Hi ladies

With Slim being deemed to be out of remission and will have to have BMB every time they need to know how is myeloma is doing,plus more blood .it has made us rethink are plans.

We thought France safe to go only to find your European Health card will only cover 79. Percent of emergence treatment, so getting caught out could be…[Read more]

Hi Jane

There is no point SE is all the same medical team,I know this team well after 2. 1/2. Years I might have my moments with the consultant,but most are the same,when they get that high up, I did think may be general treatment at another hospital might be quicker but I think overall the unit has improved I will let you know if I am…[Read more]

Hi Eve and Slim

Yes I think the takings should be down as I haven't been down since last Sunday. That said I don't that often these days have you seen the cost of drink its a scandal Lol.

Thank Slim for his Best wishes 😀 now am gonna blush lol xxx

Hi Tom

Your local club must have had there takings hit. Lol you know I sympathise with you,not having to go to work,you poor thing!!!its a hard life. I hope it clears up and you are soon back on your feet,missed you on Facebook. Love Eve

Slim sends you his best wishers.

Hi Andy, well those Nasty's have a habit of just jumping on you don't they, one minute I was fine next walla on my back but am on my second day of Anti B's temp has certainly dropped

Hi Sarah am sorry Henry is on Anti B also its a problem we have to cope with these days with MM as soo as I felt it was clearing straight in at drs and Anti B…[Read more]

Hi jean

Ask for the reports on Skelton ex ray and MRI scan you are entitled to both ,if you find them difficult to understand ask them to explain them if you have no response take them to your doctor or find some one who can break down the medical jargon,

Has he had any ex rays done from time he started myeloma to now ???
They do not…[Read more]

Hi Maureen and Ian

Its good to hear of a good response but its slightly blighted with the shingle I bet.
Take care

Love Tom Onwards and Upwards xxx

Dear Tanya

I am so sorry that your dad is on his final Journey, my thoughts and prayers are with you all at this sad time.

Lots of love and Hugs

Tom xxx

Hi Gill

My its a hard time for any of us to wonder how and why any one could pass away when we are not ready for them to go, but unfortunately we can make that decision.

Its good that you have the photo's to look back onto albeit it makes you sad.

Think of the Good time Gill

Love and Hugs Tom xxx

Hi Jean and Mike

Sorry about the relapse Mike, and am sorry I cant add anything to your post just wanted to wish you both well

Tom Onwards and Upwards xx

Hi Dai

My you have been through the wars and like all good army's got some issues with supplies 🙁

Hope you made that phone call and its soon sorted out Dai.
Fingers crossed for you

Tom Onwards and Upwards

Hi Jacquie

Am sure they wont let you wait too long to get it done, the problem is bed space and as soon as on is free its booked for you.

Good Luck

Tom Onwards and Upwards xx

Hi Jean

I did try again to day,but I was met with same explanation which is PET SCAN WILL NOT TELL YOU WHAT IS GOING ON IN THE BONES. I said I know that but it will show if it in the soft tissue,fell on deaf ears.we know its 10 percent in bones,no extra damage shows on MRI or exrays.. He has another BMB on the 7 of May blood taken for…[Read more]

Hi jean

Looks if your post,slipped down,and you had no reply.

I am sorry Mike has to start treatment after 5years. I take it he has come out of remission !?!!

Velcade did work for Slim,and managed to get to SCT,but he only got 6months before it came back. Asa drug Slim did not have many side effects,in some places they do it subcutaneous…[Read more]

Hi Jo

Good to see you up and running now, now you stay away from that pneumonia you know it isn't good for you.

Stay Well Jo and Catch you Lata

Love Tom Onwards and Upwards xxx

Hi Dai

Just a quick note,I think Janet would benefit from this site,cannot get Slim on it,says its my thing, but as time goes on he wants to know more and has started to watch the info videos on here.

I have been trying to get the Myeloma team to consider a PET scan for Slim,but falls on deaf ears,say they do not do PET scans for…[Read more]

Hi Tanya

I remember your posting,All parts of the past,and future,with lots of painful memory's and your dad more or less choosing to ignor his ill ness for the sake of alcohol .

This will be a sad time for you as so many issues not resolved,but you can only do so much,you cannot change your dads future,be kind to yourself,for give…[Read more]

Hi Jo

Nice to know you still with us,you have been in my thoughts,Keith Marie and you all went quiet,we know Keith's in hospital and at last you have posted.

You are going to have to teach your husband to post,tell him we were getting worried!!

It,s a long haul getting yourself. Fit after Pnuemonia , it is just a blip,make sure you get…[Read more]