tom replied to the topic Anticipation in the forum Newcomers 14 years, 9 months ago
Hi Annika
Am pleased your Husband has coped ok with his line of treatment and just go with the flow, both of you rest when you need to and dont do too much, as for the steroid's My young bride Elaine says that I was OK with the effects 😎 or was she just too kind :-/
Good Luck on the treatment, mine went smooth (ish) and Like Kathleen's…[Read more]
eve replied to the topic Feathers Of Angel (Lyric) in the forum Off topic 14 years, 9 months ago
Hi Dai
I loved the lyrics ,now we need the music,so enjoyed your last piece,we are not going to let you slip off with any angels Stay with the angels on this site,we need you.:-)
eve replied to the topic This diagnosis is such a shock in the forum Newcomers 14 years, 9 months ago
dear Ali
Sorry you have had to start this journey,As time goes by the medical side gets easier to understand,and you will find this site helps with a lot of the general stuff that comes up with mm.,there will be someone ahead of you in this journey,who knows what you are going through,and no matter how good family and friends are,its the person…[Read more]
tom replied to the topic My father just got the news… in the forum Newcomers 14 years, 9 months ago
Hi Marian
Your welcome.
I hope when you read these post to your Parents it helped them at this difficult time.
Stick to this site its the best honest and true with few scary bits.
I take no notice of the "life Expectancy" as we have new drugs popping up these days 😎
Catch you Lata
Tom "Onwards and Upwards" xx
tom replied to the topic Whasssaatttt???? in the forum General 14 years, 9 months ago
Great news Dai 😀
And for those that are or might go onto that drug regime am sure it will put them at ease 😎
Once again Dai Well done:-D
Tom trying to sing:-/
tom replied to the topic sorry in the forum Newcomers 14 years, 9 months ago
Hi Eve
Am pleased Slim is home, and his food intake is on the up, If slim is anything like me al say not to worry if the weight does not come back as fast as it left because it took me months to gain mine back (but it came back with a vengeance He he.
Not forgetting Eve you yourself got yourself through this difficult time, and I say a well…[Read more]
eve replied to the topic sorry in the forum Newcomers 14 years, 9 months ago
Hi Everyone,
21 days and Slim has come home,All 9st 8lbs of him,walking on two sticks.but its wonderful ,sleeping a lot food intake has improved also.back to hospital Friday will find out about chemo.
Just so glad to have him home.
A friend came round to help me clean house as 12 to 14 hour day in hospital finished me off,another friend took…[Read more]
tom replied to the topic This diagnosis is such a shock in the forum Newcomers 14 years, 9 months ago
Hi Ali
A warm welcome to this great site, Am sure with time you get used to all the tech stuff? (well i hope so then you can help me he he)
We have some great folk on here that have been a great help to me over the last year and a bit(ish)
Tom "Onwards and Upwards" xx
tom replied to the topic Need to offload in the forum General 14 years, 9 months ago
Hi Lorraine
Yep throw all your worries and stress in here (( :'-( )) we can take it am sure 😀
Hey even I wobble at times and I am the original "Onwards and Upwards" and My young bride Elaine copes with it all:-D
So keep em coming 😀
Love
Tom "Onwards and Upwards (with the occasional wobble)" xxx
tom replied to the topic Great News in the forum General 14 years, 9 months ago
Great news David, thats the way to go:-D
I also thought (still am) of getting a Bike to help build up my energy levels.I seem to have got fit (ish) then its stopped so might get a bike but looking at them the saddle's :-/ dont look too comfy :-S what happened to the big wide saddle with big springs 😀
Keep on the "Upwards and Onwards"…[Read more]
tom replied to the topic Velcade- subcut in the forum Treatment 14 years, 9 months ago
Hi Dai
Thanks for your post:-D and yes we are always LAST in the fight against anything Medical:-( why oh why cant we be at the forefront of things like this:-/ hope the lord knows cos I dont :-S
Regards
Tom
tom replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General 14 years, 9 months ago
Dear Susan
I am sorry to hear about the sad loss of Kevin.
My prayers and Love are sent to you all.
We know that Kevin fought a good fight with this dreaded illness.
Much Love and Hugs
Tom xxxxx
tom replied to the topic My Wonderful Husband Patrick in the forum General 14 years, 9 months ago
Dear Tina
I am so sorry to hear that Patrick lost his brave battle against this B dard Illness.
My thoughts and prayers are with you and your Family.
Love and hugs at this sad time xxxxxxx
Tom
tom replied to the topic sorry in the forum Newcomers 14 years, 9 months ago
Hi Eve
Am pleased Slim is getting better 😀 I know its been hard to wait but honest the wait is worth it 😎
When I was poorly then got better I used to count the Good days that had no bad ones following it and Lord was it Good, as for now I am Months and months of Good Days 😎 and Slim will do same 🙂
Love to you Both
Tom…[Read more]
eve replied to the topic sorry in the forum Newcomers 14 years, 9 months ago
Thank you ever one for all your kind thought ,min I do not know what I would have done without all your help,you do tend to forget that people on this
sight have been in your position.
min you gave me hope,Slim is starting to recover its the first day in 21 days that I am not in the hospital by 8-30 am.I am amazed how quickly he has turned…[Read more]
eve replied to the topic sorry in the forum Newcomers 14 years, 9 months ago
Hi MIn
Not good min,
I now know why they call those little girls who try to get you walking o/t,they go over the top,left Slim for 4hrs he was due to eat,have cat scan and have a rest period, this ot decided Slim was going to walk,ith zimmer with sticks and do stairs and Slim put on a great act and did the lot only to be exhausted for rest of…[Read more]
tom replied to the topic sorry in the forum Newcomers 14 years, 9 months ago
Oh Jo here is Tom walking away Blushing he he 😎
tom replied to the topic My father just got the news… in the forum Newcomers 14 years, 9 months ago
Hi Marion
Ye its hard even for me and I am 55 years young 😀
As its hard to understand a fast talking Dr why dont you ask to have a copy of the notes that is sent to your dads Dr 😀 that way it can be read and re read until its sinks in 😎
I also have my fingers crossed for your Dad
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic My father just got the news… in the forum Newcomers 14 years, 9 months ago
Hi Marian
So sorry to read your Dad has MM, but you have come to the correct place here for help and advice 😀
I was told in 2009 that I had MM and have had a stem cell transplant and doing good, do you know what treatment your Dad will be having? as we all have different treatment due to the MM
I wish your Dad well in his forthcoming…[Read more]
tom replied to the topic sorry in the forum Newcomers 14 years, 9 months ago
Hi Eve
Its a bit of a B-A-S-T-A-R-D this MM (see now av shown you he he)
Am sure Slim will be Ok its just getting his meds right that causes a big problem :-/
And as for Slim Looking in good shape, I think its an MM thing cos I know that all us suffering MM look bloody good to say what we are and have gone through 😀
Good Luck and…[Read more]