MANDY PHILLIPS

  • tom replied to the topic My Dad in the forum General 11 years, 8 months ago

    Hi Laura and Dad
    Sorry you had to join but its best place to be if MM is involved Good People and Good advice to be had here 😀

    Just a fast one I am now 57 and i had my SCT in December 2009 and am doing great and drug free 😀

    Its an uphill fight some days when you go through the treatment but it is a Doable, a few blogs have been done…[Read more]

  • tom replied to the topic Our Journey in the forum Newcomers 11 years, 8 months ago

    Wow Wow And Bloomin WOW

    What a venture you and yours have and are going through and I raise my hat to you all (I do wear one he he)

    Your Story is inspirational 😎 and your strenth will carry you through the MM Journy Good Luck and Love the Post

    Love Tom Onwards and Upwards xx

  • Hi Ann and pete

    Well I wouldn't worry too much about the weight loss honest it comes back with a vengance lol, I went down to less than 70k and my normal wieght is 95 k so it was a big loss and trust me nip over and see my photo's on Face Book its well Back Lol.

    Love Tom Onwards and Upwards xxx

  • eve replied to the topic Bone Marrow Biopsy in the forum General 11 years, 8 months ago

    Hi Trish

    Tell him not to rub site of injection,otherwise he will be full of bruises.
    Slim had to inject himself for 8 months to prevent clots. Good luck with the Velcade. Eve

  • Hi Jackie

    I am so sorry to hear that Norman has passed away,and am sorry Norman left the site early as am sure we all could have helped you all through this difficult time you have and are going through.

    Please take it or day at a time and we are all here for you.

    Love and hugs Tom xxx

  • tom replied to the topic Sam has relapsed. in the forum General 11 years, 8 months ago

    Thanks Nicki 😀 and a laugh is good for us all at anytime.com 😎
    Enjoy the wet week end 🙂

    Love Tom xxx

  • Hi all
    Well I class myself as one of the lucky ones and yes i dont fear death but am not ready for it, do we as a Family talk about it YES we do but more of a FUN(if you can make it sound funny?) way so we can lesson the tension that having a terminal illness throws upon you.

    I went to a Support group a fair few times but unfortunately we lost…[Read more]

  • tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago

    Hi Jean and Frank
    Well aint your Hubby doing well 😀 am sure (but my mind has gone awo;?) Frank is doing better than I did at same time ? you will have to ask Elaine Jean am sure she will remember Lol. but all through it i was up showered and shaved (its all you have to do to be honest) and dressed it made me feel better when i fell asleep lol.…[Read more]

  • tom replied to the topic Tenterhooks in the forum General 11 years, 8 months ago

    Aww Dai

    Bless its hard aint it?
    But I will tell you what I have done over the years including during and after SCT (but I dont advise anyone else to do it, worked for me 🙂 )

    All my life I have took the kids when they are ill and cuddled them saying "Come on Give us a cuddle and Dad will take your poorly away" Now that worked for our…[Read more]

  • Hi Sue and girls

    I am pleased you and the girls have decided where to Scatter Michael's ashes, and Scarborough is a lovely place.
    Will be thinking of you and the Girls on your special day.

    Love and Hugs to you all

    Tom xxxx

  • Hi Rebecca

    You could have a look at back answers on this site,if you put in kidney in top right hand corner it should come up with something ,I think a fw people will reply to you who have had the same problem

    My husbands kidneys regenerated,but he was still given a smaller dose of chemo for SCT. Enough to do the job,he does have to drink…[Read more]

  • eve replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago

    Hi Louise

    I could tell you not to worry,but you will.its everything that everyone else has been through,make sure you take old clothes in,you just might want to through them away.Cold milk went down well with Slim,do not worry if dad does not eat,no use eating then being sick,things just do not have the same taste. They say a piece of pineapple…[Read more]

  • eve replied to the topic Dad and his secret in the forum Newcomers 11 years, 8 months ago

    Hi Bev

    Sorry to hear about you situation ,you do not say how old your father is or how old you are??.

    It must be hard on you,but if your dad chooses not to tell you,there is no way you can find out!!!!

    You could approach the situation by saying you have been on the Myeloma UK site,because some one you know has Myeloma and you found it…[Read more]

  • eve replied to the topic Curly Hair after SCT. in the forum Side-effects 11 years, 8 months ago

    Hi Babs

    Yep my husband has lovely locks plus from grey he went brown,I refuse to cut it
    ,in case they disappear ,he had straight hair before,I think it does go back to the way it was.:-S Eve

  • eve replied to the topic kidney failure and sct in the forum Treatment 11 years, 8 months ago

    Hi Rebecca

    Are you on dialysis ?..,

    I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.

    There are people on here who have had SCT…[Read more]

  • Hi Ann and pete
    I have never been on "Morphine" but i know folk who have and still are 🙁 and the morphine itself gives problems but its needed, Pete will get better soon use Ice cream and Yogurt (i coudn't do the latter 🙁 ) it will soon get better 😎

    Jean and Frank

    Well I know how Frank feels re the food 🙁 I also stuggled to eat…[Read more]

  • tom replied to the topic MM and immune system in the forum General 11 years, 8 months ago

    Hey Ted
    My you are avin a two and fro arn't you :-/
    As for the chest problem I think all us MM folk have that I do ?:-/
    I wonder what they mea about "The Immune system" being effected?? are they saying that us MM'ers cant have an operation as we might have a comprimised Immune system??
    Dont let them shrug you off ted get in and ask away…[Read more]

  • Hi Dan

    Well you are doing a great Job for such a Young man and am sure evry one is proud of the way you cope, but as others have said ask for help and use it you need space and time away from all of this MM stuff every now and then.

    Such a lot to do and sitting exams also wow I am proud of you as well 😎 but ask and take the help as much…[Read more]

  • Hi Dai

    Am pleased to read your Temp is dropping, I think its a MM thing ?? I get hot high ish temp every now and again but feel well in myself 😀 and am on Nothing and all bloods are good he tells me Lol.

    Stay fit and be Cool Dai 😎
    Tom Onwards and upwards x

  • tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago

    Hey Jean

    Frank sounds like me (but not the footy lol) I never used to ask I just let them get on with it 🙂 if My Mans Happy am Happy

    Let frank sleep its going good Honest.

    Love to you both

    Tom an Elaine Onwards and Upwards xxx

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