tom replied to the topic Hello to All in the forum Newcomers 13 years, 9 months ago
Hi Jacqui
A warm welcome, I know we all will understand that its all new to you and you have gone through some of the post on here? then am sure you know we have great Folk on here that have and are going through treatment and am sure that what ever treatment you get/having some of us will have had it or be just in front of you, so when your…[Read more]
tom replied to the topic itchy rash in the forum Side-effects 13 years, 9 months ago
Well what can I say my skin aint been the best I have dry skin (always have) so cant comment on it but I did have more of a body rash after sct?
Hope Henry is soon sorted.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic I'm back. in the forum General 13 years, 9 months ago
Hi Andy
Welcome Back M8 I have had that twice Infection but nothing ever found?? strange thing this MM.
Kepp strong and away from the hight temps
Tom "Onwards and Upwards"
tom replied to the topic relapse first time in the forum General 13 years, 9 months ago
Hey Sally you aint alone now you have joined our motley crew. and am sure we all know how it feels too many Q and too many forgot to ask its? put it all down on paper as the days go on and add as you come up with something you feel you need to know.
And Trust me That "Old Sal" will soon be back with a vengeance.
Love
Tom "Onwards and…[Read more]
tom replied to the topic The Big Picture… in the forum General 13 years, 9 months ago
Well mine looks Ok ? BUT is it ? Thanks Dai.
Hope ur doing OK 🙂
tom replied to the topic Relapsed and starting VCD – keen to hear from others on same journey! in the forum Treatment 13 years, 9 months ago
Hi Vanessa and Philip
A warm welcome to the group.
Cant give advice on VCD as all I have had is CDT then SCT all done in 2009 and now am drug free.
Just wanted to say Hi 🙂
Love Tom "Onwards and Upwards" xx
eve replied to the topic Related Conditions. in the forum Related conditions 13 years, 9 months ago
Hi Duncan
Sorry for not replying.
You have a lovely dog,it will be a great help to you in your recovery,as you have to take the dog for a walk and this helps.
We are based in Deal Kent,but Slim knows Bovi Sands well based in Torpoint, in 40 and 42 commando units once upon a time
I have some problems not connected with myeloma,so will be…[Read more]
eve replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 9 months ago
Hi Stephen
Sorry for not welcoming you to the site earlier,as I have had a few problems myself,its my husband who has Myeloma.
They say myeloma is such an individual illness and everyone reacts different to the drugs involved,I can only tell you about Slim my husband.
he was on CTD had 6 cycles and looked if he was in remission,bloods and…[Read more]
tom replied to the topic POSTBONED in the forum End of Life and Grief 13 years, 10 months ago
Eve and Slim
I am so sorry for your loss, I send our condolances to Matty's Family and Friends.
Love and ((Hugs)) to you xxxx
tom replied to the topic Day one of CTD in the forum Treatment 13 years, 10 months ago
Hi Tina
Dont worry about the sleep in the afternoon I do that and am only 56 and not on any meds these days Ha ha.
Keep strong and sleep often
Love and ((Hug))
Tom "Onwards and Upwards" xx
tom replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 10 months ago
Hi Stephen
A Warm welcome to this forum, please take your shoes of and sit back and feel comfy.
Sorry I cant answer your Q as I have not been on that, but am sure some one will be along and be able to give you the advice you need.
Good Luck on your road to remission.
Tom "Onwa
eve started the topic POSTBONED. in the forum End of Life and Grief 13 years, 10 months ago
Hello Everyone
Just to let you know what is going on.
Slims SCT was suppose to start on Tuesday,but my grandson Matty died on Tuesday morning,it was felt everything would be too much.Eve
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 10 months ago
Hi Pete
Well you know how good we are and how good YOUR Forum is, so use it and us for advice to have a moan and or a winge as am sure that you and Ann will want to use it to the max, dont worry about saying/asking a Q you think might be silly (av done it loads and loads Lol)
Good Luck for Tues as for Full X Ray I had no bone damage? hoping…[Read more]
tom replied to the topic Over-large profile images in the forum General 13 years, 10 months ago
Hi Stuart its not a problem we can cope with it till its sorted 😀 so many thanks to you and the rest of the team on doing a great job.
Tom
tom replied to the topic Another 3 months in the forum General 13 years, 10 months ago
Way to go that young lady Well done Wendy am well chuffed for you.
Its great to read about some one getting good results and i know its just great to be told they are good 😎
Enjoy the next three months and put this MM out of your mind 😎
Love from One "Onwards and Upwards" MM Person to another 😀
Love Tom xxxx
tom replied to the topic relapse first time in the forum General 13 years, 10 months ago
Hi Sally
A Warm welcome to the site 😀
Sorry to hear you are back into MM and need more treatment.
I am not on any treatment I had my SCT in dec 09 but am sure people in the group are on the same as you and will pop in and give you advice.
Keep Strong am sure you will soon kick the MM back 😎
Love
Tom "Onwards and Upwards"…
tom replied to the topic Day one of CTD in the forum Treatment 13 years, 10 months ago
Hi Tina
Good Luck on the CDT I started my CDT in Feb 2009 and had 5 cycles then onto my SCT in December 2009 😀
Now My CDT well I was tired and week lost weight and taste buds were not working 🙁 think I had to go on sick on my end of my 3rd cycle (just too tired) so I will tell you listen to your body when you feel tired sleep and when…[Read more]
tom replied to the topic Kidney failure aggravated by zometa infusions in the forum Treatment 13 years, 10 months ago
Hi Ron and Christine
Sorry to read Christine is not too well 🙁
As For me I had CDT for 5 cycles (28 day cycles) then onto stem cell transplant, I also had Zometa for about 2 years post SCT
What treatment is booked for Christine now?? the CDT has finished? as for the Kidneys am not sure if the can heal themselves??
Love
Tom…[Read more]
tom replied to the topic Help please sore abdomen after SCT in the forum Side-effects 13 years, 10 months ago
Hi Gillian
As for me after SCT I had the same as Eva and to be fair I dont like to go too far from the loo after eating 🙁 no pain though am pleased to say.
Good luck
Love Tom "Onwards and Upwards" xxx
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 10 months ago
Your More than welcome Ann, and I think we all know how you and Pete feel at this moment, and I had gone onto some other sites before finding the good ones 🙂 so it was scary but a relief when I found these good folk 🙂 dont forget ask away 🙂
Love
Tom "Onwards and upwards" xx