Hi Jorge
Nice to here from you old man,if I called my hubby that he would read me the riot act. LOL
You seem to have God in your life ,so may be he is the only carer you need,you seem to be doing very well on it.Do not right yourself off to soon,people are getting past a 10 year remission and with new drugs in the pipe line,you might live to be…[Read more]

Hi Teresa
Yes Slim goes 23 of this month,after a year on treatment,and septic pneumonia in the middle,been a hard slog to get here.|They say he is fit enough,and he can not be any worst than when he was in ITU for 9 Days and 11 days in general ward,with months after recovering while on treatment.

They will keep him in for at least4 weeks,and…[Read more]

Hi Helen
🙁 I do envy you I know its wrong but it will be at least 7 months from now before we can go out,to the land of the long white cloud,It will be 3 years I have not seen 2 of my grandchildren and when there young they grow up so fast
We talk on Skype,and have kisses and hugs,my computer has never had such affection before.:-)

Helen…[Read more]

Hi Ted
How are you doing its a long time since I have seen post from you,one minute you are going on holiday,then no Ted about.:-)

I hope you remain in smouldering for many years,Love Eve

Great News David 😎 and am sure when you are all worked up at your Home you could visit mine am sure we have lots of stuff that needs fixing Lol

"Onwards and Upwards" My Friend 😀

Hi Helen

My mind is just trying to get round the fact that your Dad must have been a older Dad with a young heart,if your the eldest 🙂

I can see were you are coming from ,specially when you finish chemo and you do not have to go to the hospital as much,you become normal and no one wishes to go backward,but if you were the carer!!!.
Think…[Read more]

Thanks Jet
have been reading up on this for a few weeks sounds very promising,talking about world trials.

Slims managed to get to SCT stage after CTD then Velcade so fingers crossed.
Going to Kings 23 April told 4 to 6 weeks in hospital.

Good luck for the future with your Allo SCT.Eve

Hi Jet
Sorry cannot get the link,are you talking about this new one just coming out of Israel!!!
Cannot get the Dailmail link.
How is life treating you !! Eve

Hi Jet

Great link and I for one would be up for that if I ever need it 😀

Tom "Onwards and Upwards" xxx

Hi David

Well cough's and cold's :-/ I have to admite from having my SCT I have never coughed nor had as many poorly chest's that I can remember :-S and I used to smoke but am sure the gunge that built up in my lungs must have gone by now Lol 😉

But if all I suffer is the bloomin cough and the odd bad chest then am sure I will cope with…[Read more]

Hi Dai
I agree with Janet,none of us knows what is round the corner,on a practical basis,we have tried to sought out our lives so that no one has that burden,but must admit it is now with the knowledge that Slim has MM,.

As for loving someone,I feel love can be painful,but would we be without it,I do feel everything has been worth the last 30…[Read more]

Hi Stephen

I could not reply to you E mail as you do not have an email address on your profile,but thank you for sending me a reply .

Stephen you will not get any quick relieve,everyday you will wake up,and be aware that Dawn is not there.
Min who lost her husband,found by making her world a bit bigger the pain was the same,but easier to…[Read more]

Hi Teresa

Well like Dai, Peter,s pain has been resolved,and as usual the carers have to stand watch and worry,it,s a place we have all been in,you have to ask yourself who you are angry with,the hospital or the hubby.Mine was both,for not taking on board my view.You are the one that shares this burden,sleepless nights,worring that they do too…[Read more]

Hi Dai

Well your last post made me chuckle Lol, am not sure how you could have a "Elegant Sling" you must post a photo :-).

But I am very pleased you are well on the way to being sorted.
I am sure that's what I would miss the driving so your not bad as you can take the sling off to drive, just dont alter the rear veiw mirror.

Its great…[Read more]

Hi Jill

I am pleased your Mum is doing good on the velcade 😀 and i hope it stays that way.

All the best to you and give your Mum a cuddle from me xxxx

Love Tom "Onwards and Upwards" xxx

Aww Dai

You have been Janet's "brave little soldier", and I remember saying it could be "An age Thing" sorry M8:-/ and I know its a strange thing to say but at least you now know its a fracture and I bet your "well being " is better as you now know what you have to fight and you just might get less pain.

Good Luck with the "Coller and cuff"…[Read more]

Hi Helen

I had my SCT in December 09 but I went on sick in May 09:-( I was due to have one but they cancled it after they found out mine was "Reminal" (sorry folks for those word's :-S )

I wanted to go back to work its what kept me going on BAD Days, but all My Consultants and lead Nurses said I shouldn't go back to my work again as its too…[Read more]

Hi Dai

I tend to think its the not knowing with all the anxiety and the inner knowledge,that even though you have MM,you know in yourself that something is not right,but when the experts say your ok,doubting Thomas comes in.
I have to ask what would a X ray have cost 9 weeks ago!!!!.Even if they thought you were wrong,what about your peace of…[Read more]

Hi Helen

I thought every employer had a duty of care,so one can only assume,they are looking to see if your fit or may be a big fat pension.I suppose it depends what your job was and how long you have been off.

I know someone on here worked for the NHS although she returned to work,her general treatment seemed so unfair.i think a few on here…[Read more]

Hi Everyone

I put IMMUCINE vaccine and got all the gen from the net,it does sound promising, they were talking about it going on world trials,so uk may be in with a chance.At the moment it is on trial 3,in the main hospital.

Lets hope there is a good response love Eve