Hi Sarah and Henry

Sory you had to join this Band of folk, but you have done the correct thingthe folk on here are a great help with words of comfort, advice and of course the well used "Cyber Hug"

I had 5 cycles of CTD leading up to my Transplant in Dec 2009.

The SCT was Ok, Not a walk in the park but OK, I found all the treatment Pain…[Read more]

Hi Everyone
First to Helen,make sure you do that trip.wonderful country,we spent three months there mainly to see family but did spend 3 weeks travelling in motorhome,from Christchurch to Auckland,one thing MM makes you realise is never put of doing things you want to do.:-)
Caro,hi have a friend in Hamilton,scouser who moved there years ago,its…[Read more]

Hi Gina

I am Pleased your Mum is in better spirits now and also pleased you have unlimited visiting to your Mum.

Good Luck for Monday and hope all moves go smooth.

Love and Hugs to you all (((()))

Tom xxx

Morning Glyn and Hubby

Gosh Glyn you were late in bed or an early riser looking at the time you posted 😀

Thanks for the Info on Hubby's route so far, he was lucky the Dr spotted it early as for the ups and down when in treatment think we all have that:-( always wondered why something they give you to make you better makes you Ill:-S but…[Read more]

Hi Jo

Sorry to see your on the BIG Anti B's 🙁 but we know they will kick its A S S) (now lets see if i got away with that one Lol)

You will soon be better and forget all about the Anti B's

We are doing great just got a iccle cold of Baby Max 🙁 just hope i dont get his conjunctivitis :-/ but looking good so far (no pun intended He…[Read more]

Hi Glynis

A warm welcome to the site to you and your good Husband. I wish you a good journey on this MM trip to remission (and it gets their)

Love and Huhs (())))

Tom "Onwards and Upwards" xxxx

Dear Gina

Am so sorry your Mum has been found with the chest and lung tumors, much Love and Hugs sent to you all (()))

Tom xxx

Hi Glyn
Just to say welcome from one carer to another,hubby seems to be doing very well,and long may it continue.
Good to hear good news and know there are people out there that are getting such good results,it does give the rest of us,such a boost.:-)

Hope you keep posting and let us know how it goes.Eve

Hi Gina

So Sorry to hear your news about your mum,no matter if you were expecting it,it still hits you,I do know how hard it must be for you and your sister,I hope you get your mum home soon.

Try to be strong for your mum she may have a reasonable time left,you and your sister and your mum can make the best of the coming months.
Love Eve

Hi Everyone
Sorry not in a position to comment,but I do know that in boots they do a solution called polytar ,not sure if it,s correct spelling cost £4 it is very good for people who have itchy skin,at £4 might be worth a try. Eve

Hi Ted am plesed you had a great time with the family, am not sure what you need to ask ur Doc but good Luck

Tom "Onwards and Upwards"

Well it is faster on this one he he.8-)

Hi
I play scrabble with my daughters,the one in nz is whipping me some thing awful at the moment,we do it over a period of days,

how about ARRANGEMENT

I leave you with ENT

Love Eve:-)

And one that needs to be kept going He he

How are you doing Ted? hope all is well with you and your Grandkids 😎

Tom "Onwards and Upwards" 😀

Ye Ted I would ask Why I should stop the Longest thread On Myeloma Uk, am sure we should keep that one going strong?
Well am off to add to it now Lol

Tom "Onwards and Upwards" and wanting to keep the longest thread going 😀

Hi Gina.
So sorry to hear about your mum,you and your sister must be very worried,I can understand you not telling your mum until you know if its new cancer.
It does not sound good if its hit main organs,try to keep positive there is so much they can do these days,have they tested for this before,because she has been having lung problems for…[Read more]

Hi John
Good news for you both,Our hospital is still talking about it,do not know if Slim will have it as on MYeloma trials,have to wait and see.:-P

We asked about it sometime ago,its going to be a tummy job,we asked could it be done like clexane,so we could self administer no such luck.

Glad to know you are both fine,look forward to…[Read more]

Hi Sarah and Jenny
Just popped in to say welcome to the club.As you can see there are lots of people and carers who are ahead of you on this journey.

My advice to you is take it a day at a time,it,s a long journey both of you are on as patient and carer,so my advice to you both,is it,s a journey were some people do well and get of the bus…[Read more]

Hi Jenny

Am sure you will sail through the SCT, wont lie to you though its not a walk in the park (but pretty close) we are all different in our response to the different treatments for the MM, But as I had a SCT in Dec 2009 and am now still in remission I would go through it all again if need be:-)

Am Pleased you have good family support…[Read more]