walking was a "Shooting Stick" ? I was lent it by a Neighbor when he seen how bad i was walking it has a seat on it I just carried the scick and when needed popped open the seat and had a rest it was great, so if you can find one get it works a treat.

Good…[Read more]

Hi Andy
I know how hard it is to remain positive,but it has started to go down,very slowly but it is in the right direction.When Slim was on Velcade it was awful waiting,he had to have 4 cycles before they would take a BMB,as bloods and light chains were considered un reliable as they were not showing a true reading,and on top of that the…[Read more]

Hello Jane

A warm welcome is extended to you and I wish you good luck for your ongoing trip with MM.

I also was on CDT as my first Line of treatment then had SCT and Zometa Infusion every four weeks for my Bones.

Hope to hear more from you soon

Love
Tom "Onwards and Upwards" xx

A Warm Welcome Home Slim 😀 gosh now then when I got home I at first found it scarey being out of hospital and not having a Nurse with me But I got over that pretty fast.

And Good Luck in your road to recovery Slim, If I remember correctly I was about a good two months before I felt the "Gosh Am Better" feeling and that was one great great…[Read more]

Hi Everyone

Well he is home.Frail and bald with a good weight loss.so the time has come to build him up again,other wise buy a new set of cloths:-P

The journey down took 4 hours with a stop on the way,have to go back up on Thursday,and also have to go to Canterbury Hospital on Sunday and Wednesday.
He is busy writing his board out for all…[Read more]

Dear Happy Chappy 🙂

If your Consultant is Happy and you are Happy and more important if Janet is Happy then am Happy.

Its good to feel comftarble with your Dr and feel he/she is listening to you and your problem

Keep up the good work Dai

Tom "Onwards and Upwards"

Hi Liz and Kev

Well am sorry to read about Kev's results, I hope and am sure they will soon sort it out and Kev is back to strenth, am sure you will but I have to say it so "Stay strong" and Fit hope its a short blip in the road of MM

Love
Tom "Onwards and Upwards" xx

Hi Deborah
Welcome to the site,I think Dai has summed Velcade up.
My husband had 6 cycles and found it better than having CTD but he had a few problems with the first line treatment.It does depend on your mothers age how many injection she has in one week,the older patients (80) seem to have one injection.My husband is 67 and he had 2 injections…[Read more]

Dear Carol

I am so sorry for your loss its hard for me to imagine what you are going through at the moment and am sure you will enjoy life again just a new way with new challenges.

Hugs for you

Tom xx

Hi Deborah

I cant add to this one am afraid just wanted to welcome you and your Mum into the group but some one will pop in and sort out your Q.

All the best in the road to remission for your Mum

Tom "Onwards and Upwards" xx

Hi Keith

Well this is another new one for me? aint a clue what it is nor what causes it?

Hope its soon sorted out Keith I bet your well fed up with all this stuff. Keep strong and fight the begger like I know you will

Tom "Onwards and Upwards"

Dear Carol
I am so sorry for your loss,you do not mention if you have children,if you have they will give you the strength you need at this time.

I think you have to ask yourself would you wish him back in such pain,do not grieve for him,but grieve for yourself,he is at peace and now you have to find your own peace.You have not had much time…[Read more]

Hi Eva and Sue

Just for info I had my transplant the day after my Melphalan.

I was told to eat as much as i could before and after the SCT as I would not want to eat after it. I also suffered a lot from the wretching wanting to be sick but wasn't sick but the anti sickness pills help a great deal. I also could not drink enough water so asked…[Read more]

Hi Dai
you can lead a horse to water but you cannot make it drink!!!!you name it I have tried it,he understands how important it is,the least mention of a drink,and I am badgering the kitchen or off to the shop.he said he feels like knocking back a pint,but cannot do it,small cold sips is his limit.
All the thing he is lacking are on drips,plus…[Read more]

Hi Eva and Sue

As you know slim is in the middle of his SCT.
He went in on a Sunday, only 50% of chemo given on Monday,the next day was a rest day,them harvest fed back.he is not recovering very quickly a bit at a time,he has had his own platelets plus some more plus injections of growth factor.His platelets stood at 7.5 last time I…[Read more]

Hi Dai

Its a bugger all this tem up and down but am same as you throw some more water down my neck and a few citemols and soon brings my temp back to normal 😀
Good Luck for the "Normal" before Monday 😎

Keep Kool and keep Calm

Tom "Onwards and Upwards"

Hi Eve and Slim

Oh dont do shopping lol hate it with a passion.

I was told to buy "Tight" Clothes as you dont have to Iron them Lol.
Slim will soon get better but it wont be next week I was a while before I knew I was better but stick with it and dont expect it too soon.

Love
Tom "Onwards and Upwards" xx

Hi Tom

You have not walked down to Tesco,s and watched all these men standing there unable to decide on the washing powder to buy!!! Lol .I have a confession to make Tom I have not ironed for over thirty years and very seldom use the washing machine,Slim thinks I do not do it good enough!!!!,so that's the secret never be good at doing it.…[Read more]

Hi Teresa

I cannot think of better goals to aim for than the birth of a child and as we are. Both twitchers in a small way,it's lovely to see the birds in there mating colour,s not that we have any exotic birds around us,it's just nice to watch there behaviour.

At least they are keeping the Myeloma from rampaging which will buy you time,plus…[Read more]

Hi Sue

I understand were you are coming from but it will do you good to have a bit of me time,feeling guilty about it is natural.

I am very much the same I spend a lot of time in the hospital with slim,it takes me 1hr to get there,buy the time I get back my day is finished,buti am aware I will have to pace myself as I will not be. Much good…[Read more]