Hi Sarah and Henry

Its always strange when Meds change with no discussion :-S and am sure you do always ask?.
But I was on Zometa and had that for two years post SCT, just had flu like symptoms for a few of the treatments.

Sarah, Frank keep eye out for Jaw problems as it can have problems on the Jaw bone.:-/

Keep well.

Love Tom…[Read more]

Hi veronica and Georgina

No problems please ask away about anything.

I was diagnosed in Jan 2009 first line of treament was CTD I had 5 courses of it, that led up to my SCT in December 2009 in Castle Hill Hull.
Now in remission and Drug free now 😀 and I now only go see Consultant every four Months.
Dont forget ask away things i cant…[Read more]

Hi Sandie

Now do I say well done in having Osteoporosis :-S Yes i think I should 😀 .
Its not good but its Better than having MM :-S .

I think you should ask if R/T will help ease the pain in your back??, let us know what exercise they say you can do as am sure it will be same as us MM folk should be able to do 😉 .
Am Pleased your Mum…[Read more]

Hi Ann and pete

Yes thrown out on day 16 I was 😀 but am sure someone on here has my days beat ??

Hope your Home today Peter and let Ann have that week off you just might need it (I did) and when Elaine went back to work she left me a flask and Pack up for me to eat (if i could) till she got home (Bless her )

Tom Onwards and Upwards xxx

Hey Andy and Steph

Looks like it will be another nite out for you two 🙂 to celebrate
Shame you didn't see keith, I also wish him Good Luck and fingers crossed that the treatment works for him
Tom Onwards and upwards x

Hi Georgina

Well I haven't had a 2nd i have only had one.
Would I have another?? am not sure Georgina as I understand treating MM with Drugs with No SCT is a good way to go I think at the moment.
Sorry to hear your Dad's SCT has failed.

Good Luck in the Choice your Dad makes.

Tom Onwards and Upwards x

Hi Maureen and Ian

Good Luck to you Both and I hope this Cycle passes with none or little problems am pleased the bloods were Ok

Tom Onwards and Upwards xx

Hi Gill

I understand what you say about your Cat am same wi Dog "the Yorkie" 😉
as for Chest Infections well I think thats me also with this Bloomin MM.

Aint heard of a "Lung Nodule" ? what are they doing with it then Gill and what do they about it??

Stay well
Love Tom Onwards and Upwards xx

Hi Louise
Its not a problem, your dad will slowly feel better but dont expect it to be soon it will take a bit of Time even when he is out of Hospital.

Am with you all on this one.

Love Tom Onwards and upwards xx

Hi Sarah Jane

Stem Cell Harvest am sure you wont find that too much of a problem if like me you should find it pain free.

The GSF injections well I had to go into the Day Unit and get a nurse to do mine ha ha Now way was I sticking Myself so i wish you good luck with it. (BTW it dint hurt its just me) during the Injections i had about two…[Read more]

Hi Peter

I think I know that now 😀 but you nip under radar as often as you wish 😉 but dropping by the normal way is better as its "Good To Chat"
Looked for you On Face Book, do you have a photo on profile? or is that you that just joined ??

And i will try to be good 😛

Tom Onwards and Upwards

Hi Louise

I know your dads doing great 😀 it looks lie he might beat me and get out in less than the 16 days I done, and every one thought that was Good.
Dont worry to much about your dad getting more blood I had one two days before i was let out 😀 and the Dr said that I could have been let out the day before.

Love to you all and tell…[Read more]

Yep am up for that Dai, its one thing I regret (and i dont do regrets easily 😛 ) that I dint do a blog or have a diary or even jot things down on rough bits of paper 🙁 and we all know how the brain goes after Chemo Ha ha.

Tom Onwards and Upwards

Hi Peter
Looked at my Face Book?? dint know you had one and you dint ask to be my friend 🙁 Look Thin gosh am gonna have to tell My Young Bride (Elaine) that one lolol:-D am about 15st 😛

Your Doing well with it all Peter, But Wine and Chocalate :-0 am a savory man with my drink.
As for hair (and you peeped at my FB) mine has grown back…[Read more]

Hi Min

I suppose the difference is you have been there I have not,I do not know how I will feel,that is yet to come,mt daughters think I will go off in the motor home,but you cannot say until it happens,at times I do wish I had my life back instead of being in this bubble,but I do know people who are no longer in the bubble but life has not…[Read more]

Hi Jean and Frank

Well first no way would you wake me for bloomin Football Lol
Second I can tell you Frank is doing Bloomin well 😎 I at that stage was asleep most of the time and only woke up to say Good Bye to Elaine and whoever turned up that day/nite, and as the Dr said "he is ahead of the pack" is soo true so thats Good but it still…[Read more]

Hi Keith
Am Pleased to read you have got rid of your infection and back home with Normal Temp. 😎
You have had it rough My Friend and I pray this is the Corner you turn and chase me to that "Remission"8-)

Still all crossed at ours for you Keith.

Tom Onwards and Upwards x

Well I can only speak as as Slims Wife,I dread it all coming back,and I do have my blue moments.

Slim is just the opposite he does not worry at all,but he does not sleep a lot ,when I ask him is he is worried it will come back the answer is no.
His attertude is ( I never expected to live until I was 28 so everything. Else is a…[Read more]

Hi Paul

Hang in there it is going to be worth it,the fact your still working is a lot,tiredness is one of the symptoms my husband had,but not the moon face he did have a rare side effect painful scrotum .very rare!!!

At least having your treatment subcutaneous saves time.

Jo nice to hear from you take it you are ding fine.??? Love Eve

Hi. Bev

How are things going .i am just boosting this up,as people might have missed ir.Eve