eve replied to the topic Joined the forum @ 1:00am. in the forum Newcomers 13 years, 12 months ago
Hi Andy
Again welcome to the site
My name is Eve and I am a carer to my husband,I use to be a 3am person,but things have got a lot better,and my husband took my advice about seeing the doctor and taking an extra pill,to try and get some normality in are life.
He now takes a light ant depression tablet which makes his body relax so sleeps all…[Read more]
tom replied to the topic Treatment Free 🙂 in the forum Treatment 13 years, 12 months ago
Thanks Kay and yes I do hope it helps to hear good news also I am sure more and More folks will be soon Joining me on the "Treatment Free" Regime.
Love Tom "Onwards and Upwards" xxxxx
tom replied to the topic Joined the forum @ 1:00am. in the forum Newcomers 13 years, 12 months ago
Hi Andy
A warm welcome to this warm Site and am sure as you have read a bit you will already know that we have some great folk on here.
Enjoy and ask and tell away, good luck with your road to remission
Tom "Onwards and Upwards"
tom replied to the topic Missed out… but looking ahead. in the forum Treatment 13 years, 12 months ago
Hi Dai
What a devil that is am sorry to hear that, wonder how Ill you need to be before ur "P" starts to show MM :-/ anyway Dai whatever they throw at you am sure you will cope with it and the bloody side effects.
Tom "Onwards and Upwards"
tom replied to the topic Moving at last in the forum General 13 years, 12 months ago
Hi Eve
Posted on my face book? cant find it dont know where you posteandnd av tried to find you and cant 🙁 wot name are you under ?
And I cant wait to be your Friend xxx
ps wot name do you go under and do you have a photo ?? xxx
eve replied to the topic Moving at last in the forum General 13 years, 12 months ago
Hi Bridget and Helen
Bridget I do not know if they do accomodation,but I will ask,I have been told its the main trauma hospital in London,deals with anything bad that,s going down,The easiest solution would be go in one day have test then come out after 2 days of test,I am lucky I have a daughter who lives in Sevenoaks,but last time she…[Read more]
eve replied to the topic Moving at last in the forum General 13 years, 12 months ago
Hi Mavis and Tom
thank you for your good wishers.Tom I posted on your face book,don,t you want to be my friend:-( 🙁 🙁
Hi Bridget
Although I originally come from Liverpool,I am a country bumpkin at heart,so London was a bit daunting,Just cannot see Slim coping well with train,all though easier option,last time we went my daughter took…[Read more]
tom replied to the topic Moving at last in the forum General 13 years, 12 months ago
Hellow Eve and Slim
Well am pleased (if you and Slim are pleased) for my Penny's worth for me I am pleased I did the SCT. Good Luck with it all cant offer advice re train or car sorry 🙁
Love to you Both
Tom "Onwards and Upwards" xxxxx
eve started the topic Moving at last. in the forum General 13 years, 12 months ago
Hello Everybody
At last thing are moving,after Christmas Slim was told Myeloma in the bone marrow was less than 5%,so SCT to be next step,after appointment at Kings,we were waiting on dates for test after phoning today we now have 5 appointments during March and April,then it looks if SCT in May if everything is ok and Slim decides if this is…[Read more]
tom replied to the topic Treatment Free 🙂 in the forum Treatment 13 years, 12 months ago
Hi Liz and Kev
Yep treatment free now its been a while but well worth the wait, and we also say Long may it last 😎
Love Tom "Onwards and Upwards" xx
eve replied to the topic New comer to site in the forum Newcomers 13 years, 12 months ago
Hello Alan and Dave
Welcome to the site.
Dave pp levels at 6,it just might be a blip,Jo on here had food poisoning and her levels went up,only to go down again when she was better,its going to be a hard 6 weeks waiting for next blood test.As to new treatments as Gill said lots in the pipe line,
Alan there are lots of people who had SCT on…[Read more]
tom replied to the topic Advice required in the forum General 13 years, 12 months ago
Hi Dai
I also have a poor right arm and am sure its not linked to my MM and as Eve says its the ammount of pint glasses I pick up lol, I understand your feelings about geting it checked out.
Good Luck on your "D" Day hope all goes well
And you also enjoy your Sunday 😎
Tom "Onwards and Upwards"
tom replied to the topic Advice required in the forum General 13 years, 12 months ago
Ok Ok Ok Eve you know me as much as My Young Bride (Elaine) its a couple of pints these days dont drink as much as I used to ;-( but the Vodka is OK 🙂
Love iccle ole Me "Onwards and Upwards" xxx
tom replied to the topic Treatment Free 🙂 in the forum Treatment 13 years, 12 months ago
Thanks Eliz, and am sure it will be "Onwards and Upwards" xxxx
eve replied to the topic Starting Chemo in the forum Treatment 13 years, 12 months ago
Hi Tina
No,no break,if your on intensive pathway,if you have bad side effects they can reduce dose,4 days of dex is very full on.If you have problems please mention them .At least you will only go to hospital for bloods,tablets and Zometa,if you hospital is well organised should be able to do it in 1 trip.
Try not to worry everything will fall…[Read more]
eve replied to the topic Advice required in the forum General 13 years, 12 months ago
Hi Everyone
Come on Tom admit it right arm pain,how many pints do you have to lift until pain starts!!!LOL
Slims pain started in his back when x,ray came back had an old brake plus new brakes,told would heal in 3 months,6 months down the line diagnosed with MM.
Only went to doctor,s because I nagged him!!!!
My advice is go to your own…[Read more]
tom replied to the topic Treatment Free 🙂 in the forum Treatment 13 years, 12 months ago
Hi Helen you and i also lol, thanks for your best wishes 😀
Hi Gill and that it is wonderful news I and my young Bride Family and Freinds Cant smile wide enough 😎
Hi Phil yep am up for that Long may it last and be trouble free 😀 and al do my best to stay safe 😀
Love to you all
Tom "Onwards and Upwards" xx
eve replied to the topic week of firsts in the forum End of Life and Grief 13 years, 12 months ago
Hi Min
I feel like Gill,but I am also very proud of you,you have picked yourself up and started to find a new life,as David says we all know what the future has in store,but you are just showing it can be done.
I cannot find you on facebook Min,I would like to keep in touch,I will all ways be grateful for all your help with Slim,you kept me…[Read more]
tom replied to the topic Advice required in the forum General 13 years, 12 months ago
Hi Jean and frank
Well thats good then as I have a problem with my right arm and its nothing to do with MM its just that I have strained it too many times, I never learn when i need to just get that bit closer rather than trying to stretch my arm I should move closer or move the Table.
Good Luck when you see the consultant
Love
Tom…[Read more]
tom replied to the topic New comer to site in the forum Newcomers 13 years, 12 months ago
Hi Dave
Yes I try to go on and answer a newcomer as soon as poss as i know when I first found out I had MM and posted here and other places it was the waiting for a reply that I found frought :-S so even if I dont know the answer i feel beeter just to say Hi.
Good Luck on your road to Remission Dave.
Tom "Onwards and Upwards"