MANDY PHILLIPS

  • tom replied to the topic Peter in the forum General 14 years, 5 months ago

    Min
    Still thinking of you and yours but will say more prayers for you all on Wednesday.

    Am sure it will be a great day to remember the good times you and Peter had.

    Lots of Love and Hugs

    Tom xxx

  • Good Luck Chelle, hope it runs well 🙂 keep us posted on how it goes.

    Love
    Tom "Onwards and Upwards" xxx

  • tom replied to the topic New to the forum in the forum Newcomers 14 years, 5 months ago

    Hi David, do you think it might be time to start up again he he, mind you this lot will be a spray job :-S

    Tom

  • Hi
    How about a nice easy one

    YELLOW
    Love Eve low

  • eve replied to the topic Information Please in the forum General 14 years, 5 months ago

    Hi Jean
    I use it all the time,If your unsure of anything there is a good library site,on here.
    When this first started I was told Slim had MYeloma,and it was not compromising the cord,and that was it.Everything else I had to ask about,but when you are told new things your are in shock.Since then I have used this site and libraries to find out…[Read more]

  • Hi John
    Slim has the same problem,he is also on Velcade to,I have suggested a picc line but they are worried about infections.
    What I do is try to get him drinking a lot before blood test,and I have bought a hot water bottle which I fill at home,and rap it up in a pillowcase,which is applied to his arm all the way to the hospital,it seem to have…[Read more]

  • eve replied to the topic Information Please in the forum General 14 years, 5 months ago

    Hi Jean
    There is a book called Myeloma your essential guide.
    It is excellent,you can read it in little bits to take it all in Myeloma UK should be able to send you one,I got mine from the hospital along with other books about cancer.
    If you ask for results of test and use the book it helps you understand them,plus it helps to know when bloods…[Read more]

  • eve replied to the topic Sore toe and leg in the forum Side-effects 14 years, 5 months ago

    Hi Ivan
    how is your leg doing?????
    Eve

  • Hi
    Mine is YOUTH

    Leaving UTH

    best wishers Eve

  • eve replied to the topic Ecstasy for myeloma in the forum Treatment 14 years, 5 months ago

    Hi All
    Sharon what are you on now.
    It does not look if Slim will be given the option of SCT,because of lung damage with septic pneumonia,after doing 6 cycles of cdt and finding it has increased in the bone marrow to 80%,I have to wonder if trials are the right way to go?,they measured the success bench marker in free light chains,which actually…[Read more]

  • tom replied to the topic New to the forum in the forum Newcomers 14 years, 5 months ago

    Hi Ted

    Do you know I always thought it would be some form of what they call "Recreational" drugs that would be a possible cure 🙂 I can just picture us at our hospital visits all Spaced out he he.

    Here is one Paper article about it…[Read more]

  • Morning Sally (gosh i hope you dont read this post at night:-D )

    Am pleased your Dad is feeling better and you and yours are now also feeling the same 😎

    As for the Transplant I know a Lady who has had MM for nearly 10 years and not had a Transplant due to other complications and is doing Ok 😀

    And Eve is correct with the "Dex" when I…[Read more]

  • eve replied to the topic Ecstasy for myeloma in the forum Treatment 14 years, 5 months ago

    Hi Sharon
    Must admit I search for everything concerning this disease,you just live in hope ,that there is something out there,that will work,and actually cure Myeloma.

    I think the answer lies treating it why it is still contained in the marrow.
    They are talking about 10 years research for Ecstasy.I also think some Myeloma,s are easier to…[Read more]

  • Hi Sally
    Good to know your dads feeling a little bit more cheerful,it is a shock to the system when you are first told,and there is so much to take in.

    Slim found it easier to do a big chart with the cycle on,easier to keep track of the pills,he kept 2 pill boxers one for hospital pills and one for own doctors pills.
    I think you will have to…[Read more]

  • Hi
    Just asked the brains
    SEXILY
    Now you can tell it was Slim who thought of that one!!!!!

    ILY

  • tom replied to the topic New to the forum in the forum Newcomers 14 years, 5 months ago

    Hi Ted

    Yep Kids are great we have three sons and five grandkids would I swop them ???? NO we have had a bit of bother with our middle son years ago:-S but am pleased to say he is doing great now and gave his mom and i two handsome grandsons 😀

    So like you I find our kids and grandkids are great also.

    Hope today finds you well Ted 8-)…[Read more]

  • tom replied to the topic Peter in the forum General 14 years, 5 months ago

    Thanks for that Eve

    Min what a Handsome pair of Gentelmen in your photo's, I am Thankful to Eve for letting me know as I missed them.

    Much Love and Hugs

    Tom xxx

  • tom replied to the topic Macmillan Nurses in the forum Treatment 14 years, 5 months ago

    Hi Bridget

    Well you know they aint slapped hard (just a gentle tap) 😀 but you know am pleased I made you laugh:-D it in itself is a healer 😎

    I hope and pray the Radio(Lincs FM)Therapy works 😎 and the pain gets the H*ll out of it 😎

    Love and Hugs

    Tom "Onwards and Upwards" xxxxxx

  • eve replied to the topic Peter in the forum General 14 years, 5 months ago

    Dear Min

    I have just gone back to your posting and noticed the attachment in the left hand corner,Thank you sharing your photo with us,Slim never goes on here but occasionally ask me why i am laughing and I read out to him little bits.
    He asked me to personally say how sorry he was for your loss,

    I hope you keeping well and you are in our…[Read more]

  • how about
    YESTERDAY
    never a truer word sung by Matt Monro

    DAY

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