Hi Teresa
I had problems posting that picture,I tried one of Slim and me sitting together,and just got his ear and mine,resorted to dog as only picture i could fit in,there are instructions on how to do it at the start,the web team will help you,you can contact them by E Mail,or someone reading this might come on board with a solution.
I get…[Read more]

Hi Andy
my local hospital is Canterbury which is 15 miles away,but the nearest hospital for SCT is kings in London. That is were the problem lies for most people on the SE Coast,but as I said my daughter lives nr Sevenoaks,so Camping on her drive,I wonder how much she will charge me:-/

I do not know if its any help,Slim had low potassium ,and…[Read more]

Hi Lynda

Good to hear things are OK with Pete,I think we all feel the same,just want a result and an ending,but it is early days for Pete.

I know he will have to go the hospital more,but if it works!!!!is Pete having sub cut or infusion???,Slim had to go,for blood test morning then infusion afternoon,the actual injection takes all of 3…[Read more]

Hi Jo
Do not know Skaithos is it mainland or a Greek island,only been to the mainland once,we have always said we would do Cyprus with Motor Home,alas one of the many things on are list:-(
Just so pleased for you,after the scare of you might be needing treatment again,make the most of it.8-)Love Eve

Hi Wendy

Yep when you get MM you are never the same but you look like your Immune system is fighting it so thats good, as for me mine has been a cough and chest infections by the bucket load :-S but I fight it so am happy 😎

Hope your soon better Wenday

Love
Tom "OInwards and Upwards" xx

Hi Lynn and pete

Ye its a bugger when the MM tells us what to do or not to do :-/ am sure Pete's "Bring it On" tude is going to stand you both in good stead 😎 I hope the iccl beggers are soon moved and SCT is sooner than you think 😀

Love and Hugs

Tom "Onwards and Upwards" (hope it made you smile again 😎 ) xxx

Hi Tony
My husband Slim is on the Myeloma X1, he got the CTD side,because of his fitness he was on the intensive pathway.
I can only tell you to listen to your body,if you do not feel well, do not think you can cope with it,make sure you phone the hospital for advice,its a very hard call and you do not want to bother anyone,but it is very…[Read more]

Hi Dai

We bought are first van an old vw,because we had two old smelly jack russels, and having a guest house myself,did not fancy staying in one.First major trip was 6 weeks to Spain,wish we had done 3 months,that must be over 20 years ago. We now have a Concorde Charisma,will be living in it,when Slims in hospital for a month.
Have been to…[Read more]

Hi Susie

Ye its a daunting thing this MM, but I said that now i have it I will do my best to keep it at bay untill they find [u][b]"The Cure"[/b][/u] and am sure they will 😀 take one day at a time and to be honest I found it better tocry in the shower that way no one seen my tears8-) as am sure you will shed some BUT we have some great folk…[Read more]

Hi Dai

Well you have had some good thinking out loud time my Friend as for my treatment I think it was a great shock and i told him "You dont want me to decide what treatment I want are you?" when he gave me lots of leaflets/books :-/ where i was told that he and his team would decide the best road for me so I followed his lead and have to say…[Read more]

Hi Jorge

A warm welcome to you.

As for a Carer? my young bride say's she has been my carer long before I got MM Lol, as for you returning to your Native Ireland for your "Final Days" am sure it will be years before that happens 😎

Keep fit and stay strong

Tom "Onwards and Upwards"

Hi Tony

Welcome to[u][b] your [/b][/u]new group

I am same as David nowt special just MM 😀 CTD front line leading to SCT Dec 09 now fit (ish) and well 😀

Keep strong and this is the place when it gets a bit too much to have a moan and groan we all know what its like

Tom "Onwards and Upwards"

Dai

We know there is not any choice,
One because at the start no one tells you your options,it is only after a sharp learning curve,it becomes apparent there just might have been better options,but when the word Cancer is mentioned ,with no cure,your just grateful for any treatment.:-/

Most of the European Countries start on Velcade,Looking…[Read more]

Hi Jo
Must admit would give a lot,just to be in a warm place in the Motor Home,but have been told no travelling abroad for 6 months, as they are spending so much money trying to help Slim,I feel we must obey there rules.

Have you any nice trips planned??
Lets just hope that England has a glorious summer,just this second had a small hail stone…[Read more]

Hi Jorge
You are correct,not bad going for a man who considers he is old at 66 years LOL.Eve

Hi Andy
53 is young enough to consider a back to back SCT,So in some ways you are a lucky guy,it is surppose to be very effective at keeping the dreaded MM at bay.I mean lucky in MM and age terms if that makes sense.
Not many people go through 3 treatments in such a short time,at this rate,you will be having SCT in no time.I think why they like…[Read more]

Hi Dai
I can only comment on Zometa,and reading up on it,as Mavis says it,s suppose to help with Myeloma,although I have to say a dentist told us,it is more effective in the first few months!!!:-P
I am not like you Dai,I know I should have confidence in the experts,but it,s not there life,and there views differ so much,,so I will go on…[Read more]

Hi Mari
The long post just makes up for you not posting for awhile:-)

We all have are ups and downs on this rocky journey,some times I feel only the world of myeloma exsit,and then I have to remind myself there are lots of people struggling with different things,so I tell myself to snap out of it and be grateful.(:-) 🙂 🙂 smiley face comes…[Read more]

Hi Jo and Mavis
|Glad to hear,the new Cancer Centre at UCH is good,as both of you say,so much time spent in hospitals!!!
Mavis also glad to see you have escaped,must feel great to be home,the summer will not be long coming,and should help to get you back on your pins.
SS Bradford have come up to scratch,nice to see someone pulling out all the…[Read more]

Hi mari

Last we heard,Stephen was going on Velcade I do not know if I have missed any post,but did the Velcade work,it has worked for Slim and he goes for SCTend of month. If I am correct Stephen did not get a lot of remission last time.!!!!

Hope things are good with you both.Eve