Hi min
just woke up, thank thank you so much,I need to know there is hope to give him hope,At the moment reading your message you could be talking about Slim I know I have left him tonight wondering if this is the end.The doctors do not know it,his attertude is I have got away with it for 66 years!!!!I suppose,because of his life style he has…[Read more]

Hi to you all

Tom you are going to have to tell me how i can do it,because I know I am loosing the plot.
just got back from hospital.Slim had cat scan today,not good news.
Blood clots on lungs,also cavities might be mm or could be tb.my own thoughts are possible asbestos as Slim use to sleep under the piping on board ship as a young…[Read more]

Hey Eve

Trust me girl us lot are not easy to offend:-D and it must be the Skool prefect that felt it might be dodgey 😎 I know I have tried to use MANY a cuss word and it wont let me He he (but av found a way round it ha ha.)

Hope you and Slim are doing OK

Lots of Love from one "Unaffected bout comments" Tom xxx

ps let me know if…[Read more]

First chance to reply
Ward went in lock down today no new admissions place swarming with cleaners. Slims septic pneumonia is back, had 24 hour bug,on the whole much better,Test to see if there is an under lying infection.Doctor does not think it is directly related to mm,except concerning the body being at low ebb,to pick up infections.all the…[Read more]

HI Bridget,

You are all ways there to support people,in time of need,I wish you well and will try to follow your post to support you as much as I can.best wishers eve

Hi Dia

All the best for tomorrow, and am with you re Janet and rain 😎 it will be ok for me if it rains every nite and the sun is out daytime 😎

Tom

Hi Bridget

Sorry to hear you are feeling poorly 🙁

I am same as all our other friends above, but I was told never to suffer pain or any doubts at all and if any rear its ugly head I am to go straight up to the ward 😀 and I have used it twice so far and its great no waiting no worries 😎

hope all is well and its put down to heavy…[Read more]

just got in
THere is now a bug on ward number of patients infected Slim being one,was talking about shut down,doing all personal care ,picked up on antibiotics and fluids,plus potassium low.
exray not looking good patchy lungs,I cannot tell you how many people I have spoken too.Even Slim in one of his lucid moments,had a slanging match with a…[Read more]

Hi Min
The news is not great I am going to try to keep this reply short

After being discharged from A&e,then readmitted 2 days later on easter monday Slim spent 9 days in itu with septic pneumonia in both lungs,care excellent,
sent to general ward,as cancer ward would not accept him,hdu was not given as alternative.
First complaint wrong…[Read more]

Hi Liz

I also have not been on for some time 🙁

But am pleased Kev is doing good 😀 I also (like many more) had a rash as well, but like all my other bits it all worked out great 😎

Good Luck

Tom xx

Thank you every one for all your Help

Had a tough week and a big learning curve,we got married on 26th of April instead of 28.th The hospital did us proud,cannot thank them enough,good job we did it then as Slim was a bit off his head the next day,and I am sure the Registrar would have said he was not of a sound mind.
Only managed one daughter…[Read more]

sheff
This is to you personally ,I need to Know more,I do not know if we can post are email address on here, but I do need some facts on this.
My husband was diagnosed in January on myeloma x1 trials ctd side.

He is in hospital at this moment in itu.getting better slowly from infection but what concerns me,is the mental state,I do not know if…[Read more]

Hi
thought you all might like to know,low blood pressure,indication of infection,it was not picked up on at a&e on Saturday,as dexi managed to hide the infection.Sent home what happened to this extra care for taking part in trials !!!!IF I had not phoned for ambulance Slim I dread to think what position we would be in,I would never have forgiven…[Read more]

Thanks Min
Will try 7up,,does not like flavoured water,a little bit better today although still not eating drinking small amounts.

Hospital tomorrow for bloods,the unit will open tomorrow,so I am going to ring first thing,see if doctor will see him,needs fluids inside him.
not so confused today,energy levels zero.
The problem with him,is he…[Read more]

How many ciders?,you enjoy them and have one for me

thanks Jo
Have managed to get rehydration powders and some energy drinks which I am mixing with drinks,that he likes.Also find straw is helping ,every 10 min I make him have a few sips,seems to be working,plus the threat of hospital,
First time Slim has not got out of bed,

Thanks again jo,it brings it home how this mm reacts so different on people

Thanks for reply
Hard to get fluid in Slim,has been so good about it for last 6weeks,has a sore throat,as drugs attack soft tissue,I know this is going to be a hard time,but the low bp is it normal ,
My daughter has found a chemist open and managed to get rehydration powder,plus energy drinks,having to put them in other mixers to make them…[Read more]

Hi Keith and NIgel
I just found your post when I was looking for some info on feeling so bad,my partner is just finishing 3 cycle of ctd and starts 4 on Friday.

The problem is he feels so bad,ended up in hospital yesterday,very dizzy ,turned out,low blood pressure and Dehydration ,although he was drinking well up to feeling lethargic last week…[Read more]