Good Luck Min

Wish I could help you more ,no knowledge of treatment as you are ahead of us on this journey,Peter is a fighter and I think this goes a long way,I wish I could say more in words to comfort you,but we all know,these are desperate times,
Too stop my self from loosing the plot,I now resort to popping a pill,tried g&t,not a good…[Read more]

Hi Alastair
Well I can tell you its not in South East Kent,Read my previous post it will give the general idea.
If we could manage London I think we would go for that,health wise not advisable for my husband.
Its not so much about the treatment,I think its roughly the same.Myeloma X1 trials are you best hope,if you have not started…[Read more]

Hi min
You know how I have been feeling these last few weeks,and you gave me so much hope,it will all seem so different in the morning,it is the night that does this to us,to much time to think,to much to ponder,The morning will bring fresh hope, please be strong,
You told me not to give up on Slim,he is getting stronger,when things look bad…[Read more]

Hi Roberta

I could echo all the things said here,But I think it all depends on the type of person you are.I feel the need to put everything right,it is sometimes impossible.

When there is a tragedy in your life,this is when you find who your friends are,and who needs fair weather friends. As to relatives its a different game,may be they do…[Read more]

Hi Dai

Well a whispered "Onwards and Upwards" and do you know I pressed the key pad real slow and quiet lol when I typed that he he.

Am Pleased you are feeling better albeit with a lack of sleep 🙁
Good Luck with it all.

Regards

Tom "Onwards and Upwards" 😎

Hi Angelina and John

Hey dont we soon get better 😀 I recall after my SCT I asked when I might be going home on my 13th day and was told it will be about 7/10 days all being well 🙁 but 3 days later I was packing my case and heading home 😎

Took me some time to get into my eating habit dint ever think it would come back but hey ho its…[Read more]

Hi Dai

So sorry to hear about your "Bad Stint" Hope it gets better soon 😀

Not one for the written word Dai, but strength has always been my thing (in me head lol) so I am sending some of mine 😎 So if its "Only" (love the way you say it) a matter of pain well you and I plus others can beat it. all the best with it

Regards

Tom…[Read more]

Hi Liz

Am pleased it all got sorted, as I said I never have to suffer pain at all (hope he is correct ha ha)

Good Luck and hope the upt painkillers help 😀

Tom "Onwards and Upwards" xx

Hi Nicki

I just want to say it is lovely that you posted how well things are going for your husband,it gives everyone a boost.

I look sometimes at so many young people with this horrible myeloma and think how sad,lives not lived,so you post must be such a big boost.
I wish you both a long and happy life. eve

Min I think that is lovely,

The pen often means more than the spoken words,I just wish I had the gift,
I have looked on life as a learning curve,for a long time,I honestly believe,that some of the bad things that have happened in my life,an awful lot of good has come out of it too.

I use my denby arabesk and my crystal cut glasses every day…[Read more]

Hi Angelina

Sorry to hear about Johns Problem 🙁

I have had CTD then SCT and so far am doing good only need Zometa once per month, so cant add to this apart from wishing John well 😀

Its been said John is in the best place and being looked after.

Wishing John a seedy recovery to get home soon.

Love

Tom "Onwards and Upwards"…

Hi Liz

I also say phone the Hospital and or the contact Number they gave you.

None of us are the same so need different drugs/meds at different times.

As for me I never hold back calling if need be, we all know our own bodies and what feels "Just not right" is when i call, pleased to say though Not had to call them for some time now :-D…[Read more]

Hi Gaye

Dont we know (or most of us do) about being blooming weary:-S I never know when am getting? (or do i just choose to ignore it?) but my young bride Elaine knows it well:-D so in that matter its all looked after

Good Luck on Thursday 😀 and dont let them make poodles with the Balloons he he

Love and Hugs

Tom "Onwards and…[Read more]

Hi Ali

Am sure when the SCT is due Guy will cope with it well:-D

and Positivity is a great thing, I feel it makes you better faster (but thats just me Ha ha)
Worry not about being busy and not getting on, just dont forget anything troubles you we are here for you.

Love
Tom "Onwards and Upwards" xx

Thanks Dai

Will look at that,Slim goes back on ctd week Tuesday,hope I can fatten him up a bit,they seem keen to put him back on it.I wait and see how he improves.
In need of finding some alternative treatment,

Have you started the music for the lyrics of angels? best wishers eve

hi Everybody
I cannot be much help to you ,only to say weekend or not make that phone call,I have learn,t that you do not hesitate,if in doubt listen to you instincts.

My husband ,has just come out of hospital,They make clinical judgement on a daily bases but at the end of the day you know your partner.
The problem seems to be everyone,reacts…[Read more]

Hi Gina and Mum

Like all the others am pleased your Mum is Still holding back treatment 😀

And as for being tired :-/ tell me about it me I have fell asleep in the pub (and still sober he he) but my young bride Elaine now knows when I am getting tired and makes me go home/or stop what am doing (bless)

Yes its hard to sit back and wait…[Read more]

well David mine was on the 22nd November 1975 😀 now lets see three kids born?? :-/ names ??:-S you ask them and they will tell you its a erm Lee Craig no you Ha ha ye I still get mixed up with the three Sons Names and Grandkids ho ho Love them all (5) but even they know I get confused when I call them He he, Hey Ho am sure its just me 8-)…[Read more]

Hi Ali and Guy

Well am pleased Guy's problems are on the way to being resolved, the bone thing am not sure what if anything Guy is having to help with that? as Bridget says two drugs are used (that i know off) and the one I am having is the Zometa, and that in itself gives me no problems or side effects 😀

Please dont worry about throwing…[Read more]

Well Dai

What can I say :-/ Lord knows I wanted to say something but couldn't:-( I am so pleased that you Dai helped the likes of me in putting it across with feelings from our hearts, Lord how the tears seem to come easy 🙁

Love and many hugs

Tom xxx