Hi Everyone

Its now 2012,time goes so slowly when your young,but as the years pass they seem to fly,so my word has to be

YEARLY I know it leaves RLY

But it seemed to fit into the new year. Eve

Hi Dai

Just been looking at a site about the trials,sounds very interesting you better hurry up with that 24 hr bottle,as I got the impression that it,s only 700 per country.
Those big bottles get heavy,cannot tell you how many Slim has filled plus they are heavy to carry any distance,so as well as the brown bag it pays to use a couple of…[Read more]

Hi David

Just watched the video,it does bring home about lack of wards for seriously ill teenagers,as you know,my grandson who has CP spends a lot of time in hospitals,last time because he is now 16,he was put on an adult ward,one side an old man coughing phlegm all night,and on the other side,a man making the most fowl smells,with my daughter…[Read more]

Hi Sarah

Just looking in ,could not help with headaches ,but hope the consultant helped on the last visit.Eve

Hi Amelie

Am sure you know I had a successfull sct in December 2009 and am still in remission 😀

But yes I have pain right ribs and Hips bu I have put that down to "Old age" and hard work over the years putting a strain on iccle ole me :-/ and My Dr has confirmed that the MM is not back 😎 and I might be wrong but dont levels go up and…[Read more]

Dai My Condolences to you and Yvonne's family at this sad Time.

I also have seen friends pass away with Cancer that was diagnosed after I was its such a sad time.

Hope you are keeping well and Take care.

Tom x

Hi Gina
What is a fright night ????

Glad to see you are getting on with your lives,it,s hard but it is what your mum would have wished,remember you have good memories there,and that is important,i found the worst thing in the early years was wanting to pick up the phone to tell my mum some news,that,s what I found hard.

But life goes on,and…[Read more]

Hi Graham

good Luck for Thursdayay 😀

As for symptoms well I went to my GP for what I described as if somebody had rolled up a towel and pushed it under my Lower rib(left side) I was told it was either a pulled muscle or a bruised rib? and that as they say is the start 😎 Once again Graham all the best for thursday

Tom "Onwards and…[Read more]

Hi Dai

So sorry to hear your news.All your hopes built up then crashing down again,this is what we felt when Slim was on CTD one minute on are way to remission with kappa light chains at 10,bone marrow taken for trials only to be told when we saw consultant,that he was shocked to find it had gone up to 80% in bones although kappa light chains…[Read more]

Hi Michelle

Just thought I would post and see how you are both doing? I hope Hubby is still staying strong.

Sending Hugs and Love

Tom ((())) xxxx

Hi Gina

I for one am doing great Thank you for asking 😀 I hope you and your lovely Family are doing good? and hope the new hubby is doing as he is told (like me lol)

I know you will still miss your Mum as I do mine, My Mum "Mary Doll" was not aware I had MM before she passed away I/we did not feel the need to cause her more…[Read more]

Hi Micky and Nicola

Its Good to have a name for your Dad 😀

I hope you remember that you need to have some space to yourself rather than all MM problems that way you can help Micky better 😎

As for the Fund-Raising I myself have never tried it :-S and admire those that can do it 😎

Catcha Lata say Hi to Micky for me 😀

Love…[Read more]

Hi Nicola

Am pleased your Dad (am sure he has a name lol) is feeling Perky as Perky is Good 🙂

Tell your Dad from me Work aint all that you know 🙂 But I know how he feels I needed to get back to work to prove to Myself that am fit and healthy (now i should be so lucky he he) and now I feel as if I am near ready for packing it all in…[Read more]

Well done those Tabs thats great news Nicola am sure in a few days your Dad will feel much better:-D

What your Dad said during his extreme discomfort and pain am sure when all has settled he will want to fight it all the way, your dad sounds like a fighter that was just a little punch drunk, now soon he will be putting on his gloves to fight…[Read more]

Hi May

And a warm welcome to the group. Sorry to hear about your Mum.

Its a worry when the treatment fails But there is a lot out their that will work its trying to find out what and when it will work. I tell Elaine (my young bride) when its time to sort things out the Dr will tell us just let them sort out all hiccups as we travel the road…[Read more]

Thanks Everyone
For all your support,It is such good news,which has taken a long time to get to this point,but it is lovely to be here,sound a bit stupid,but at times just could not see the light at the end of the tunnel,so its good,good and even better.;-) 😎 🙂

I cannot help thinking about some people who are not posting like Sharon who…[Read more]

Hi Glenn
I originally am a scoucer,so I know that Clatterbridge from the start has all ways been a designated Cancer hospital,so you are in good hands.

Slims on the Velcade with Dex and Cyclophosphanide. VDC for short,as you progress with Zometa you will find you can do more things,iam all ways nagging Slim about doing to much,his answer is I…[Read more]

Hi Glenn

As for pain? well I have a bit of pain but am sure it isn't down to the myeloma :-S might be just old age as all my bloods (well thats what the tell me) are Ok, only effects I had with the Zometa was a flu like symptom for a few days after getting it infused :-/

I also have a very supportive Family three grown up sons and soon to…[Read more]

Hi Nicola

I do hope your Dad is soon sorted I for one could not poo for some time when having treatment and its one of the worse things that hit me while under treatment, I hope its soon sorted.

Love and Hugs

Tom xxx

Hi Glen

I wish you well in this journey I was told in jan 09 I had MM went on 5 courses of CDT (done ok ish with it) and had to pack in work due to being tired and weak had SCT in December 09 went back to work on light dutie's and all the treatment i am having now is Zometa infusions every four weeks 😀 and when that stops (soon I hope) then…[Read more]