Hi Rob

My husband is 69 years young this year has had Myeloma for 2 1/2 years CDT did nothing Velcade got him in a position for SCT he has had only 6. Months remission,but he is ready for the next treatment which we think will be Revidimide .he is in a good frame of mind which helps.

My husband has looked very ill at times weighing 60 k…[Read more]

Hi Rob

I was going to say a warm welcome to the site,but running out of options,is not welcome

You do need some of the more experienced people to tell you if there are any more option s or Ring the myeloma nurse she might be able to help.

You do not say what age your mum is and I do think it might have some bearing on her position and…[Read more]

Hi Dai
I can understand you being angry,

You know you have to keep your eyes wide open,not giving Zometa early is an example.

Why wait?? Ring up speak to someone about the injections,this gives them time to have a talk,before they see you again.Eve

Hi Wendy

It is the only way to do it

Remain positive and get out and do as much as you can!,
Have bought new Motorhome scaled to a small one,we always said we would do the UK when we were older,but it looks if Slims health has bought UK near.
A moterhome. Floats are boat,not one for hotels unless its some were like St Lucia.
So glad…[Read more]

Hi Andy

I think the reason your not on here often is that you are always out on the Razzle Lol.

Good Luck on Cycle 14 and with "Chemo Brain" soon you wont remember how bad it was Lol.

And listen Folk it isn't Eve's I Pad it is the GT 😉

Tom Onwards and Upwards

Yes I also am hopping Keith is ok and its just a rest he needs from the Forum thing and shove the MM to the back of his mind.

Tom Onwards and Upwards

Hi Richard

I might be wrong?? but the medical for HGV is to check heart, Eyes and BP ?? as has been said the combination of drugs might put you on a fail?? I drove (car) all through all my treatment CTD and SCT no problems
All the best with it.

Tom Onwards and Upwards

Hi Maureen and Ian

Well the only people that can look after a loved one is a loved one am afraid.

Its so tiring being a carer more so than us that have the MM, please look after yourself as well as Ian, I hope the treatment is soon started

Love Tom Onwards and Upwards

Hey well done Jean, Frank and his team Now that an Onwards and Upwards result 🙂

Franks count is good and yes it happens fast 🙂 but he will still need to take it easy and before long Frank will be Spot on.

Now Breath xx

Love to you Both

Tom Onwards and Upwards xx

Hi Sandie
Not a problem am just pleased your Mum is not as sickie that was one of the things I didn't Like.

Give my Love to your Mum.

Love Tom Onwards and upwards xx

Hi Gill now what a great find, Lovely Photo, I bet its now in pride of place (hole or no hole)

Love Tom xxx

Hi Sue
Am sorry but pleased you never scattered the ashes as you knew it was just not right for you, wrong place or just too early only you will know.
I wish you luck on your choice because as and when you choose the girls am sure will be happy.

Love Tom xxx

Hi Gill

It's lovely to hear from you,how are you getting on,??? When do you go to France,the first year is hardest,I hope to hear you have a smile on your face thinking of all the good times you had with Stephen.

Slim looks great curly hair and has put on weight!!!,aching bones bad back,and co ordination a bit off,good job we have plenty of…[Read more]

Thanks Mavis and Babs

I have seen what they offer at Cancer Club plus Hospic,I have all ways thought it was for the patient not carer.
If I tried to get Slim to go he would not want to know,stubborn is his middle name.

Thank you Mavis I know are believes are different,but I do have a lot of respect for people who can hold there faith,…[Read more]

Hi Maureen

You are learning fast,keep you eyes open only way to get good care.

Sorry you are so tired have you tried catnapping I use to come home from hospital take phone of hook and go straight to bed, before that the phone rang just as I was dropping off,I cannot repeat what I said to who ever it was.

You do need to recharge your…[Read more]

Hi Dai

The way they work it you begin with Zometer once a month,but it becomes less effect as time progresses,by the time you haveSCT or remission you attend hospital every 2 months so they fit Zometer in with your hospital regime Eve

Hi sue

Only do it when your ready!!

Matty's ashers have not been scatted yet and it,s coming up to a year.
They have been remon
Ved from the thing from the undertakers,my daughter bought a beutiful globe,I told her if she gets burgled that's the first thing they would take,the family are. not ready and have not found a resting place for…[Read more]

Rebecca

I think the person who told you that was talking about all cancers,
For example myeloma if caught early there is less damage to bones nothing to do with age,but a younger person is fitter and healthy than a 70. Year old.

My husband is 69 this year used to be very fit ,so was able to have SCT but at his age will not be offered…[Read more]

Hi Wendy

Loved your blog;-) 😀 🙂 😎

Keep going ,I admire the way you keep going.Love Eve

Hi Andy

The surgery should help with pain so bring it on.
Thanks for news on Keith,funny we never met,but you do find yourself wondering are people alright 🙂

You have been through an awfull lot of treatment s,I have alittle in sight to how you feel,I hope a Donna comes forward soon better than a doña as in one of my post to you:-P…[Read more]