MANDY PHILLIPS

  • Hi All
    Nice simply one
    STICK

    ICK next love Eve

  • Hi Min
    I can just see Daisy telling everyone about you wetting yourself,LOL,You made my day,
    The dogs will get you out of the bed in the mornings,just take it a day at a time.Love Eve

  • Hi Clare
    You must be worried after 6 courses of CTD then a rise in light chains,best to ring hospital tell them your worries,you will be able to see your dads consultant early.

    Slim had 6 cycles of CTD seems to be on path for remission,when they took bone marrow found MM had gone up,but light chains were down:-S,left us shocked,spoke to nurse…[Read more]

  • eve replied to the topic WEDDING ANIVERSERY in the forum Off topic 14 years, 4 months ago

    Hi Jo
    Well come on tell us,did he wine and dine you!!:-)
    As much as i love Slim he cannot even remember my birthday with out my daughters telling him,so not holding much hope for first wedding aniversery.

    Saying that he did buy me a bunch of flowers twice in thirty years not bad,and not from a garage forecourt,sainsbury,s more up market…[Read more]

  • eve replied to the topic Not Good News in the forum Carers 14 years, 4 months ago

    Well said Mavis I agree,Eve

  • eve replied to the topic Us who get left behind in the forum Off topic 14 years, 4 months ago

    Hi Roz
    Sorry if i got it wrong,I know how hard it can be to live alone,specially at weekends,the door shuts on friday and thats it till Monday .
    I am not very good at explaining myself,I myself have my own isolation,because I am deaf,I am suppose to were hearing aids,but I hate them,so it,s not so much physical as mental isolation that I was…[Read more]

  • eve replied to the topic New to Forum in the forum Newcomers 14 years, 4 months ago

    HI Etta
    Mind blowing,but do not worry you are not alone,Slim my husband did 6 cycles of ctd and there are lots more people on this site just like you.
    Love Eve

  • eve replied to the topic Big dog in the forum Off topic 14 years, 4 months ago

    Hi Gill
    No not that good looking LOL:-P
    Tried reducing pictures but not having much luck,eldest daughter tried,she could not do it.
    But at least i have managed to get a photo up,no way am I going to put one up of me that close up LOL,its bad enough looking in the mirror.:-D
    Love Eve

  • eve replied to the topic Velcade Cycle 6 in the forum Treatment 14 years, 4 months ago

    Hi Dai
    here,s to today a new day,and Velcade 7,good luck.
    Love Eve

  • eve replied to the topic WE need to pass the word! in the forum General 14 years, 4 months ago

    Hi Mike
    In full agreement with you,think its very important for MM people with no siblings,but were do you start,even I do not know the basic and I try to keep myself well informed.
    So the people without MM it must not even cross there minds.
    Would take Myeloma UK to start information on this one.Regard Eve

  • eve replied to the topic another 3 months in the forum General 14 years, 4 months ago

    Hi David
    Wonderful news,I hope you have a couple of holidays planned,and enjoy this new found freedom,no visit to hospital until end of year that in it,s self would have me dancing . love Eve

  • eve replied to the topic New to Forum in the forum Newcomers 14 years, 4 months ago

    Hi Etta
    Welcome to the site,and to your journey,one that no one wants to be on,but we are,Yes it is all a bit mind blowing,so much to take in and learn it will get easier as time goes on,treat it like a big learn ing curve, any questions ask away,

    You do not say what chemo you are on,and it can effect you!!
    You should have some sickness pills…[Read more]

  • Hi Terry
    All the chemo differ in how you take it right across the country except if you are a part of a trial,Slim is on Myeloma M1 trials.So it is closely monited and you basically cannot divert treatment.so now on CVD.

    Peter had a course of Velcade and then 3 years remission and still going strong.
    Slim is doing full 8cycles as light chain…[Read more]

  • tom replied to the topic Some good news! in the forum General 14 years, 4 months ago

    Hi Liz and Kev

    Well I wonder why the Hickmen Line? I had a femerol line when I had my Harvest and SCT am told its less invasive and less likely to get an infection in it???

    But when I have my Four Weekly Zometa it is like "Chase the tube" lol and yep Angie gets the "Hot Towel" for my hand but its not working all the time (but it feels…[Read more]

  • And a Good evening to you Bridget:-D

    And am I pleased your pain has gone 😀 gosh I wish i could hug you ((())) bless that R/T 😎

    And hey we can cope with the tiredness and NO pain 😀 and long may it continue.

    Elaine and I are doing great in this weather And I Love it::: dont know about anyone else but::: prior to me having MM I…[Read more]

  • tom replied to the topic another 3 months in the forum General 14 years, 4 months ago

    hey up Ted (a northern saying)

    I am sure that we as MM badge wearers none of us know what will is going to happen as the bLo**ming MM throws a bit of a curve and throws it all out :-S

    Regards

    Tom "Onwards and Upwards" 🙂

  • Hi Terry

    May I be one of many to welcome you to this great site:-D but sorry to see you here:-(

    Reading your post am sure you will sail through it all and a lot of it as you know is S**t :-/

    Me I had lots of CDT and a SCT (December 09) and am doing great only on Zometa now 😎

    Good Luck Terry

    Tom "Onwards and Upwards" x

  • eve replied to the topic Us who get left behind in the forum Off topic 14 years, 4 months ago

    Hi Roz
    I have only just seen this post,and as you know I am not in your position,so in truth cannot begin to understand,loosing my partner through death,although i do know that this will happen in the future.:-( I always thought it was that I would go first.because Slim until now was the healthy one with good genes,just shows how wrong one can…[Read more]

  • eve replied to the topic What do you think? in the forum Off topic 14 years, 4 months ago

    Hi min
    Who,s ears?if big Slims if small mine,having trouble reducing size of photo,tried putting one of Slim and me on,so thats the ears and fence LOL,my dog is better looking.Love Eve

  • eve started the topic Big dog. in the forum Off topic 14 years, 4 months ago

    Hi Everybody
    Failed miserable to get photo up in Size,cannot change size,so you will have to settle for 2 eyes and a wet nose that belong to my dog.Will keep practising .He is cute love him to bits.Eve

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