tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Ps R/T is Radio Therapy the tell me its good for the bones 🙂 xx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Well Done Garry you have beat my 16 days of "Lockdown" stay well and in a few months you will be in Top(ish)Form 😀
Even when you are home Garry you are still recovering so take it easy and sleep when your body tells you.
Well Done and Good Luck
Tom Onwards and Upwards
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
Yes early days but its gonna be Ok 😀
Do you know when i was off I dint like the telly on nor radio I used to sit and read or go on Commie in between sleeping lol.
You should try and borrow a "Shooting Stick" for Pete I was given one and i carried it when out and when my back was bad or I felt tired ext I popped it open and…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Lol Eve am sure only you could get away with this one Lol al probaly get told orf lol xxx
Love Tom xxxx Lol
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Hi Sandie
Am pleased your Mum is getting better and hope the next round of Chemo is good for and to her 😀
As for the steroids well we all differ in what and how we cope with treatment but am sure am safe by saying a weight gain is civen on steriods (i did but i had lost a lot of weight due to MM (and I thought it was my diet ha ha) as for…[Read more]
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi Tom
His pubic hair never came back. Lol.Eve
eve replied to the topic Plasmacytoma in the forum Related conditions 11 years, 8 months ago
Hi Peter
Since 2003 you have done very well pity about RT but if it solves the immediate problem,then it must be worth it.
10 years to anyone on here is all good news,the fact that you now need more treatment is a bit of a bummer,but that's what we are here for to support each other when times are hard,age does not come in to it.
Slims…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Yer correct you lot its nice to be nice BUT Lol, and Eve am sure you shouldn't tell us Slim was having his curly's played with Ha ha xx
Love Tom
tom replied to the topic leg muscle weakness in the forum Treatment 11 years, 8 months ago
Hi Ian
well am pleased to seem to have found what it is hope the reductions work and your soon back on your feet (no pun intended Lol)
Keep strong
Tom Onwards and Upwards
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi Sue
Well Sue the reason they say oh,and walk away,or go in as you come out,is they cannot face it and by looking away they think it will not happen to them,but when something like this happens to them,who do you think they will go to for support and advice,I am sure I do not have to tell you the answer.
I had a conversation with a…[Read more]
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi Tom
We only live 20 miles from France,and they are so moterhome friendly,believe it or not its cheaper to spend a month in France,than a week in this in UK.So if we manage to go away it will be France.
Now Slim looks well,if anyone ask how he is I say fine,because if truth be known they do not want to know!!! And they don't want to know…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hey Eve when you go off in the Moterhome bring yourself and Slim down to Sunny Scunny we have a nice place for the capming fraternaty pretty near us in Sunny Scunny 😀
Andy
I was at work today when some one asked me how i was doing and as i started to tell him another workmate ? walked in and heard our chat and said "Oh are we on about…[Read more]
tom replied to the topic Loss of appetite in the forum Side-effects 11 years, 8 months ago
Hey Girls and Guys
As for lack of saliva!! its been a long time since i was in that position but I used Chewing Gum 😀 and I know a lot of you Ladies wont use it? but it worked for iccle ole me 😎
As for the food I was some time before i could eat big what i call Sunday Dinners, but it came back after about 6 months post SCT with a…[Read more]
tom replied to the topic New on here in the forum Newcomers 11 years, 8 months ago
Hi Rob
And a warm Welcome to you and well done to you.
After my SCT in 2009 (Dec) I went onto Zometa for 2 years am now in remission and drug free 😀
The Zometa might give you symptoms of Flu but that will soon wear off.
Good Luck and well done so far 😀
Tom Onwards and upwards
tom replied to the topic RCD cycle 13 in the forum Treatment 11 years, 8 months ago
Hey Andy thats good so you say if you reach a a point then the drug company pay ALL cost of the drug??
Tom Onwards and Upwards
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Your welcome and hows things doing ?? you dont want to sit in hospital watching bad movie's get Elaine on Ipad for Face Time it will do you both good Lol.
You all stay well now and Dai you are correct.
We should have a thread Just for you dai as your words are words of Comfort and Wisdom my Friend 😀
Love Tom Onwards…[Read more]
tom replied to the topic Whether to do a 2nd stem cell or not? in the forum Treatment 11 years, 8 months ago
Hi Georgina
you know I cant answer for your dad but i can tell you what I just might do if I was offered a 2nd SCT First I would look at how long i got in remission with the first, and 2nd how good the alternative is Ie the drug only route, when i got better from my one and only SCT I said openly that I wouldn't have a problem having a 2nd, but…[Read more]
tom replied to the topic So it begins in the forum Treatment 11 years, 8 months ago
Hi you two
Pleased its going good good luck for resuts on that dreaded BMB
Tom Onwards and Upwards x
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
Not a problem its now a wait and mor wait 🙁 but in the end it is worth the wait 😀 , your dad and you all will be thinking will it ever get better (we did) and one day your dad will wake up and feel 100% Better, not his old self am sorry to say but Better 😎 and that is what all this SCT was for its good to feel that better…[Read more]
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 11 years, 8 months ago
Hi Peter
Now I am confused (know it dunt take much lol) am now not sure who to look for on FB lol, is it Stevenson or James ha ha.
Tell your Middle Granddaughter to add me to yours and you can find me as tom.lappin.5 Me thinks but av got a photo on mine so you will spot me he he.
I also dont do good as its not as much fun.
Catcha soon…[Read more]