Hi Dai
As you can see,its early hours of the morning,enjoying a cuppa and watching a program on the Royal Navy,in ST Lucia,if Slims awake so am I:-P

I do not know if this will be of any help,but Slim takes a mild ant depression Amitriptyline 10 mg,it worked wonders for him for a few months,then he had high dose Cyclophosphamide prep for…[Read more]

Hi Everyone
Slim had not had a drink for 17 months as it all taste awful and he was a drinking man,tried on a number of occasions but no go.

Then he tried some port with his cheese and biscuits,loved it.Now an occasional white wine,but still does not like his bitter any more or red wine so all the more for me. lol Eve

Hi Dai

Great Photo's, am sure i started one of those up years ago I now cant remember any names nor password that I might have used Lol (thick or what)

here is your link http://www.flickr.com/photos/43084913@N02/7034899025/in/set-72157629715206275

Hi Andy

Good Luck for this round and am sure Like Ali you will whup its Ass 🙂

As for the drink?? well you had to ask dint you lol. I drank all through My treatment didn't cut down was at it 6 nights a week and drunk a Litre bottle of Vodka per week (well I dint have to get up for work lol)

My Motto is get out and get some in you need…[Read more]

Thanks Eliza

I have one,but I would like to know how you do the picture bit on here the smiley face was great and now the gadget????Love Eve

Hi Everyone
Nice to see you all in a good spirited mood on this beautiful day 1 st of April,it always gives me the feeling that spring is here although its a bit cold outside.Should be a glorious month for the spring flowers.
Hi Jo nice to hear from you,have you been off on holidays again!! will not be long before Helen,s off to NZ should be…[Read more]

Thanks Tom Eliz and Dai
It did take 2 days Tom as the first bloods came in at only 19%,the man next to Slim came in with88%,the first day they got 1.9,so Slim injected him self at 7pm and 7am,that seem to do the trick.4.02 overall .They rang up the same night each time to let us know.which I though was very thoughtful of them.

I have been…[Read more]

Way to Go Slim, thats great news, I also done all mine in one day 🙂

And its about time they sorted the appoitments out to run all in one day, yes Eve its an early start and it will be a long day but worth it:-)

Keep Strong you two and hope it aint long now.

Love and (((hugs)))

Tom "Onwards and Upwards" xxxx

Hi David

All good news,must admit was getting a bit worried as you seem to be putting your house in order,I suppose this Myeloma lives with us all the time,and its presents is felt when the time comes to see the consultants.!!!

So what have you planned another cruise,or just a good summer in good old blighty.???
What ever is just enjoy.love Eve

Hi Steph

Welcome as a carer you will have different concerns so i hope this site gives you some in sight,any time your worried or just need a bit of a boost it is worth coming on,so do not be a stranger,this myeloma affects people in different ways this is why they say its such an individual illness.

It is hard at first because you are…[Read more]

Drum Roll :::::: A Well Done That Man 😎

Well Done David am pleased you have sailed through it, keep it up M8 and you can lay off that box for a bit aint no rush to finish it 😀

Tom "Onwards and Upwards" x

Hi Andy

Well you have some stubborn pp's aint you?

I hope you soon get the pesky things sorted asapget in and get that SCT underway, you know amsending you great vibes for it all to happen, hang in there Andy its an uphill struggle but you will do it:-)

Tom "Onwards and Upwards" x

Hi Mavis
The things you do,to land your self in hospital,I hope they are waiting on you hand and foot,LOL only joking it,s a scary time for you,but the good news no compression on the spine,that must be a huge relief for you,you are in the best place as the main thing is to get you a good pain relieve,plus get you on your pins.

It amazes me…[Read more]

Hi Andy
Sorry to here your news,this just might be some help to you!!!!

In the under fifty ,s there is a chap called Mike Barker who,if i am correct has SCT when his PP were high,again if i read about it correctly,he decided with his consultant to go ahead with SCT.
It might be worth checking his post!!! I do not think he has posted for some…[Read more]

Hi Steph

A Warm Welcome to the group, am sure you know by now that this "Mob" will help you get out of any Low Ebb that the MM has and will cause you and Andy to have we tell them to keep chin up (chins in my case)

As you know we tell people carers and MM'ers to take it one day at a time.

Not forgetting to rant and rave on here if the…[Read more]

Now Mavis look what you have gone and done? I leave you for a few days and you go and throw yourself in the Hospital :-0.

But seriously I am so sory to hear that you have done a decline, but trust me Girl you are one that will throw that rope up high and drag yourself back up to top form (well mm top form) again.

You are in the correct place…[Read more]

Hi Terry

I also have been sat at a window when the sun has been throwing itself and its heat straight at me an had a "Snugglr Blanket" "other brands are aslo available lol) wrapped around me. yes i have (and still do) used a thermal vest in cold days (works a treat) as i cant see any point of feeling cold when you can buy borrow or nick( please…[Read more]

Jean

I am so pleased that the day went well and the service was what Derick would have wanted.

Take Care and am sending (((Hugs))))

Love and Hugs

Tom xxx

Hi Ian

Well done M8 am pleased that all is going well for you 🙂 and am sure the side effects will get better as time moves on.

I never (touching wood) never suffered with GVHD? and if i did then I didn't know about it 🙂 you do right keeping fit and away from the hospital, Long may it continue 🙂
Thanks for the Good News Ian it's…[Read more]