MANDY PHILLIPS

  • eve replied to the topic Newcomer in the forum Carers 14 years, 1 month ago

    Hi Michele

    I can relate to your problem,as we are in the same position,at last we have remission,and waiting on Kings to see if my husband is suitable for SCT,his consultant says although very fit has had pneumonia which has damaged his lungs,so feels it might not be in his interest,but has told us to go to kings,they are the experts,so we…[Read more]

  • tom replied to the topic 1 year on ……… in the forum General 14 years, 1 month ago

    Hi Clara

    Great to hear from you and am pleased your Dad is doing great 😀

    is your Dad due to or had a Stem Cell transplant?, and its great to read you are another "Onwards and Upwards" Family 😎 its the best way.

    Keep in Touch and give your Dad my Regards and a well done hand shake please 😎

    Love Tom "Onwards and Upwards" as…[Read more]

  • eve replied to the topic New and confused in the forum Under 50s 14 years, 1 month ago

    Hi Bridget
    Do not understand it myself LOL loosing the plot I think:-P Eve

  • eve replied to the topic Treatment another good in the forum Treatment 14 years, 1 month ago

    Hi Gill

    Gill you should never feel like that,this is when you need this site the most,because it,s hard to talk to family about it,and most of us carers have earned are stripes with DEX.:-/

    I am able to say to Slim is it the DEX talking or Slim and he does calm down,its a bit harder in public ,when he makes a remark that,s uncalled fore. I…[Read more]

  • eve replied to the topic New and confused in the forum Under 50s 14 years, 1 month ago

    hi Everyone
    Can some one tell me what has Gary O Brien??????? Eve

  • Hi Helen and John

    Gosh what a job they made of the BMB, I have been very Lucky with the Nurses and Dr that did mine, ye I knew I had it but could drive home and even went to work the morning after my first one :-0 yep it hurt but hey ho it has to be done 😀

    And gong back to the shaver I had to get one when I had my Transplant so I did not…[Read more]

  • tom replied to the topic A very merry dex – mas! in the forum Treatment 14 years, 1 month ago

    Hi Mari and Steve

    You are more than welcome and am pleased Steve is better.

    I know how Steve feels liking the beer but it does bloat you up with the treatment and I found Vodka was better for me or the odd bottle 😀 of red workes for me also.

    I do my Vodka with Lemonade but only a little bot of lemonade 😀 and a good glas of vodka…[Read more]

  • Hi Heather

    Great to read you are More positive again.

    As for exersice I love a walk and bought myself a new Bike (i know i spoil myself:-D ) and my Dr said it was Ok as long as I dint do mountain climbing with it lol.

    Take care and Keep fit

    Love Tom "Onwards and Upwards" xxx

  • tom replied to the topic REMISSION. in the forum General 14 years, 1 month ago

    Hi Eve and Slim

    Well as you know I am in remission and only have Zometa every four weeks, but thats not to say I am back to my normal self (even if i knew what normal is/was)

    Had SCT in Dec 09 Back to work May 2010 and still working (well clocking on lol)

    I had to get some sleepy Tabs to help me to have a half decent nights sleep and…[Read more]

  • tom replied to the topic Grief in the forum End of Life and Grief 14 years, 1 month ago

    Hi Chrissie

    Iam so sorry to hear about David its such a shame to lose some one to this Bloody MM.

    Please dont beat yourself up over wether you should or should not have started the treatment as you know David was a fighter and wanted to do his best to beat it.

    Love and Hugs

    Tom xxxx

  • eve replied to the topic Grief in the forum End of Life and Grief 14 years, 1 month ago

    Hi Chrissie
    I am so sorry for your loss,I am also awake in the early hours wondering what the future holds,we never know what to do for the best, you just try to do your best and try to remain positive.

    People who have been through the same thing will reply to you,and try to help you get through this awful time,just try to remain positive,and…[Read more]

  • eve replied to the topic REMISSION. in the forum General 14 years, 1 month ago

    Thank you everyone for your good wishers and advice on SCT.

    Still waiting on letter from Kings.!!!

    Slim stopped Chemo a week before Christmas and has not been well since,it started on Christmas day,and has gradually got worst,on his last blood test on the 28th his kidney level functions were just starting to rise,so more blood test this…[Read more]

  • tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 14 years, 1 month ago

    Hi Kay

    Aww Bless If its not one thing its another 🙁 Gout is pretty painful or so am told? heres me thinking you could only get gout in your Big Toe :-S yep am a numpty of the first order:-/

    Hope The Tabs work untill all bloods are checked.

    Love and cyber hugs

    Tom xxxx

  • tom replied to the topic headaches in the forum Side-effects 14 years, 1 month ago

    Hi Sarah and Henry

    Sorry but I have never suffered headaches, I hope Henry soon gets them sorted.

    Tom "Onwards and Upwards" xxxx

  • tom replied to the topic A very merry dex – mas! in the forum Treatment 14 years, 1 month ago

    Hi Mari and Steve

    Well am pleased that Steve could drink on the combination of drugs and to be honest I never asked if I could :-0 Just thought if I shouldn't then they would have told me he he so it was out with the Vodka and red wine 😎 and here I sit in remission so it dint do me any harm 😎

    Hope Steve's ear is soon better and back on…[Read more]

  • Hi Helen and John

    I have never heard of the link between them both, just popped in to wish you both well.

    Tom "Onwards and Upwards" xxxx

  • tom replied to the topic The Holiday Is Over in the forum Treatment 14 years, 1 month ago

    Hi Bridget

    And al tell you you done more than me i am not sure where our washing machine is lol.

    I know that whatever this MM throws at you you will thrash it

    Lost of hugs and Love ((())

    Tom "Onwards and Upwards" xxxxxx

  • tom replied to the topic Velacade in the forum Treatment 14 years, 1 month ago

    Hi Nicola,Micky and the "Dick Head"

    Love the name your Dad gave it lol, and am pleased you Micky are having a bit of a treatment rest we all need one or two of those in the fight of the "Dick Head" (could be a film name that lmao)

    Wish I lived near you all as that bowl of trifle sounds great (aint had that for years and years)…[Read more]

  • tom replied to the topic FAILED SCT I THINK!!!! in the forum Treatment 14 years, 1 month ago

    Hi Kay

    What a roller coaster for you 🙁 and isn't it great to be told you have rheumatoid arthritis 😀 well it is better than bloomin MM in our bones 😎 and Kay if your pleased am pleased good luck 😀

    Love Tom "Onwards and Upwards" xxx

  • Hi Dai and Janet

    Sorry to read about your loss of remission (just a temporarily loss am sure)and Dont worry Janet we all know that Dai can do it:-D

    If anyone can do it your the man 😎 I know how you feel when you see your consultant looking at the screen and you notice the odd twitching.

    I hope you get the treatment you like and am…[Read more]

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