Hi Dai
How did the holiday go,plus the weather,must have just been nice to get away from treatment for awhile:-/
Soon passes it seems like yesterday you were saying about starting Velcade,Slims just finished second cycle,wish we had your turn round for bloods and Velcade,we do it in 2 trips.60miles all together.:-S 😛 Tried staying around…[Read more]

Hi Graham,
My first thoughts on reading your post,your 2005 and relapse 2010,and wondered how you have managed to cope with this all this time,family and friends are good,but its people on the same journey who understand.:-)
You are further on your journey,than my husband,but I can see you are going to be a great asset to this site,and I hope in…[Read more]

Hi Graham
Sorry you had to join us, but you have joined a great band of folk that throws Humor and commonsense into the threads 😀

Hope your count soon picks up and you get a great harvest.

Tom "Onwards and Upwards" 🙂

Hi Everybody

NOTIFY

My word for today IFY Eve

Hi Paul
My husband is on the MX1 trials,he got CDT side,6 cycles intensive pathway,some advice I can give you,is high dose DEX does disguise any infections,low blood pressure was the start of Slims,not even picked up in A&E,so do take care.Septic pneumonia has cost him the chance of going for SCT.
Now on Velcade as no bench markers to judge how…[Read more]

Well Nettie

You have more oo than I lol, Mad? No I dont think you are Brave? Yes I think thats the one 🙂

Good Luck.

Love

"Tom Onwards (and just for this thread) and downwards" xxx

Hi Jo
Thanks for the information,will ring and find out how late I can book it,and check about parking.If problems with parking Slim will not be able to come,as he cannot walk or stand for any length of time.
Also not sure how he will be,1 week of 4 cycle,has hospital on Friday,I might go on my own,It is easier to go by train then tube,but there…[Read more]

Hi Dai
4.21 am,and your creative demons,are all around you,to be able to express living and death in such a powerful way is a wonderful gift ,I think you have expressed my thoughts on life ,but put it in a nicer way than I can:-)
May be they are not demons but angels,your not ready to jump on the cloud yet.

When I read this my thoughts turned…[Read more]

Hi Helen

Its only some time that it still leaves a "Pencil Tash" other time its Normal.

And Yes I had a sore mouth but was nearly all cleared up about two weeks a month after SCT:-( which in itself wasn't that good but was still off my food and that helped.

as for the hair loss all I had left was my Eyelashes and that was it :-0…[Read more]

Your More than welcome Alexis, and you can Tell John I also am too shy :-0 to post (aint i fellow members )
And when you get to the "who the heck are you" just nip in and let me know who i am lol.

Tom "Onwards and Upwardfs" xxx

Hi Everyone

How about HENCEFORTH A word not spoken very much but used a lot in letters.

RTH
Eve

Hi Gill
Just to wish you and Stephen good luck,hope every thing goes to plan,and you can have a bit of a rest soon,have noticed you are another one,who burns the midnight oil,terrible when sleep will just not come:-(
The rugby has taken over from the post on here a little bit,I enjoy the solitude of the early hours,If I want to feel a bit sorry…[Read more]

Hi Gina
Glad you and your sister enjoyed the info day:-)It helps i think when you meet people who have been living with MM a log time,it gives you a lot of hope,and on bad days,you can think its just a slight hiccup,and tomorrow will be better;-)
My nearest info day will be London next year,and nearest support group is over 60 miles away, that,s…[Read more]

Hi Aileen

And a warm welcome from iccle ole me 😀 and as for not knowing type you have joint me as I aint a clue what type i have and i have had it since 2009:-0
But am gonna find out next time i see my Dr? in about three months I think :-S

Good Luck with your treatment.

Hugs

Tom "Onwards and Upwards" xxx

Hi Deb's

As you know I am a fiar few months Post sct and as for hair growth (and am sure you wont have this problem) facial hair? if I dont shave for a day or two I get a Pencil tash ? seem to have a line of "None Growth" around the mouth and chin? but am nearly used to it by now? so will let it grow as it comes 😎

Tom xx

Thanks Gina am doing "Spot On" thanks 😎 some weeks i dont know I have MM 😀 then the iccle devil pops up and tells me am "Tired" :-S but hey ho thats MM for you :-0

Tom "Onwards and Upwards" xx

Hi Gina
Thanks for the post 😀 pleased you had a great day (bet it was a long day)
as for me I aint been to one yet? (my fault).

Love
Tom "Onwards and Upwards" xxx

Hello Alexis and John

A warm welcome to the site one that you and John will find a great help as you go down the road of MM.

No need to sign up just post add to other posts or make your own post and do your bio, I for one would love to read it.
Folk on here are like the info line as they help,comfort and support each other in their good and…[Read more]

Hi Alexis
My name is Eve welcome to the club,i never introduced myself officially,just,joined in,Then some one put on a thread"Who the Heck are you" think you will find it in Off Topic just scroll down.I came out on that no reason it cannot be updated on.:-)
So good luck,By the way i am a carer to my husband, keep posting Eve

Hi Ivan
It does depend on what type of Myeloma you have and how much bone damage and tumours,plus lesions.some are more aggressive than others.
This is such an individual decease you cannot go on anybodies bench makers.
Did you ask why they had taken you off CDT and put you on Velcade after just a few cycles???? You would normally do at least 4…[Read more]