Hi Stephen

I am so sorry to read about your Wife I send My Condolences to you and your Family.

And well done to you all for raising that ammount of money for us all.

Stay Strong and remember the good days

Regards

Tom x

Bloomin heck Dai I bet that was scary :-0 I am pleased Janet was on the ball 😎

I have always been told if I feel Unwell then I should phone the ward up and talk to them and they will make the decision whether to pop up or stay at home, I have used that adout three times so far and it works for us 😎

Hope all goes well for Tomorrow Dai…[Read more]

Hi Bridget
I come out with things all the time,and my kids think I am daft as a brush,I put it down to me being a Liverpudlian ,and my children are Southeners.

They do say I am sounding more like my late mother every day,having three girls I get the last laugh as slowly they are all sounding like me,specially my oldest Ruth who has two…[Read more]

Hi Gina and sister
Lovely to hear from you,and to see you are moving on with your lives,that,s what your mum would have wanted,lets hope this less crying days as as this is also what your mum would want.
I think you feel it more on days like mothers Day and birthdays,the knowledge you can no longer pick up the phone and have a chat.

As you…[Read more]

Hi Stephen

My heart goes out to you,mainly selfish because I know one day I am going to be in the same position as you,I hope that does not seem unkind,why has it taken you so long to find this site,people on hear understand exactly what you are going through,some have already been there,and others are preparing themselves,but hoping there is a…[Read more]

Hi Ian

Swollen ankles,sounds like water retention ,Slims ankles became very swollen on Velcade,had to buy socks with loose fitting at the top.only just managed to fit into his boots,I use to massage his feet and legs which gave him some relieve.
He did not have PN until he finished Velcade,he only has it sometime,s I think it is just a…[Read more]

Hi Teresa

I would say lots of deep breaths are needed,you do not say if you have any support from children or friends,this is a time for some help.even if you can just have a few hours break ,to recharge your batteries.If you just need to chat come on here,someone will all ways reply:-)

Lets hope for some new treatment soon.Love Eve

Morning Mavis

My we are going through the wars 🙁 but going the correct way 😎

I wont be In Chapel today But I will say a prayer for us [u]all[/u] Today and hope that it helps us all am sure today is the day he will listen 🙂

Tell Gordon that you are correct its a temporary loan you are having with the stuff.

Mavis I was on CDT…[Read more]

Hi Dai

I think you have said what a lot of people feel,you see so many people coming on here for advise help or just to explain how they feel,some never to be heard from again,and some just can not cope with the whole process,and as we have both said some who cope for years and then just post. I would not pretend to know why they post and we…[Read more]

Morning Dai

I have had same over the months and told my Consultant and he checked me over and put it down to 1)Old age ((ish)) and 2) just doing too much and he tells me its not MM related so I will go with that. same symptoms as you Dai that bad toothache but in shoulder (right one) and down the arm, if I stretch the arm I get a sharp pain…[Read more]

Hi Gina

Great to hear from you 😀 and am very pleased you are all doing OK 😎 yes am sure the "Crying Days" will get less and less over time, but thats not to say your memory of your Mum will get less you will just remember the good days 😎

Keep going strong, you are doing a great Job

Love and Hugs Tom xxxx

Hi Sarah and Henry

A well done to you both, keep it up and Henry will soon be (near) back to his old self.

Love and Hugs

Tom "Onwards and Upwards" xxxx

Hi Kay

Well am afraid Dai is correct and he keeps his money am sorry to say.

I had my SCT in Dec 2009 and I still get tired and I mean Real Tired.
so a sleep when your body tels you to and not think am all done its been X number of months, take your time an no rush

Good luck with the hair Lol xxx

Love Tom "Onwards and Upwards" xxx

Hi Nicola

I am pleased that your dad had a great send off, over 300 folk now that a big gathering as you say your Dad was a great man and having 300 plus at the wake is a tribute to your Dad.
Keep strong and Good luck with your Fundraising
And Its Ok to carry on through the nite 😀

Love Tom xxxx

Hi Susie

A Warm welcome to this great site, hey am the (one of them) man for the giggles if you need them as for the para thingie bob I aint a clue :-/ if My Doc is smiling then am happy 😎 so al leave all the techie stuff to the others.

Take it one day at a time and as has been said dont do too much rest when your body tells you, and…[Read more]

Hi NeelieAnd Dad

First of all That aint no rant trust me lol, and next a warm welcome into the site that now part belongs to you 😀 pull up a chair and have a seat as its gonna be a long ride am afraid.

Now your dad is confirmed as an MM sufferer am sure it wont be long before they stop his pain and get Dad sorted and into…[Read more]

Yes I agree Dai

Slim never had pn when on Chemo ,but he has it now,people have recommended drinking a glass of milk,plus another thing from boots coco ??????,if the gentleman who recommended it is looking in.I would be grateful for the name again.he said it helps him.

Dai I think its because it,s an anti depressant,Slim was of the same…[Read more]

Hi Neelie

Well I thought my husband was treated badly by his doctor,but I think your dad,s case beats it.the surgery will now bed over backwards and everything will be by the book from now on,you will have to take my word for that.I was lucky I found a young Canadian gp in the practice that listened to me.She is now are designated doctor,plus I…[Read more]

Hi Gill
It does come home to you when you realise children are fighting Cancers as well,My daughter spends an awful lot of time in different hospitals,in and around London,the conditions for care for very sick children needs improving plus it get worst the older you get 14 to 18 year olds are treated on a childrens ward or adult wards. They…[Read more]

Hi Susie
Welcome to the site,by the sounds of it,you are going to find more information from here,than your own doctor told you,did you doctor mention the word Myeloma??????
If you went to the hospital,without any knowledge,it must have felt like a boxers punch knock out!!!!!,its a wonder you managed to take any thing in.

Susie there is a…[Read more]