tom replied to the topic My Dad in the forum General 11 years, 8 months ago
Hi Laura and Dad
Sorry you had to join but its best place to be if MM is involved Good People and Good advice to be had here 😀
Just a fast one I am now 57 and i had my SCT in December 2009 and am doing great and drug free 😀
Its an uphill fight some days when you go through the treatment but it is a Doable, a few blogs have been done…[Read more]
tom replied to the topic Our Journey in the forum Newcomers 11 years, 8 months ago
Wow Wow And Bloomin WOW
What a venture you and yours have and are going through and I raise my hat to you all (I do wear one he he)
Your Story is inspirational 😎 and your strenth will carry you through the MM Journy Good Luck and Love the Post
Love Tom Onwards and Upwards xx
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
Well I wouldn't worry too much about the weight loss honest it comes back with a vengance lol, I went down to less than 70k and my normal wieght is 95 k so it was a big loss and trust me nip over and see my photo's on Face Book its well Back Lol.
Love Tom Onwards and Upwards xxx
eve replied to the topic Bone Marrow Biopsy in the forum General 11 years, 8 months ago
Hi Trish
Tell him not to rub site of injection,otherwise he will be full of bruises.
Slim had to inject himself for 8 months to prevent clots. Good luck with the Velcade. Eve
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Hi Jackie
I am so sorry to hear that Norman has passed away,and am sorry Norman left the site early as am sure we all could have helped you all through this difficult time you have and are going through.
Please take it or day at a time and we are all here for you.
Love and hugs Tom xxx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 8 months ago
Thanks Nicki 😀 and a laugh is good for us all at anytime.com 😎
Enjoy the wet week end 🙂
Love Tom xxx
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi all
Well I class myself as one of the lucky ones and yes i dont fear death but am not ready for it, do we as a Family talk about it YES we do but more of a FUN(if you can make it sound funny?) way so we can lesson the tension that having a terminal illness throws upon you.
I went to a Support group a fair few times but unfortunately we lost…[Read more]
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Well aint your Hubby doing well 😀 am sure (but my mind has gone awo;?) Frank is doing better than I did at same time ? you will have to ask Elaine Jean am sure she will remember Lol. but all through it i was up showered and shaved (its all you have to do to be honest) and dressed it made me feel better when i fell asleep lol.…[Read more]
tom replied to the topic Tenterhooks in the forum General 11 years, 8 months ago
Aww Dai
Bless its hard aint it?
But I will tell you what I have done over the years including during and after SCT (but I dont advise anyone else to do it, worked for me 🙂 )
All my life I have took the kids when they are ill and cuddled them saying "Come on Give us a cuddle and Dad will take your poorly away" Now that worked for our…[Read more]
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Hi Sue and girls
I am pleased you and the girls have decided where to Scatter Michael's ashes, and Scarborough is a lovely place.
Will be thinking of you and the Girls on your special day.
Love and Hugs to you all
Tom xxxx
eve replied to the topic Kidney question plus SCT question in the forum Newcomers 11 years, 8 months ago
Hi Rebecca
You could have a look at back answers on this site,if you put in kidney in top right hand corner it should come up with something ,I think a fw people will reply to you who have had the same problem
My husbands kidneys regenerated,but he was still given a smaller dose of chemo for SCT. Enough to do the job,he does have to drink…[Read more]
eve replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
I could tell you not to worry,but you will.its everything that everyone else has been through,make sure you take old clothes in,you just might want to through them away.Cold milk went down well with Slim,do not worry if dad does not eat,no use eating then being sick,things just do not have the same taste. They say a piece of pineapple…[Read more]
eve replied to the topic Dad and his secret in the forum Newcomers 11 years, 8 months ago
Hi Bev
Sorry to hear about you situation ,you do not say how old your father is or how old you are??.
It must be hard on you,but if your dad chooses not to tell you,there is no way you can find out!!!!
You could approach the situation by saying you have been on the Myeloma UK site,because some one you know has Myeloma and you found it…[Read more]
eve replied to the topic Curly Hair after SCT. in the forum Side-effects 11 years, 8 months ago
Hi Babs
Yep my husband has lovely locks plus from grey he went brown,I refuse to cut it
,in case they disappear ,he had straight hair before,I think it does go back to the way it was.:-S Eve
eve replied to the topic kidney failure and sct in the forum Treatment 11 years, 8 months ago
Hi Rebecca
Are you on dialysis ?..,
I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.
There are people on here who have had SCT…[Read more]
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
I have never been on "Morphine" but i know folk who have and still are 🙁 and the morphine itself gives problems but its needed, Pete will get better soon use Ice cream and Yogurt (i coudn't do the latter 🙁 ) it will soon get better 😎
Jean and Frank
Well I know how Frank feels re the food 🙁 I also stuggled to eat…[Read more]
tom replied to the topic MM and immune system in the forum General 11 years, 8 months ago
Hey Ted
My you are avin a two and fro arn't you :-/
As for the chest problem I think all us MM folk have that I do ?:-/
I wonder what they mea about "The Immune system" being effected?? are they saying that us MM'ers cant have an operation as we might have a comprimised Immune system??
Dont let them shrug you off ted get in and ask away…[Read more]
tom replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 8 months ago
Hi Dan
Well you are doing a great Job for such a Young man and am sure evry one is proud of the way you cope, but as others have said ask for help and use it you need space and time away from all of this MM stuff every now and then.
Such a lot to do and sitting exams also wow I am proud of you as well 😎 but ask and take the help as much…[Read more]
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Hi Dai
Am pleased to read your Temp is dropping, I think its a MM thing ?? I get hot high ish temp every now and again but feel well in myself 😀 and am on Nothing and all bloods are good he tells me Lol.
Stay fit and be Cool Dai 😎
Tom Onwards and upwards x
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hey Jean
Frank sounds like me (but not the footy lol) I never used to ask I just let them get on with it 🙂 if My Mans Happy am Happy
Let frank sleep its going good Honest.
Love to you both
Tom an Elaine Onwards and Upwards xxx